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» LymeNet Flash » Questions and Discussion » Medical Questions » How many have tested for KPU and feel it is important?

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Author Topic: How many have tested for KPU and feel it is important?
springshowers
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Curious what percentage of community here has tested and or also feel it has been important in their healing journey.

It seems to be s small group of doctors who test for this and I wonder why that it also?

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ticksickfamily
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Myself and my son were both tested in February. I was borderline positive, my son much more significantly so.
So, I am currently being treated for this and I guess my son will start soon after our next consultation with LLMD. I feel significantly better one month on, but is that KPU treatment or change of antibiotics or both, who knows ?
I feel it could be significant, but I am early on in therapy so far.

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Imaginit
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Hey Spring,
I am being tested for it...my first test never made it to the lab on time and therefore I had to do it again and I am waiting for the results. I anticipate that mine will be high and will be treated for it.

I have stopped all antibiotics because of detoxing issues and feel so much better. I am following Dr. J in Kansas's protocol.

I am also thinking of doing a liver detox test that shows detoxification of 52 pathways in the liver but it's $425 so I'm still debating if I should or not. My llnd thinks it would be helpful to explain and treat why I couldn't take oral antibiotics.

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GiGi
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Get rid of dysfunctional allergies before you do KPU (Allergie-Immun.de) Then it is a beautiful program if you fall into that category by testing.

If you are allergic to toxic metals and to wheat/gluten/grains, fungi and mold (as most Lymies are) it is a ride through hell. And I am not sure you will ever get to the other side with KPU alone.

Dr. K. is now doing Allergie-Immun himself. The published European literature of Kamsteeg, etc. warn about , at least, the gluten thing. In other words, you will need to fix the Leaky Gut problems before you can expect to heal anything -- anything at all. Because of the malabsorption caused by the Leaky Gut.

There is always some other reason besides a tick bite why we became so ill in the first place. I have been there - so I know what it takes to come out on the other side. Consider your are toxic -toxic enough that it should take priority.
My husband had a silent allergy to all these and never had a chance to succeed before AI.

There is a book written by a German and a well known American doctor: "Detox not Retox" - too bad it is not translated yet. "you don't have .......... (insert any disease), you are toxic" - and how right they are!

Undo the dysregulations first, reprogram, then test for KPU.

No matter what, KPU is not an "overnighter" --- we have done a lot of toxic damage to our body, especially when doing longterm abx (which luckily I did not).

Take care.


(from my own experience and that of people close to me)

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Keebler
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GiGi makes some good points.

In addition, other things to consider: KPU is just one kind of porphyria of many. Some are genetic but can be dormant until the liver has more than it can handle. Others can be acquired as a result of toxic infections or chemical exposures.

Testing or not, it is important to consider the effect of porphyrin excess, especially for lyme patients.

You can search whatever meds you are on and see if any are on the unsafe list for porphyria. The Canadian and American groups each have a link to lists. At least two lists should be consulted.

The reason this is important is that excess porphyrins can cause all sorts of damage to the body, including mitochondrial damage. Mitochondria - the tiny energy "battery pack" in each of our cells.

Lyme patients often have problems with the Cytochrome P-450 liver detox pathway and when they do, excess porphyrins can cause problems of all kinds.

==================

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/91842?�

PORPHYRIA thread (Including KPU/HPU and links from Dr. K and others).
-

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springshowers
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So is there a list of all the tests and pathways in total that people look at and consider and try to treat??

I keep hearing about this one and that one??

How will the KPU test look if I do not do something like AI first GIGI?

Is there anything besides AI that does what AI is doing for folks?

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sparkle7
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I'm looking into the Genova Detoxigenomics test. I don't really know alot about it but it may be a good idea to know which detox pathways are malfunctioning.

I have to research it further. I really don't know too much about this or how it would correlate with the KPU protocol.

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Keebler
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-
Any efforts at GENTLE liver support (so that we can metabolize toxins - so that the liver can "detoxify" the body if that term is preferred) are going to help. Harsh methods (or fasting) can make it worse if any kind porphyria is involved.

We don't "detox" like going through a car wash but we can support that on-going "detox process" as the liver, kidneys and skin that all do the work, together.

Specific methods of the Allergy-Immune can be very helpful, indeed and it makes sense to explore that - I think all lyme patients should.

