Topic: OFF ABX FOR 2 MONTHS, ANYONE WITH BART GET THIS??
kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Hey to all,
Well haven't been on here for a LONG LONG TIME! Been very sick, almost crippling sick...
To all that know/remember me, nothing has changed in my Lyme life for the better.
I will be 25 in October, diagnosed for 3 years, and feel like I am 125.
I just had a question for sufferers with Bart.
I have been on and off both IV and oral ABX for 3 years. BEEN ON THEM ALL!!!
Everytime I stop I do alright for a couple months then WHAM! The Bart is the first to pop up then the other Co's/Lyme.
Now I know Co's usually will pop up before the Lyme on the relapse, but I am getting so tired of this.
My body feels so clean and toxin free when off the ABX, but at the same time I feel worse.
I have both strains of Bart.
This past week I have been getting my Bart rashes back and now all of a sudden I am getting stabbing rib pains... Anyone get this with Bart/Babs/Myco?
I am kind of stuck... When on the Abx didn't feel/get any better, but kinda made the symtoms more mild and tolerable.
Don't know what to do??
Thanks
Roy
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Kreynolds,
I was on abx including 6 mos of IV rocephin for 4 yrs. I kept relapsing everytime I went off of them. It wasn't until I started to use antiparasitics and go after the worms and parasites did I make any real progress.
Dr. K. treats ALL of his patients first for this before he treats the borrelia or other co-infections. It's something you might want to consider,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
glm1111,
Thanks for reply. Sounds very smart to treat the worms and parasites prior to treating the Lyme and Co's.
Very helpful. Thank you
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Rife. I try very hard not to push this on people but when you do the same thing day in and day out and keep getting the same results, sometimes you have to go outside the box and re-evaluate.
Rife machines work. If you're as sick as you say you are then what do you really have to lose??
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
lymielauren28,
Thanks for your reply. Been thinking about using a Rife machine.
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
| IP: Logged |
blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I agree about treating parasites. I took biltricide and ivermectin and had a lot of improvement.
As for bart, I did IM gentamicin and doxy and also IV rifampin and IV levaquin (not all 4 together). I think I beat bart but I really feel like each treatment did part of the job.
Posts: 1104 | From N.California | Registered: Jan 2008
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