LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Chemotherapy

 - UBBFriend: Email this page to someone!    
Author Topic: Chemotherapy
djf2005
Frequent Contributor (1K+ posts)
Member # 11449

Icon 1 posted      Profile for djf2005     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hey guys-

Has anyone heard of anyone doing chemo for Lyme specifically?

I heard rumors recently of this, but this seems like a disastrous idea.

No, I am not considering it, just curious if anyone actually has any references.

Thanks

Derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
VB
LymeNet Contributor
Member # 16824

Icon 1 posted      Profile for VB     Send New Private Message       Edit/Delete Post   Reply With Quote 
no, but funny... I just had this conversation with a friend the other day. Would like to know this as well.
Posts: 453 | From TX | Registered: Aug 2008  |  IP: Logged | Report this post to a Moderator
swedish lyme sufferer
LymeNet Contributor
Member # 14579

Icon 1 posted      Profile for swedish lyme sufferer     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have heard about it - killing the cells that the lyme harbours it would kill it - or make it come out to be killed with ABX, I suppose.
Actually I would do anything, inluding chemo to get rid of the XXXXXX.

Posts: 347 | From sweden | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
viva
LymeNet Contributor
Member # 8183

Icon 1 posted      Profile for viva     Send New Private Message       Edit/Delete Post   Reply With Quote 
djf,

What kind of chemo drugs are you thinking of?

My husband, who has Lyme, had chemo for colon cancer. One of his drugs was platinum-based, and his metals load increased dramatically. Also, the drug had neurotoxic effects (peripheral neuropathy), which we managed to somewhat hold at bay with acetyl-l-carnitine.

All told, the chemo was easier than Lyme treatment, and his Lyme did not worsen during that time, but the chemo didn't take care of the Lyme, it just put more aggressive Lyme treatment on hold.

So...no references, but just that bit of experience.

Viva

Posts: 532 | From southeast US | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think there may be an option once you got the load way down. I liken our antibiotic treatment to

chemo by what it does to our cells already because it makes us so sick. And I have often wondered

about those cancer patients who do not make it past the 2nd. treatment.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
djf2005
Frequent Contributor (1K+ posts)
Member # 11449

Icon 1 posted      Profile for djf2005     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for the opinions.

Seems like a very bad idea considering one would need body wide treatment and our immune systems are already so compromised.

We would have to be assuming that "active" infection is the #1 problem which there is no way to tell, and then even if it were all removed/killed via chemo, the immune system would have to rebuilt. We could as a result die from catching a common cold.

I guess I don't know enough about it and if I have trouble tolerating abx and the toxicity from them in general (I am HLADR4) I cant envision myself doing chemo and not literally dying from it.

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
joalo
Frequent Contributor (1K+ posts)
Member # 12752

Icon 1 posted      Profile for joalo     Send New Private Message       Edit/Delete Post   Reply With Quote 
My husband had five rounds of chemo last year for non-Hodgkins lymphoma (diffuse large B cell) and still has lyme and co.

He went through HELL with the chemo treatments. I'd take lyme treatment over having chemo...any day!! Anyone who thinks chemo is easy is totally clueless.

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
joalo thats awful to have Lyme and Lymphoma.

I bet it was horrible. He is very lucky. I know

many people who have died taking chemo, I believe

by no detoxing protocols.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
djf2005
Frequent Contributor (1K+ posts)
Member # 11449

Icon 1 posted      Profile for djf2005     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yeah Joala, this is what I thought.

I stayed on a floor of cancer patients before when I was so sick w/ lyme I could barely talk or walk, and they were not doing well.

Sorry for your husband's suffering.

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

Icon 1 posted      Profile for map1131     Send New Private Message       Edit/Delete Post   Reply With Quote 
It's amazing when you see the medical establishment treating cancer with all those heavy duty toxic materials and nobody is talking to patients about detox and life style changes during this toxic periods??????

GGGGRRRRRRRRRRRRRR!

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6479 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
My aunt had colon cancer last year. The cancer went into remission but she died from the toxicity of the treatment. I tried to get her to consider a FIR sauna or some other detox methods but she would only do what her doctor recommended and they don't recommend any detox for fear of interfering with the treatment.

She suffered horribly and it could have probably been avoided.

Terry

Posts: 6286 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590

Icon 1 posted      Profile for lymetwister     Send New Private Message       Edit/Delete Post   Reply With Quote 
What about Liquid Draino ?

Just kidding, but if it worked and didn't kill ya, I'd be up for it.

:-)

Posts: 1227 | From District of Columbia | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
Treelady
Member
Member # 23506

Icon 1 posted      Profile for Treelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
Chemotherapy used to refer to antibiotic treatment. Way back in the day when antibiotics were discovered doctors thought they had found the key to all disease-bacteria. Treatment with antibiotics (drugs being used to kill stuff) was called chemotherapy. As better sanitation and antibiotic treatment slowed the spread of many bacterial diseases the term started being used specifically for cancer treatment with drugs. Just an interesting FYI

--------------------
Treelady

Posts: 39 | From California | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Treelady
Member
Member # 23506

Icon 1 posted      Profile for Treelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
Chemotherapy, often shortened to chemo, is the use of strong chemical drugs to destroy fast-growing cells, bacteria, fungi and viruses. From Ehow.com
So we are all on chemotherapy. Tell people that and see how much more concerned they are.

