posted
Who else has an increased irratability, almost noticable increased inflammaiton when in direct sunlight. I notice that when i climb in the sun my heart races, my muscles get inflamed quickly and my irratability sky rockets. What is the cause/solution other than - waiting for sunset to do anything outdoors.
-pinch
-------------------- Bit in March 2005. Posts: 58 | From Jersey | Registered: May 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
There are two groups here. The anti sun group and the pro-sun group. I wish I knew why we have such a difference of experience with this.
I'm the group that finds sun beneficial to my being. I don't have any suggestions. I hope someone comes along that can explain some logic to why you can't and I can.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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I use to go on cruises and beach vacations and always end up spending the afternoon in bed exhausted after being in the sun. Hence I work with the MP and just do better out of the sun.
As mentioned it's an individual thing with responses to the sun and Vit D.
Posts: 805 | From Utopia | Registered: Feb 2006
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posted
I used to be very intolerant to sun and would jump from shade patch to shade patch in the rare times I was outside. Since I've been treating, it's gotten better. Hoping to be able to spend some time outside this summer.
I would get patchy dysthesias and feel nauseous, flulike and fatigued if I spent any time in the sun.
-------------------- IV graduate. As of 1/10, oral Omnicef, Minocyline, Mycobutin, Levaquin, and Flagyl. Lyrica and a bunch of supplements. Posts: 123 | From Atlanta | Registered: Mar 2009
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
The sun can cause a porph attack, probably this makes you feel not good. There is information about porphyria if you look into the search function.
Posts: 1834 | From US | Registered: Oct 2008
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Pinchme yes the people that I have talked to that went into full remission are not affected by the sun any longer. I still go into sun for short periods but wear zinc oxide sun screen on any exposed part of my body and wear a hat and special sunglasses.
Posts: 805 | From Utopia | Registered: Feb 2006
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I'm mixed. I feel better in the sun but I get migraines triggered by the bright light..
Posts: 146 | From Midwest | Registered: Feb 2005
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Hello, I've been severely sun and heat intolerant since contacting lyme many years ago. I only recently discovered that it's lyme i have. Before being ill i was able to be out/ work out extensively in the sun. Now just a few minutes in sun or heat exacerbates all symptoms severely and completely disables me. I have no idea why. For me it is all heat, sun and light.
Posts: 164 | From North America | Registered: Mar 2009
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I always loved and thrived on sun. I still crave it, but now can't tolerate the heat or bright light. Hoping it resolves soon with treatment.
Posts: 57 | From western Virginia | Registered: Apr 2009
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My neuro symptoms are aggravated by light. If I were to walk around blind folded sunlight is ok.
Cars driving by when you are at a stoplight at night time aggravate these symptoms. Certain frequencies of strobe light during a routine EEG exaggerates the sensitivities, makes me VERY irritated/anxious, and makes my whole face start twitching like crazy. Sometimes I can't handle the local Walmart and some other department stores.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
My pain management Md said the other day to me, "Well now that it is getting warmer, you may feel better". NO..not me, heat is the worst!
I lived in the sun prior to LD, I loved it.
Now, anything warm I cannot tolerate. Hot baths at all, heating pads, electric blankets and even long warm showers or sunlight for very long.
Oddly, infrared sauna's feel good, this I don't understand at all because sun emits infrared heat.
I don't understand it, I just know I dread summer.
posted
I suffer neuro symptoms in the sun occasionally. Sometimes I'm fine and other times my eyes start drooping when I go out in bright sunlight.
Posts: 975 | From California | Registered: Apr 2007
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posted
I'm also a vampire lymie. Sun is NOT my friend.
The month prior to starting tx (had an appt made, just waiting for it), I did something REALLY stupid.
I had my daughter's party outside at a completely unshaded park. We were only there a couple of hours, but it took me almost 3 days to literally be able to move on my own again. =(
I hurt SO bad and seemed to be swollen all over. Plus I was so completely weak I couldn't even roll over on my own. Also ran fever and breathing I think seemed to be shallower than ought to have been.
Scary. Learned my lesson, though. Live like a vampire for awhile. How long who knows?
It's been almost 2yrs and I still can't tolerate sunlight.
Prior to the sun affecting me in this way, my eyes had become more and more sensitive to the sun over the last several years.
It got so bad that I had to keep my eyes almost completely closed even WITH dark sunglasses. Yet another reason to remain behind drawn curtains.
I really need to get some of those full-spectrum lightbulbs... lol
Chris
Posts: 155 | From Texas | Registered: Oct 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sunlight problems can be connected to a type of porphyria. I can't recall which one specifically, but one or two types require patients to avoid sunlight. And while one type is partly about skin reaction, nervous system damage can occur, too.
posted
For anyone not familiar with the Marshall Protocol that has problems with sun and bright lights should look at this. I have had friends go into recovery, some from this board and some friends who just couldn't tolerate benicar and stopped. The protocol is not for everyone just like so many other lyme treatments.
I do way better staying on the MP but you can also go search Dr. Mercola who claims you must have Vita D.
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