I've posted this before, sorry for the 2nd post, just wanted to see if anyone had any results similar to mine. Even my integrative Dr (who of course is not an LLMD) said my case is "inconclusive"...can't help that my symptoms are not though...
Not to go into a long story, but I was bit by a tick back in the summer of 2005 and have had declining health ever since, though never had a "positive" lyme test. I've had all the symptoms in the book, the most severe of is heart palpitations that actually sent me into Atrial Fibillation 3 times over the past 4 years. I've also had aches/pains, foggyness, depression, sort of CFS type symptoms. My CD57 recently came back at 40.
I'll elaborate more on my story later, but I didn't want to turn this into a monster sized post.
Here are my results, if anyone can key me into what I should do I'd be appreciative. Even my integrative, while seemingly Lyme literate, says it simply can't be definitively determined if I currently have Lyme.
posted
I had the same bands as you on my western blot. But on my other lyme tests, I had 93,41,23 postive, and Ehrlichia.
Band 41 is the band that borrelia need to stay alive. Even if you have one band, you need to see a lyme doc. Lyme is based on a clinical diagnoses. I have learned a lot from reading keebler's post (she is very smart!). You should private message her!
Lyme tests are not completly reliable. False postives are rare (So rare I really doubt anyone really has one) You cannot have something from nothing. Therefore, if you have even ONE band reacting, you might just have lyme. Other things that coenside with band 41 is Syphillis, HIV, and Peridontal disease. (I am sure you have none of those, therefore it's lyme).
Post on the "seeking doctor" for a doc in your area, that is how I found both of mine. I wish you luck. You can do this, i went undiagnosed for 6 months, I have only had lyme for a year and now I have band 23 which means chronic lyme and I am only 20 and trying to attend full time at my university!
Just hurry up and go to a lyme doc Best wishes!
-------------------- Stephanie, University Student.
Ehrlichia [POSITIVE] IGG/IGM AB [H] 1.49 indexLyme AB interp. EIA [A] POSITIVE IGG P93 AB [PRESENT] IGG P41 AB [PRESENT] IGM P41 AB [PRESENT] IGM P23 AB [PRESENT] Lyme IGM WB interp. [A] [PRESENT] Posts: 145 | From Idaho | Registered: Feb 2010
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posted
What is wrong with these Drs? The WB was not designed to be the standard by which Lyme was diagnosed. Like mcg08002 says, it's supposed to be based on a clinical diagnoses. We're going to slam LLMDs who treat sick patients and applaud these idiots who treat the test. I went to an ID just last week that told me the following: I have band 41 because I have basic spirochetes in my mouth, if we tested everyone in the room, they'd all have band 41, Igenex finds everyone positive for Lyme, there are no false negatives on the WB(ever!!), and I don't have Lyme because there is no Lyme in Florida. He calls himself Doctor! Get treatment with a LLMD that treats you because he actually CARES. I wish you the best.
Posts: 246 | From south florida | Registered: Mar 2010
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"Band 39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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I have been reading the link thanks! Not all of it yet, but I intend to. I have 2 kids under 3 years old, so my time is limited! :-) But eye opening so far that link. Thanks!
I do see that some of my bands are very specific to Lyme. It just confuses me more really. My Dr., while not an LLMD is very good. Well researched. They do some very advanced testing. Suggested I get Igenix test done. None the less, upon receiving the "indeterinate" results were reluctant to say "Lyme" or prescribe any drugs for it.
I was however, prescribed Alinia/Membendazole to get rid of some parasites they found. I wonder if that damn tick gave me those as well.
Thanks for all the info!
Drew
Posts: 55 | From NY | Registered: Apr 2010
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
also looks like you have bartonella.
Posts: 3905 | From USA | Registered: May 2007
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Does the 1:80 titer for Bartonella on my test signify anything significant? I spoke to a Dr. Harris at Igenix about it and he told me it was "slightly elevated". I am not really sure how to take that.
So, does that mean, it's not an active infection?
Can that titer be indicative of anything else that LOOKS like Bartonella?
I really don't know what to do with this info.
I guess the bottom line is to find a good LLMD and go from there. I am working on that...
Thanks for all the input...
Posts: 55 | From NY | Registered: Apr 2010
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Best wishes!
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