--------------------
Treelady

Posts: 39 | From California | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
CD57
Frequent Contributor (1K+ posts)
Member # 11749

Icon 1 posted      Profile for CD57     Send New Private Message       Edit/Delete Post   Reply With Quote 
Tygacil was called chemo by my LLMD.
Posts: 3528 | From US | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
djf2005
Frequent Contributor (1K+ posts)
Member # 11449

Icon 1 posted      Profile for djf2005     Send New Private Message       Edit/Delete Post   Reply With Quote 
I doubt I will convince the general ignorant public that I am already currently on chemo(abx), but it's a thought.

LOL.

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
f13girl
LymeNet Contributor
Member # 23844

Icon 1 posted      Profile for f13girl     Send New Private Message       Edit/Delete Post   Reply With Quote 
My aunt went through chemo /radiation.Her naturopath recommended she take a bath in "draw" once/week during treatment to draw out the toxins so as not to damage her organs. Not sure what "draw" is-i'm told they use for animal soaks as well.. not sure.
Posts: 200 | From New England | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
springshowers
Frequent Contributor (1K+ posts)
Member # 19863

Icon 1 posted      Profile for springshowers     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am at a clinic right now that treats near all cancer patients with Low Dose Chemo using IPT and concentrates hugely on Detox and immune stregthening.

People look pretty good overall and I heard a few great success stories already.

My mother is on IPT too and doing better than ever.

After a trial of normal Chemo that was HORRIBLE and she did not even last long on a trial of normal chemo. It is very strong and terrible ..

So there are clinics out there trying to help cancer patients by doing other things besides just killing that cancer and your immune system and hoping you will live.

And Yeah I heard the word chemo means what was posted above. WHen I go into my clinic they use that word for me but I am sure it is out of habit. There are other lyme patients that come through but it is a smaller percentage than the cancer patients there. IT is a pretty small clinic but has a good group of doctors and so far I am doing quite well.

FOr me I think this is the closest to chemo I will get ( i pray I never have to do the real chemo drugs )

I get in my treatment the same things the cancer people do but they use combos of abx instead of combos of chemo drugs..

So well I am excited about this therapy even though I am only on week two. You get one IPT treatment per week.

Some cancer patients get two if your a more serious case.

Posts: 2747 | From Unites States Of America | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
djf2005
Frequent Contributor (1K+ posts)
Member # 11449

Icon 1 posted      Profile for djf2005     Send New Private Message       Edit/Delete Post   Reply With Quote 
So what are you doing there exactly spring?

A form of chemo & detoxing or just detoxing?

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just don't do something that will suppress your immune system. I was put on methotrexate and steroids by a rheumie before I found out I had Lyme.

NOT GOOD.

Methotrexate is considered a chemo drug.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96227 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
springshowers
Frequent Contributor (1K+ posts)
Member # 19863

Icon 1 posted      Profile for springshowers     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am doing lyme treatment but it uses a Treatment Delivery system called IPT. I have another thread on this subject and there is a past where they did this using IPT but in a different way.

IPT is where they take your blood sugar levels down and then give you the "treatments at that time" They use this for cancer patients to be able to better target the bad cells and leave the good cells alone. They found that it works so well that they can reduce the amount of meds dramatically and still get full benefit. or more.

For the cancer patients they have a full protocol that has not only chemo drugs but supportive homeopathic and supplements that they determined are also best given at that time.

I am doing the protocol but they give me abx instead of chemo drugs. They rotate a couple different abx through an 8 week protocol.

At the same time they have a lot of detox modalities at the clinic.

The IPT treatment takes a good few hours. THey prep your blood by doing IV Blood OZone and UVB treatment. Then they do a nutritional small potent bag and then they give you short acting insulin t get your blood sugar down to theraputic range. THen they adminsiter all the drugs and therapies they choose for the protocol at that time really fast one after the other into the IV.

Then they give you glucose to bring your sugars back up and they have you eat a bunch of food and drink juice etc. IT takes about 30 minutes to an hour to get back to normal.

I can not post the whole protocol as it is against the rules here and it is also proprietary.
During that time I also get shots IM and take elixers and supplements. SO there is ALOT going on in that one 5 minute opening where the administer everything.

Posts: 2747 | From Unites States Of America | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
springshowers
Frequent Contributor (1K+ posts)
Member # 19863

Icon 1 posted      Profile for springshowers     Send New Private Message       Edit/Delete Post   Reply With Quote 
Even though this treatment IPT Is controversial I read back in history and they used to put you into a insulin induced coma. They do not do that anymore and have found the safe place to do the treatment.

I can feel that during the treatment the durgs go where they need to be and I do not get the side affects or herxes and all of that.

The next day I just really tired and the rest of the day on that day they did it.

Then I just start feeling better and better.

This is just my second week so I can not give a real or full opinion but if this is how it goes and is incremental over the weeks I can see that this will be amazing for me.

We will see and only time will tell.
Nothing is guaranteed. THe doctors there are the types to work with Dr K. and Dr M and Dr J and are allopathic integrative types.

Posts: 2747 | From Unites States Of America | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Love your liver. Chemo can damage the liver. You need your liver to live. And ditto for kidneys.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
jessielee
Member
Member # 15806

Icon 1 posted      Profile for jessielee     Send New Private Message       Edit/Delete Post   Reply With Quote 
Springshower, I just read your post about IPT therapy . I have been diagnosed with cancer and am very interested in this treatment. The problem is where to find a reputable place or Dr. that does this. Do you think you could send me a private e=-mail? Thanks so much, jessielee
Posts: 11 | From va | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.