Topic: Question on Brain Spect's pre / post treatment
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I see that Dr. B mentions that brain spect scans will be abnormal in Lyme patients.
I had one a month ago..guess what. Abnormal.
Has anyone had a spect scan? If you are cured / recovered / in remission did it go back to being "normal" afterwards?
Just worried about my noggin'
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I had one in 2005 and 2006. Abnormal - global heterogeneous hypoperfusion I was on iv for a year and it showed the same. I was ok for about 8 mos off antibiotics, I just took mri, showed lesions. symptoms back with a vengeance and not subsiding though on IV.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
onbam
Unregistered
posted
I had brain fog that went away to a great extent with treatment. On good days (most days, now), I'm 100% now, cognitively, and I continue to improve.
posted
If you had to choose a test due to money, no insurance would you choose MRI, SPECT or something else for brain damage symptoms?
Posts: 50 | From Charleston, SC | Registered: Jan 2009
| IP: Logged |
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Onbam - I have to ask. which medicine helped with "brain fog." It's my worst symptom. I'm hoping that it will one day subside.
Posts: 2232 | From USA | Registered: Aug 2009
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I prefer spects...but that is just me (I'm not a doctor.) My MRI was normal more or less. They are a static picture. A spect looks at how your brain functions (and it is less expensive.) My spect was abnormal.
Burrascano mentions spects but not MRI. Although I know people who have lesions on their MRI with Lyme. I didn't, luckily.
Just my opinion
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
| IP: Logged |
posted
I have to have MRI's annually for 8 - 10 years (Just had my 8th one done a few months ago), then every few years, then 10 years, etc. supposedly for the rest of my life.
My 2004, 2005, and 2006 MRI's showed the white matter stuff LLMDs talk about that is associated with Lyme.
On the three MRI reports, it did list Lyme as one of the reasons for the white matter lesions.
As of my 8th MRI this year, the white matter lesions are still present. I will be interested to see if they are gone after treatment.
Posts: 217 | From Earth | Registered: Feb 2010
| IP: Logged |
onbam
Unregistered
posted
Mepron/Zith, despite the fact that I never tested positive for any type of Babesia. I also used whatever dining "teaspoons" were available to measure it out, so I may have in fact been taking double doses, which are used to treat Toxoplasmosis (something I've never been tested for).
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic