-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
posted
Dekrator, yes I have a lone list of crazy stuff going on but the worsed seems to be the neurological stuff . Severe headaches ,pressure sensation in top of head , spacey feeling ,sickning feeling like nausea only in my head insted of stomach , eye problems with pain in eyes , bad balance have fallen several times ,had one diagnosis of non epileptic siesures , ringing , roaring in ears , pain in left ear , left ear cartiledge gets dark red at times ,numbness left face & head and left arm & leg , also weakness in arm & leg with poor function , can't concentrate have trouble working on simple task, been on disability over a year now . BILL
-------------------- Wishing us all well ! Posts: 99 | From Southern Illinois | Registered: Feb 2010
| IP: Logged |
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
you are cdc positive IgM and IgG...
no doubt call a llmd. If I can tell your positive and your doc cant, there is a problem!
Posts: 3905 | From USA | Registered: May 2007
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
bill,
Just goes to show you how little most Dr's understand Lyme.
Please call a LLMD tomorrow.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Lymetoo, that PCP sounds certifiably insane!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
posted
Bill...I agree...Find a LLMD NOW! I have the left side stuff too. After being soooo sick & being put through so many tests I decided I had to be real specific with my primary doctor. (As you know it's hard to pin point something to tell them that they will understand) When I went in once AGAIN to ask for help finding what was causing my pain, he started reminding me about my fibro & other back problems. I said "Just STOP & listen..If you cut me into my left side is sick...my right side isn't." I could see it in his face...like a light bulb went off..he said I think we need to do a tick panel. That saved my life!!
Posts: 75 | From Missouri | Registered: Apr 2009
| IP: Logged |
posted
Hi tu tu , I dont think he's nuts he just does not have any idea what he's looking at . I'll bet I'm the only case of lyme he has ever faced and seen a properly constructed lab test for it. I'm going to contact Dr. C's office tomorrow . Thanks again for all your information BILL
-------------------- Wishing us all well ! Posts: 99 | From Southern Illinois | Registered: Feb 2010
| IP: Logged |
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Liacs , I find that very iteresting , I find very few who have mentioned onesided problems . My brain is not just onesided though , it is all over . sometimes I get so scrambled up all I can do is lay down and curl up and wait for it to go away or at least let up enough I can function . BILL
-------------------- Wishing us all well ! Posts: 99 | From Southern Illinois | Registered: Feb 2010
| IP: Logged |
posted
Bill...My brain stuff isn't one sided either...my WHOLE brain is lame... just the really painful parts of my body is one sided. Sometimes both legs will hurt but it is still worse in the left leg.
Posts: 75 | From Missouri | Registered: Apr 2009
| IP: Logged |
posted
Hi All , I have an appointment with Dr. C June 25th . I got some advice to start building up my imune system now so I'm going to start today. BILL
-------------------- Wishing us all well ! Posts: 99 | From Southern Illinois | Registered: Feb 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic