13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
posted
Just wait until they are in your eyelids. Talk about annoying.
I actually went to the doctor for it once after it wouldn't stop for a couple weeks (I didn't know what was wrong with me at the time). She told me it was normal and everyone gets those. Ha!
I feel your annoyance. Magnesium can work. But it doesn't work for magnesium resistant twitches. You can learn to ignore them as long as they aren't in your eye or face.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
| IP: Logged |
posted
I've had them in my eyes. Those are the worst.
Posts: 115 | From Central PA | Registered: Jul 2009
| IP: Logged |
WildCondor
Unregistered
posted
Magnesium is essential for this symptom.
Mag Tab SR or Magnesium malate.
I did mag sulfate IV and when I switched to oral meds,it became IM Mag shots.
IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
B12 shots IM helped me a lot as well as Epsom Soaks.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
posted
I've been taking mag tab for months now and the twitches are as bad as ever. No abx has stopped them either. Nothing I've done stops them. Sorry to say.
Posts: 702 | From North Eastern USA | Registered: Dec 2009
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Well I am actually on Topamax for the twitches and it has stopped them completely. If you have them bad enough, you can talk to your doctor about that. They can be so bad they can be considered myoclonus, or myoclonic seizures, which kind of just means bad muscle twitches.
Mine are part of the small fiber neuropathy and I needed more than magnesium to stop them. With the Topamax, I don't twitch at all.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
posted
I've been treating for a year and a half...IV, orals, bottles and bottles of Magnesium, Epsom salt baths...the works. I still have twitching, although not as frequent and not as pronounced. I used to take Diazepam at bedtime to calm my legs down, but I don't need it anymore.
-------------------- IV graduate. As of 1/10, oral Omnicef, Minocyline, Mycobutin, Levaquin, and Flagyl. Lyrica and a bunch of supplements. Posts: 123 | From Atlanta | Registered: Mar 2009
| IP: Logged |
posted
Everyone always says Magnesium. Never worked for me either. I don't think it's a sign of Magnesium deficiency. I think it's a very clever bug.
Posts: 770 | From USA | Registered: Jul 2006
| IP: Logged |
posted
I actually take Magnesium and topamax. Neither one has helped. A lot of mine are deep down muscles so you don't see them move but you feel them almost down to the bone. They are different from the one's I've had all my life from the Erb's Palsy.
Posts: 115 | From Central PA | Registered: Jul 2009
| IP: Logged |
emla999/Lyme
Frequent Contributor (1K+ posts)
Member # 12606
posted
Magnesium seems to help some people with their muscle twitches but it didn't help me with the twitching. I have taken magnesium via IV's, IM's, oral and transdermal. And it just didn't help me with the twitching..... not even a little bit.
The ONLY thing that has helped me at all with the muscle twitching is antibiotics.
Posts: 1223 | From U.S.A | Registered: Jul 2007
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Treating bart stopped mine. It used to get bad cramps too.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
I have been treating for 3+ years now off and on and the one thing that has remained a constant has been the twitching. I have tried the Mag supplements, b12 and epsom salt baths, nothing has worked.
I think at this point, the damage to my nervous system/brain is what is causing this and it cannot be rectified. If you read about a condition called Benign Fasciculation Syndrome, it is usually begins after a bacterial or viral illness. I think that is what is the case with me. So whether or not it is the Lyme itself or BFS that is causing this, I think it is here to stay.
Posts: 157 | From connecticut | Registered: Feb 2007
| IP: Logged |
Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
For what it's worth, I have found something that's finally helped my muscle twitches. I treated with IV/Oral abx for about three years for all coinfections and then stopped. The twitching never stopped. I also did IV and IM mag. I think the mag helps, but for some as we've seen from the prior posts, it's just not enough.
What's worked the best for me? Modulating my immune system using whey protein and higher doses of Vitamin D...I've posted about this in other threads....I want to be clear about two things: 1) when you first start taking especially the Vitamin D, it can INCREASE the twitching for awhile and 2) you may initially feel worse when starting whey protein or higher doses of Vitamin D. In fact, I've gone through periods of "herxing"....
Now after just a few months of supplementing, I still have some twitching but it is MUCH, MUCH BETTER. I no longer look down to see my knees/arms/elbows twitch. Ugh, it was so awful....
I'm not recommending this for everyone as I know others choose to stay on abx long-term; I'm just saying for me, personally, I've chosen after stopping abx to try to "modulate" my immune system....I just felt like my overactive/dysregulated immune system was causing severe inflammation and muscle/nerve disruption due to resorption of bone/muscle....
No idea if my theory is right but I'm feeling better than I have in a long time....Not cured, just better functionally....
Hope this helps someone....
Posts: 1155 | From Southeast | Registered: Oct 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/