cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Posting for a friend...
What supplements are good for reducing inflammation? Energy? Any work better for you than others?
Friend has been on prednisone (yes, she knows that's a no-no with Lyme, but Lyme has only recently come to her attention as a possibility).
Doc is taking her off of the pred, but she is feeling worse off of it than she did on.
What options does she have supplement-wise that might help her adjust?
Thanks for any input.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- #1: So, as you mention lyme is suspect, can she get to an ILADS-educated LLMD for a good diagnostic work-up?
#2: Sadly, she will likely feel far less that chipper for some time. She may also experience sudden shifts in mood. Prednisone (on and afterward) had me flat-out suicidal at times, breaking into deep sobs at the drop of a hat. And that is not normal for me, at all - but I learned later that it is what many report with its use.
It took me a very long time to get the steroids out of my system. One author says it can take six months. But, at that time, I knew nothing about all that is posted here. When I finally embraced some of these methods, I felt better.
The energy drop is hard and fast after steroid use, too. More rest is required. Being gentle with one's self helps as might a professional massage if she can afford that.
It is a big adjustment and excellent self-care really matters. However, some of the things below should really help.
I'm not a doctor but what here is what I would do (and sure wish I had known at the time I was on the "prednisone mistake train" (as long as her gallbladder is in good shape) she might start with Curcumin and Cordyceps. MAGNESIUM, too.
If her gallbladder is stressed, a little turmeric is better than the stronger extract strength of Curcumin. Organic is best.
* A Gluten-Free diet really helps and is vital to decrease inflammation.
For Lyme pateints, adequately addressing all the infections and getting enough rest is vital. Along the way, in addition to infection Rx, here are some wonderful articles: ---------
[ 03-17-2010, 01:46 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Thanks, Keebler. This will help. Knew we could count on you!
Anyone else have thoughts on this?
Friend has lots of allergies, plus kidney issues, so we need lots of ideas since so may not work for her due to other considerations.
Thanks bunches, cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- ADRENALS. ------- For energy (adrenal support), others will be along with what works for them. Here's some stuff to read: -------------------------
Cordyceps is recommend here and it's a good place to begin:
This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:
Nutritional Supplements in Disseminated Lyme Disease
J.J. Burrascano, Jr., MD (2008)
========================
This book, by an ILADS member LLMD, holds great information about treatments options and support measures, including those to help adrenal/endocrine function:
The Potbelly Syndrome: How Common Germs Cause Obesity, Diabetes, And Heart Disease (Paperback) - 2005
by Russell Farris (Author), Per Marin (Author)
Much about stress reactions here. - you can read customer reviews at the link. Attention is given to lyme and other chronic stealth infections however, it does not go into details about solutions.
===========================
This is not a lyme book.
This book has only one reference to lyme (in the historical use of sarsarparilla for another spirochetal infection). However, it is a vital first book to read - or a reference - for anyone interested in understanding nutritional methods.
Search for Ashwagandha; Cordyceps; Siberian Ginseng in this book:
Graciously, much of this book is on line. It can also be purchased from this site or through Amazon where you can look inside the book and see many customer reviews.
Afternoon naps are often absolutely required, as per Dr. B's self-care guidelines.
Being GLUTEN-FREE can make a huge different with endurance and mood related to adrenal exhaustion. Many LLMD require their patients to be gluten-free, for good reason. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Eleuthero (siberian ginseng) has worked well for me and is one of the key recommended Buhner herbs.
Posts: 2557 | From home | Registered: Aug 2006
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Cactus, With kidney issues, she should be sure to avoid ibuprofen. -------------
posted
All thanks for the help. Cactus was actually posting for me. In part because she knows my story very well and knows i am so down and out sick right now getting all the post in I need is nearly impossible.
keebler, I pose this you:
I have stage 3 renal failure. Only one kidney. I have worked closely with a nephrologist and now have been "released" until I hit stage 2. But one huge NO NO are trying herbs, vitimans and supplements.
Anotehr issue is that I react allergic to many herbs, vitimans and supplements.
I have been ill chronically for 4 years. With it being suspected to be lupus. Please read my post lymes or lupus on this bb I put up today. thanks!
Posts: 21 | From iowa | Registered: Oct 2008
| IP: Logged |
posted
Also, since I am under debate of lyme or lupus.....do lyme patients respond well to steriods? I mean a nearly total clearing of all symptoms? With steriods I am "almost normal".
Posts: 21 | From iowa | Registered: Oct 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Your friend reported that you were " . . . feeling worse off of it [prednisone] than she did on. . . "
Was this an accurate account? If worse when you come off steroids, that's a very important clue. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
Well i do feel worse, but when i say worse I mean worse than I feel on it, back to the same old things as my normally sick self...haha. So not worse as in worse than before taking them. Does that make sense and help any?
Without them I have the foloowing: joint pain and swelling extreme lymphnode pain and swelling muscle pain and cramping fevers daily fatigue
those are just a few and the main things that END on steriods.
When i get off steriods within days my symptoms return and then progressively get worse again.
Posts: 21 | From iowa | Registered: Oct 2008
| IP: Logged |
posted
Maybe ask your doctor about taking fish oil to reduce inflammation. I am not sure if it's recommended for those with renal failure, but it's not exactly a dangerous herb.
Posts: 584 | From NY | Registered: Feb 2009
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A gluten free diet, an anti-inflammatory diet with lots of color and maybe just enough garden spices will work well to lessen inflammation. Of course, if infection is involved, while a good Mediterranean style diet (but gluten-free) is essential, the infection would have to also be addressed. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
massman
Unregistered
posted
Would a strong enzyme like Wobenzyme be indicated ?
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic