posted
Anyone found that IVIG worked better for them on heparin? Anyone had experiences with low dose heparin as a treatment for brain fog? My own experience was that IVIG worked great while I had a PICC line, then not so well after. I'm theorizing that the Heparin helped it, maybe somehow by thinning my blood (not sure why that would help, but that's what Heparin does). Thanks for your thoughts!
Blackbird
Posts: 30 | From Massachusetts | Registered: Dec 2009
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
My LLMd recommended sublingual heparin to me when I first got bad babesia. I had signs of hypercoagulation at the time- thick blood when I had a blood draw done- and the reason for using heparin was supposed to be for improving circulation by thinning the unusually thick clotting of the blood. Unfortunately, there was a nationwide heparin shortage at the time, so I couldn't get the stuff. Supposedly brain fog is one of the things that can happen when you have hypercoagulation (though there are many theories on other things that can also cause brainfog).
I have been thinking about whether it might be helpful to look into heparin again, now that it's available again. No idea what it costs when compounded into some non-IV version.
What I did instead
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Interesting about heparin. I read in Dr. H's chapter in a Lyme book that one of the things he uses for brain fog is Heparin. I had never heard that before.
Last Friday I had one of the best days I've had in many months. I was able to think clearly. I assumed it was because I started Mepron among other things. I realized that day I had my port flushed with Heparin. I wonder if that had something to do with it.
Is it possible to get oral Heparin? I am going to ask my LLMD about this next week.
Posts: 2232 | From USA | Registered: Aug 2009
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
Midwest Compounding and a number of other places do sublingual troches. I just called and it's about $170/month for twice daily (I'm not sure the strength, I think it was 10,000 units each?).
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