As for more about the why and wherefores of porphyria - It is very complex. It's good to read all through the porphyria organization websites. Even if not for us, now, this is important information. There are around 100,000 hospital deaths a year. I think many are from drugs that patients' livers cannot handle.

Tests are not necessarily all that great - unless one is having a porphyria attack at the time of test. Genetic tests can be helpful but are not perfect and they still can't test for everything.

However, if one has a family history of serious drug reactions, genetic tests may be in order. If one person tests positive, the entire family should be tested. However, again, the tests just are not perfect and often miss. The organization sites explain all that.

So, it comes downt to life-style. As much as possible, it's just good to avoid all drugs that are harsh on the C P-450, or use only when necessary and prioritize for those treating infection. Symptom relief can often be gained with supplements that are more of a nutritional support.

Avoiding over the counter products that are hard on the liver (acetaminophen), kidneys (ibuprofen), or the GI tract (NSAIDS) is also helpful to lighten stress and prevent damage.
-

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kadee
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Hey GIGI, interesting information

quote:

There is a book written by a German and a well known American doctor: "Detox not Retox"

Can you tell, how exactly the title is in German. Google didn't help.

Another (stupid?) assumption:
Allergy immune treatment doesn't make sense during ABX?

Thanks a lot
kadee

[ 04-06-2010, 05:33 AM: Message edited by: kadee ]

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GiGi
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http://www.entgiften-statt-vergiften.com/cms/index.php?id=2&L=0

kadee, this is the site for the book and the products we now use, after having most of the dysregulations corrected with AI. The results are superb. I have tried to detox heavy metals for many years, like most Lymies I was allergic to the most toxic metals and a lot of other- fungi, mold, penicillins, chemicals by the hundreds! Do the test for 75 Euro and find out. You get the first 16 page test results, but not bottles until you decide to do the whole thing.

Once I got the dysfunctions/allergies/aka errors in the DNA corrected with AI *(read their website of what there is in English and google translate) and then take it from there.

I now drop toxic metals I had accumulated probably all my years of life, starting with my Mom.

You can try to detox until the cows come home, if your roadways are blocked because of incorrect information stored in the DNA, you will never be completely successful and the struggle never ends, even with the daily accumulations of new toxins.

The people who had acquired wheat/gluten/corn/soy allergies, are even worse off. These cause malabsorption and you can take the best food and supplements and not benefit from it if it doesn't get metabolized.

Don't make this KPU thing into a complete drama, please. It is quite simple if you read the Dr.K. presentation I have posted umpteen times. If you choose to ignore, your loss. However, If you go on KPU without preparing the system with AI first, what do you think happens to the toxins that the KPU accomplishes to stir up???????

I would not dare do KPU without clearing the allergies/dysregulations first. My husband is doing that, but it takes longer because he also has to slowly heal the Leaky Gut caused the by food allergies, etc. That is not an overnight job, but takes months. Detoxing anything without correct mineral base is close to impossible, and that base has to be built up first.

I did not have any food allergies with AI, and my disposal of toxins/metals/chemicals/molds/fungi is much faster as shown in the hair tests I am doing.

Bionic/photon treatment is a disaster if you have many errors in DNA as found with AI. The errors cause the immun system not to recognize any of the toxins that are stirred up with lights or similar agents, and it turned into a nightmare for many people, including me. That is how I reali8zed that I was still carrying more toxic metals than I had ever suspected. My body had gotten rid of Lyme long ago, but the metals were still a burden, though I didn't feel a great deal and considered "permanent Lyme damage" while I was feeling very well. Biophotons address all cells - and don't discriminate. They shake up the system, but your immune system better recognize them and wake up. As many, I lived through one year of misery to calm my system back down. You need a competent doctor who knows that Lyme is not simply made up of Borrelia, but involves every toxin known and unknown to man.

You will never get well, until you clear out the toxic metals and ongoing chemical exposure. AI is doing that for me. My lab tests prove that I am dumping toxins and the flood gates are now open.

Detoxing when the doors are locked does not make sense. Since all toxins are involved when infections take over - all keeping house together, while immune system has been put on vacation by abx and others, it does not make sense to put the cart before the horse. Educate and awaken (learn to regulate again) your immune system and then go for the kill.

Once more, Allergy Immune doesn't make sense when you keep putting in the same stuff (abx and pharma) that have put your immune system to sleep and it therefore no longer reacts the way it should. AI helps to dig up the garbage which the body didn't like in the first place. So why add more unless you have an acute infection of something, an emergency. Most of you probably do not have active Lyme any more, if you ever had it, but the memory is engraved in your DNA until you decide it is time to look at the real cause -- the toxic exposure that overwhelmed the body to finally call it quits.

