Topic: Feedback on Dr. K in CT vs Dr. W in CT for IVIG evaluation
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I would like feedback and info about 2 neurolgists, Dr. K in CT vs Dr. W in CT for IVIG evaluation. I know Dr. K is very well known, and supposed to be very good. He's also very expensive, and doesn't take insurance. (I also know he spends a @ 2 hours with patients in each visit)!!
Dr. W takes some insurance, but not mine---expensive, also.
I also hear that Dr. W is a pain management dr, as well as a neuro---and I need pain management, assuming I can tolerate it.
I want as much feedback and info as possible, as it is a big decision for me financially and health-wise. I have an appt with Dr. K for next Mon., but am wondering if Dr. W is better (or they are equivelent).
It's fine if you just have feedback about one of them. And, of course, PM me, if need be. Thank you!
[ 05-05-2010, 04:42 PM: Message edited by: Rumigirl ]
Posts: 3771 | From around | Registered: Mar 2008
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Rumigirl
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Up for replies.
If I'm going to cancel with Dr. K (VERY expensive!), I should do so by tomorrow, Thursday. And it took me 10 weeks to get this appt!
[ 05-05-2010, 04:46 PM: Message edited by: Rumigirl ]
Posts: 3771 | From around | Registered: Mar 2008
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posted
I saw Dr K in CT 4yrs ago. It cost me 2,000 for office visit alone. He also found the DR4 gene in me. Put me on plaq/zithro/IVIG He is very big on IVIG for neuro Lyme. But he doesn't think mercury/lead toxicity are a problem. He said it was "too hokey-pokey for me" So he is very conventional in thinking, I think
After 6mo, he didn't know what else do to for me. He used MDL for co-infection testing instead of Igenex '-(
I think IVIG helps but isn't the end all-be all
Posts: 315 | From USA | Registered: May 2005
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I saw him twice last year. He's very big on abx and IVIG. Not too interested in building up ruined body systems, tho- just killing off the pathogens. Not big on supplements, etc. I left him for a more holistic approach.
-------------------- When we are no longer able to change a situation---we are challenged to change ourselves. (Viktor Frankl- Holocaust survivor) Posts: 460 | From Maine | Registered: Apr 2009
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Rumigirl
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posted
thejoje, you mean Dr. K, right?
Littlesprout, that is very helpful. Thank you!
up for more replies.
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Rumigirl
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up
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Tracy9
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Member # 7521
posted
Well Dr W is into a lot more stuff, he tests heavy metals, neurotoxins, gives you supplements, he does so much bloodwork it's crazy. He is very much into checkig your adrenals and thyroid, and manages that as well as your pain.
$2,000 an appt is shocking. Dr W is the most expensive LLD I know and he charges $950 for the first visit and like $350 after that. It is easy to get quick appts with him once you are an established pt, and he treats Lyme and all co's.
He also tests for all viruses and everything like that. He does annual SPECT scans and MRIs. Lots of tests. Will do IV antibiotics too. Works with you, takes your opinions into consideration. LIkes to be in contact with your PCP as well.
Currently he is treating my Lyme, Small Fiber neuropathy I would have NEVER known I had if it weren't for him, Babesia, Bartonella, treated my Erlichiosis, is treating my thyroid and adrenals, Vit D deficiency, and sending me for tilt table test, SPECT, MRI, Sleep study, test for neurotoxins, GI doctor, and I'm sure there's more I"m forgetting. CD 57 too.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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METALLlC BLUE
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Member # 6628
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My reports on Dr. W are awesome. Reports on Dr. K are mixed.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Thank you, Tracy, MB, and others. This helped me to make a difficult decision into a no-brainer! What would we do without this help from each other?! I am so grateful.
Posts: 3771 | From around | Registered: Mar 2008
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I used to go to Dr W until my insurance changed. Some of the others are right on.Takes alot of time to talk about symptoms, allows you to give your opinion on the direction of your therapy,explores some alternative therapy and is genuinly interested if you have new insight that he has never heard of.
He seems to keep up with the latest info. He really gave me the impression that he wanted to help make you feel better.
I was there when the mistery nurse was working for him and glad to hear he has worked that out.
He is a little quirky but endearing.
Never been to Dr K.
Posts: 137 | From wethersfield ct | Registered: Mar 2006
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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ArtistDi
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Tracy9, Can you share with me the name of the gastro that was suggested? I live in MA. Thank you.
Artistdi
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I saw DR Klipstein in Vernon, CT for gatro. He is somewhat Lyme Literate and did a colonoscopy and endoscopy on me.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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