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» LymeNet Flash » Questions and Discussion » Medical Questions » MY FULL STORY SINCE 2006

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Author Topic: MY FULL STORY SINCE 2006
Marline
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Member # 13075

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In May of 06 I started to get real weak and got a headache that was never ending. My symptoms at this time were, tingling, pins and needles, weakness, fatigue, neck pain and some more things. This lasted for a full 3 months, at this time I got a brain and c- spine mri with no contrast and it was normal. My neuro said no chance of ms. My mri of spine showed 2 bulging disks, everyone was quick to blame all my symptoms on the disks but neuro said that the disks would not cause all these symptoms, he blamed it on anxiety.

My symptoms were gone in 3 months and soon after I had pain my eyes, sharp, dull pain behind my eye and it felt very scratchy for a good month.
I went to the opthahmalogist and they said my eyes were just fine.

Soon after the eye pain was gone. I had no symptoms until Feb 07, at this time I knew that something was definitely wrong with me. My symptoms were, tingling, pins and needles, twitching, insomnia, headaches, face pain, itching, muscle pain, muscle weakness, my eye would at times see double, major neck and shoulder pain, pain in my mid back, burning feet, hot and cold sensations, some nights right when I was about to sleep I would get a whole body jerk, again I went to the neuro and did a mri of brain with no contrast and it was normal, my neuro again said no ms. Soon my symptoms were gone. All blood work is normal too. Lyme with the infectious disease doc was negative.

I then decided to see a llmd, which I saw Dr. Harris, here were my test results

igm- 39+ 41 IND
igg- 41+ 66+ 39 IND

He put me on 10 days amoxy and made me retest again only for IGM;

Results were:

IGM

30+
41+
39 IND

Also did a 30/31 kda test which was negative. He said I had borderline lyme, so all I ever did was 10 days of amoxy, I was 3 months pregnant with baby #1. My symptoms soon all went away, this is in 2007. I had another baby a year later, no symptoms what so ever. Dr. Harris also told me that after I give birth if I did have lyme for sure that all my symptoms would come back in full effect. With my 2 kids this did not happen. So I put it away that I don't have lyme. Since the Dr. was also never 100% telling me that I do. I am now pregnant with baby #3 and I think my symptoms are starting, 3 years later. I have had a headache for 4 days straight now, it starts at my temples and goes to the back of the head, it's been excruciating, have not had this since 2007, last night I couldn't sleep, I was itching all over and my left leg was hurting.

I am just wondering what is going on with me, did I have lyme, do my symptoms sound like ms, is it just a pregnancy headache, or is it just anxiety?

Posts: 59 | From california | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Marline
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Member # 13075

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Also when would I see signs/symptoms of lyme in my kids if they had it? Should I call Dr. Harris again?
Posts: 59 | From california | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Marline
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Member # 13075

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No, not taking anything at this point, not even sure if I even have lyme.
Posts: 59 | From california | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Haley
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I've never heard of borderline Lyme.

I would call Dr. H and tell him what is going on. He may advise to go on abx as a precaution for the baby.

I know it's not easy to get in touch with him. Send a fax and leave a phone message.

Posts: 2232 | From USA | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Marline
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Ok I will, but I just want to add, my 2 kids that are 2 years old and 9 months, how would I know it they had lyme besides of course testing them. Are there any signs/symptoms I would see in them this early on?
Posts: 59 | From california | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
bcb1200
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Member # 25745

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Marline...there are a few sites out there that list symptoms for kids. They are different than adults. Mainly tiredness, behavioural issues, etc. You probably won't notice in the 9 month old, but could in the 2 year old. Check out www.ilads.org and read Burrascano's treatment plan in the treatment section. Also, you can google the Lyme Pa "Green Book" which has good info.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 95% +/- most days.

Posts: 3139 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
   

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