bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
How many of you have Ear / Eye symptoms as your primary symptoms?
That appears to be the case for me. As some of you may know, I was originally diagnosed with Labyrinthitis by my ENT. Turns out I am Lyme positive and have "abnormal" brain spect.
My symptoms are:
Ear: -ringing -fullness -Moments where 1 ear or the other will get quiet for a few minutes -popping / clicking -worse after chewing -dizziness / instability kind of like I"m drunk (NOT VERTIGO)
Eyes: -fishbowl vision (common with Labyrinthitis)..realted to ear symptom -Black floaters -frequent light "patches" in my vision. Not starts..more like "burn in"
For those of you who had this and are in remission, did these go away, or will I be plagued forever?
B
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Every one of the symptoms you mention are common for lyme patients. Every symptom can also be from toxicity and liver / kidney overload.
Be sure to let your LLMD know about your ears and your eyes. check all your meds (also over the counter products) to be sure they are not ototoxic (see the EAR thread below for that link). Even Acetaminophen is hard on the liver and the ears and, therefore also on the eyes.
Be sure your ENT is LL. But most of this should work out as:
1) Lyme (and any other infection) is thoroughly addressed
2) Your liver support is optimum to reduce toxic load; self-care is excellent
3) Nutritional requirements for the eyes are met
-----------------
Be sure you get enough antioxidants as floaters are often debris and indicate you need more in the way of antioxidants.
However, although floaters are often debris, you need to have your eyes check to be sure it's not some tearing of the eye vitreous tissue. That can be very serious. Once your eye doctor checks you out, s/he can tell you how to determine the differences to look for from "normal" wear and tear to when an emergency visit is required.
You can search whole past threads here on "Floaters" - it's a common thread. Also do a Google search and see the eye links below.
You may also need better LIVER SUPPORT as that can also help minimize floaters. While antioxidants do help support the liver, you may need supplements that are much more specific to the liver such as Milk Thistle.
More is explained in all the threads below as to why liver support can help prevent cellular damage throughout the body (partly by keep porphyrins from reaching dangerous levels).
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS
LIVER SUPPORT LINKS also included with explanation of why that is so important to EARS and to vision (as vision is often related to the health of the inner ear).
. . . Porphyria is a rare metabolic disorder that is characterized by the accumulation of photosensitive, toxic intermediates of the heme metabolic pathway in various organs of the body including the skin, eye and neural tissue. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- From Wiki - just a beginning search for "Floaters"
Floaters are deposits of various size, shape, consistency, refractive index, and motility within the eye's vitreous humour, which is normally transparent.[1][2]
They may be of embryonic origin or acquired due to degenerative changes of the vitreous humour or retina.[1] The perception of floaters is known as myodesopsia, or less commonly as myiodeopsia, myiodesopsia, or myodeopsia.[1]
Floaters appear as shadow-like shapes that appear alone or together with several others in one's field of vision.
They may appear as spots, threads, or fragments of cobwebs, which float slowly before the sufferer's eyes.[2]
Since these objects exist within the eye itself, they are not optical illusions but are entoptic phenomena.
One specific type of floater is either called Muscae volitantes (from the Latin, meaning 'flying flies'), or mouches volantes (from the French), and consist of small spots.
These are present in most people's eyes and are attributed to minute remnants of embryonic structures in the vitreous humour.[1] . . . .
- Full article and references at the link above. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
I have not been diagnosed with Lymes yet, my first test came back negative, but all of my symptoms are pointing to having Lymes.
I now have constant ringing in the ears, making it difficult to hear, especially in public places. I have constant dizziness and slight balance issues. It's difficult to read as my eyes sort of shake and have difficulty focusing. Sometimes I can hear my eyes move! In the morning when I wake up, if I move them quickly side to side I hear a high-pitch metalic sound. Lots of floaters, distracting even. Sensitive to bright ligh too.
I have many more symptoms - fog brain, electric shocks, tingling hands, sensations of heat on different parts of my body, heart palpitations, no energy, memory problems - and no doctor has put them all together as a diagnosis of anything. I have been to the emergency room twice thinking I was having a stroke, only to be told I am in perfect health. All they want to do is prescribe anti-depressants and xanax. Those things are terrible, I will never take them again.
I am going to find a LLMD and get more testing. This is driving me crazy.
Posts: 3 | From Southern NJ | Registered: May 2010
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Keebler...thanks as usual.
My ENT is NOT Lyme Literate. I'm in Massachusetts and an experiencing first hand the tug of war between mainstream ENT, GP's, and Neuro's versus Lyme docs.
I am IgM positive for lYme and I know floaters are a symptom.
I had liver tests done in March...all normal. Same with Endocrine.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Glad to hear the basic liver tests are good. Still, liver support is a must. The medicines used to treat lyme are hard on the liver - and lyme, itself, is hard on the liver. Not all liver tests can show all that we need to know. Liver support helps our liver work better at getting out the die-off debris and also offers some protection with the meds required to adequately treat.
Even all the kinds hepatitis can take years to show and, often, only a liver biopsy can give us more detail about specific liver damage. To cover the bases, liver support is a cornerstone of support therapy, even when the basic tests look good. We want to keep it that way.
Same with endocrine tests. They can't show it all. Lyme attacks the HPA axis (hypothalamus, pituitary, adrenal triangle of sorts). Every lyme patient does better with attention to adrenal support with self-care techniques and nutrition.
There is so much about all this that will not show on tests. And, after being sure the infection is being adequately addressed, it often comes down to liver and adrenal support making a huge difference in our daily comfort but also in the ultimate success of treatment.
=============
Why it's nice to have a LL eye doctor, for matters of vitreous tears, that is not necessary. ANY eye doctor can check for that. So, if you don't have a LL, still see your regular eye doctor to be sure that everything looks okay from his/her perspective.
It's just that a good LL eye doctor would be better, all around but, for many eye emergencies regular eye doctors can save vision in emergencies. And, if there are complications, your LLMD can be consulted. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic