posted
I'm on 400 mg of doxy along with 4500 mg of amoxicillin and though I have used spf 50, worn hats and stayed in the shade I have a very sore red nose and cold burning tingling in my hands and face, some nausea. It's been two weeks without much change. Anyone have experience with this? I couldn't find anything in a search. I have just taken 1/2 of the doxy today but I really don't want to cut back on my bug killer.
Posts: 27 | From SW VA | Registered: Aug 2008
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posted
I am even staying away from the windows.I have been on doxy for almost 6 months and haven't had any problem and yes it's been winter but the sun does shine and my precautions were enough. Anything that will help with this reaction?
Posts: 27 | From SW VA | Registered: Aug 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I'm not sure who knows so I'll just suggest to call one of your local weather meteorologists and ask them to teach you how to distinguish between shade that has "bounce" from the sun and shade that does not.
Time of day, angle of the sun, etc. How much water, glass, steel, etc. around . . . . The American (Skin?) Cancer Society also may have a guide.
There must be some way to be able to find "good" shade. You would still need to wear protection but, you might be able to enjoy some time outside if you find the right park.
Even if you just have to stay indoors more, the doxy is far easier on your ears than mino might be. However if you are one of those who happens to tolerate minocycline, you might ask your doctor to change meds if you really have to be outdoors for some reason.
If you do take mino, be certain to have the very best liver support to help protect your ears and balance system as mino often causes vertigo but liver protection helps.
You don't want to be treating this for decades so do what you must to keep the dosage at therapeutic levels.
=================
For anyone considering switching from doxy to minocycline for the sunny months: 3/4 of the way down page one, there are lots of LIVER LINKS - and some posts about mino:
GoodGuide ``Safe'' Sunscreen SPF 15 And Above Ratings -
without the chemical additives, petroleum products and endocrine disruptors of other sunscreens -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Yeah. For some people, doxy and sun are a bad mix. I got real red in the face. Had this weird tingling in hands and face. Once your exposed and start the reaction, it doesn't take much sun to irritate your skin... even partial sun in the car would make it hurt. When outside time comes around, I believe that most LLMDs will move you off of doxy to something else, if you're an outside person. Doxy is better for cold months re the sun problem. I was concerned because I was on Doxy and was going to Disney for a week. I stopped my doxy about five days before going and was fine. That's my experience at least.
Posts: 386 | From Southeastern PA | Registered: Oct 2007
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posted
Yes, some people are more sensitive than others to sun when taking Doxy. My LLMD would not even prescribe it in the summer because of that.
I took it for a while-extreme nausea for about an hour-always had a waste basket handy in case I hurled.But then when it passed I was okay.
Posts: 365 | From Sylvania | Registered: Aug 2008
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posted
Watch out for toes too! When I was on high dose doxy I walked early so I could wear long sleeves,etc, but didn't think about the sandals until I had strange looking redness on my toes and toenails. First time I had ever sunburned my toes!
Also be sure to protect the eyes with really good sunglasses. I have just had cataract surgery for the left eye only, probably due to the left side being most affected by lyme, and not being careful enough about sunglasses.
Posts: 287 | From Northern California, USA | Registered: Oct 2000
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I got the doxy burn that you are describing. It is a medication burn, and can really, really hurt.
It probably took me 30 days to get over it.
Once I got it, I was not able to sit under my kitchen sky light even for 10 seconds without terrible pain. I could not run out to my mailbox and back, etc. To get any sun on me at all in those spots set off the terrible burning.
Sun screen does not prevent the burn. You can get it through car windows and windshield. So, when driving, you must wear gloves.
Best thing is to get off the doxy. Otherwise, stay away from windows, including car windows, and don't go outside until it is totally cleared up.
When you lower your dose, you are affecting whether or not it is then able to kill the germs. Lower doses do not kill lyme; they just keep it from multiplying (called a bacteriostatic dose, rather than a bactericidal dose).
So, rather than do that on your own, I suggest you call the doctor's office to find out what you should do or go back to the prescribed dose.
Posts: 9931 | From Maryland | Registered: Dec 2007
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All --
While taking Doxi dont eat ANY Citrus or cranberries --
It can cause Photo Toxic reaction -Google it --
The picture of what can happen will Freek you out-
Even Tiny amounts of citrus can cause this to happen-- Lemon in tea --
I was photo toxic for 2 Horrible years -- Even the light from my computer screen would burn my skin --
I had to wear all black cloths- face mask - hat - gloves -I was totally covered up --
Regular sun screen dose not work at all -
There is a sun screen called Blue Lizard - It is supposed to stop all 3 forms of light- I have not used it so I dont really know if it works -
I finally figured out that citrus was causing this to happen and I stopped eating ANY citrus-
After about 4 months of no citrus - I was able to go out into the Texas sun with no problem -- AAAAhhhh
The Tingling skin is the first signs of Photo Toxic reaction--
The skin damage it causes is mostly permanent --
So be Very Careful -- Jay --
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
Ditto about the gloves. I have pairs everywhere.
Learned very quickly how easily I burned. My
hands took months to recover. That was just from
driving. So be Careful!!!
Posts: 146 | From Vancouver, BC | Registered: Dec 2009
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I got sunburned the other day and was mostly in shade. My skin only burned when I tried to itch it or it came in contact with water.
I don't have a choice but to be in the sun sometimes as I am a house painter. So I took the kids sunscreen with some serious SPF with me to work the other day.
I had to reapply twice that day, about a 7 hour day and still got a little sun, I wasn't even directly in the sun I was under a covered screen porch!
I've only been on doxy and at an apparently low dose compared to the OP (100 mg. X 2 a day) for about 20 days.
posted
I got the doxy burn on my hands when I was on a road trip for a couple of days, driving to see my LLMD.
I was wearing 85 SPF sunscreen, but I'm not sure if I missed my fingers or some rubbed off.
I got a red burn on my fingers (first time I recall having that there), on a couple of spots on my face that I may have missed with the sunscreen, and also got the weird cold tingling that I would feel on the back of my hands when I washed them.
It went away and my hands are back to normal.
I sat out in the sun on a cool, cloudy day for about an hour total, wearing a jacket, hat and 85 sunscreen, so the entire burn could have been from that or from brief walks outside.
I was trying to figure out whether any of it was through the car window, but I'm not sure.
I mostly stay indoors when I'm at home, and it's been raining a lot, so I haven't had another burn in the last 3 weeks.
I am on 400mg a day of doxy. It also causes me the nausea starting about 45 min. after I take it and lasting for an hour or two.
Sometimes it makes me vomit and sometimes it doesn't. My strategies to reduce the nausea don't always work. (Ginger capsules, ginger tea, timing the pills an hour and a half after a meal so they get through my stomach faster.)
-------------------- Don't forget to laugh! And when you're going through hell, keep going!
Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009. Posts: 756 | From Inside the tunnel | Registered: Jan 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I agree to stay completely out of the sun and probably quit doxy for the summer months. I could not drive in the car or sit by a window while I was on it and finally had to quit using it exactly this time of year (first of April) because I was burning so badly. I also burned my eyes.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
The NoIR filter systems offer ultraviolet, visible and infrared protection . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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