I have no time to politely rewrite this - and no time to read and correct. Please take it for what it is.

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SForsgren
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I have been on KPU treatment for one year and do think it has been a significant factor in starting to see further positive progress. I have also been doing AI and can see that doing AI before KPU would be helpful. KPU was not easy and likely having done at least the first few months of AI before starting KPU might have made the road a little less bumpy.

--------------------
Be well,
Scott

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kadee
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Thanks for the input.

I called them , asking about ABX and/or rifing during the AI treatment and they said, it wouldn't bother. [confused]

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thejoje
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Are there any Germans here who can interpret that last bit?

--------------------
When we are no longer able to change a situation---we are challenged to change ourselves.
(Viktor Frankl- Holocaust survivor)

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kadee
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Yes, me. [Wink]

Which "last bit" do you mean?

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thejoje
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The "it wouldn't bother" part.

Does this mean that "it wouldn't matter" (if you take abx or rife)while on the drops
or
"Don't bother doing the AI drops" ?

(Sorry, I am a little dense.)
[Embarrassed]

--------------------
When we are no longer able to change a situation---we are challenged to change ourselves.
(Viktor Frankl- Holocaust survivor)

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GiGi
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I would recommend that if you have questions and need to get a better understanding what they are attempting to do with the PSP therapy, ask them to send you their Brochure for Clients in English, read it several times and then make up your mind whether you really want to mix different therapies together if in fact your first test results would indicate the blockages that most Lyme people got.

They will not force you to stop taking anything. They will not recommend not doing this or that. They expect that you use common sense. The purpose of the treatments is to "undo" some of the effects of incorrect medicines, stuff the body rebelled against, and clearing it out.

I speak very clear German with them and they with me. I was told "why would you want to do the things that we are trying to dig up with the therapy..... what is the reason".

My feeling is that when you see your first test results, you will clearly understand that a lot of things have gone wrong - if you are like most of us who have taken treatments and supplements our body was not able to deal with. I know that most of the stuff people take without energetic testing ends up crashing them in short order. Fine a few weeks and then people become allergic to it. It is called "operant conditioning". Look it up.

Rifing for certain sets certain substances in motion with the die-off if there is any. The body is unable to deal with these and spins its wheels ending up in some body compartment that is not meant for healing. People call it a herx. It is, from what I have learned, often a re-toxification and serves no purpose, but instead more misery, illspent funds, and wasted physical energy.

You can go through the AI thread - sometime around last August - the English translation of the Brochure for Clients is posted. If you want to do AI and get results, it is wise to follow and go by the rules.

Some people who added other therapies or took abx for other reasons could not be tested any longer. The body will no longer reveal its problems and they had to stop the therapy for several months in order to get retested later. It happened several times.

If you don't want to follow the recommendations, it is up to you and you have to deal with the consequences. But I get very upset when people then broadcast the idea that this therapy is just another hoax!

See if you can find someone that will keep their promise and not add more charges if people can't clear the allergies not in the normal amount of time. The Europeans are done average 6-8 month.
We are so hellishly toxic that it never seems to end. I have had long talks with AI about this difference between certain countries. We are without a doubt the most toxic. It is quite sad.

P.S. google translations lose the true meaning of what is being said. I have talked to them many times and know that adding more of the wrong products while they are trying to fix things is not a good idea.

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kadee
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quote:
Originally posted by thejoje:
The "it wouldn't bother" part.

Does this mean that "it wouldn't matter" (if you take abx or rife)while on the drops

Yes, they said, I could do the AI drops at the same time while taking ABX or doing Rife treatments.

GIGI, I'm hearing what you say.
Thanks.

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NanaDubo
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One of the issues that was allowed to surface while I was doing Allergie-Immun was KPU. Peeling the onion.

I had been testing for the Core since January but was petrified to start treatment due to all the horror stories I had heard.

When I was at a DK seminar last summer he said "zinc is the gas pedal for metals." I for one am glad I had Allergie Immun on board for a long time before attempting this.

Nothing feels worse than recirculating toxins.

I am treating KPU now (or zinc deficiency as shown through ART) and I don't feel a thing from it. I do not believe this would have been the case for me if I had done it sooner.

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