posted
My child was on IV rocephin for 13 days in January, then she developed hives and a fever so the doctor stopped it as she felt it was an allergic reaction. Then we switched docs and tried IV zithromax for 4 weeks.
Our new Dr did not think my child was allergic to Rocephin and ordered allergy testing that seemed to indicate that she was not allergic.
Today we started the IV rocephin again (In the car outside an ER since insurance is not covering it anymore). Per our doctor's instructions, we gave her Benedryl 30 minutes before the IV.
A few minutes after we started the IV, my child complained of burning eyes, then her eyes looked blood shot and her vision became blurry. Also, her cheeks began to swell and she became dizzy and developed a high fever.
At this point I walked into the waiting room of the ER and sat there to see what happened next. After an hour, I carried her back to the car and brought her home.
I know that allergies could potentially progress to anaphylactic reaction and I am terrified to continue. I feel certain that my new doc will say it was a herx but how do you get a herx within 5 minutes of starting a new drug?
posted
I would wait until you talk to a Lyme Literate doctor for sure.
I had the same thing on Rocephin, hives, burning skin, eyes burning, all of that and the Benedryl only helped a tiny bit. I spiked a fever of 102 and felt pain all over my body. I was also switched to IV Zithromax for 2 days, (that made me herx even harder) then Rocephin was re-started and nothing happened reaction wise. I continued both IV drugs for many months without problems until 9 months later I got sepsis (line infection) So, sometimes rashes, allergic type symptoms can be a herx, but not always, so be safe.
I would get the allergy checked out regardless and stick with IV Zithromax until you can see a doc.
When I started on the Rocephin, I started with a drip (over 30 minutes). At some point, for I don't know what reason, they started sending me syringes instead, that I was supposed to 'push' over 5 minutes.
And I got hives, and was maddeningly itchy. So they said to push it over 10 minutes, then 15, eventually 30, and I was maxed out on Benadryl. None of that helped, and I had to have them switch me back to the drip.
So maybe it has something to do with how it's administered? Just a thought.
Posts: 306 | From Brownsville, PA | Registered: Jul 2007
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posted
To Ladycakes: She is on the IV administered through a ball and it takes 30 minutes to administer.
She is on oral Zith since it has good bioavailability when taken orally so IV is not necessary if the insurance won't cover it.
What are some alternatives that they use on children if Rocephin does not work? Does anyone know?
Posts: 15 | From princeton, nj | Registered: Feb 2010
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Of course an LLMD would know best. IMO hives would be a sign of an allergic reaction but I know people that take the Benadryl and it helps a lot.
I wonder if there is some really cheap, bad Rocephin out there. I never had a problem with it and then began to have problems after starting a new batch of Rocephin.
One option might be IV Doxy. It does wonders for some people.
Posts: 2232 | From USA | Registered: Aug 2009
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