I have been on IV therapy for two years and was recently taken off the meds for six weeks, which lead to a plethora of symptoms, most of which have been neurological.
Currently, I have vertigo and feel like I'm not entirely in my body, so excuse any typos.
My doctor suggested that I do a glutathione push alongside magnesium in addition to the abx. Money is an issue because we have been paying for meds for a year and a half and IV Rifampin is very expensive.
I've read many beneficial benefits to glutathione, but some people who have actually used it on other sites claim that they have felt no better or feel even worse on the supplement.
Has anyone on the board made improvements on it?
Thank you so much for taking the time.
-------------------- Allanah Posts: 36 | From New York, NY | Registered: Apr 2008
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posted
I did IV Glut a couple of times a week for about 2 months. I felt it gave me a few days of feeling better and overall feel it was well worth it.
It was only about $9 per does at Inserv america via mail order. Just got a script from my Doc.
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
posted
Raising glutathion is important when you are weak. I still use a combo from an a cfs doc that use to monitor glut. levels. She gave you an option of taking glutathion shots or take drink Nitroplex protien powder along with NAC. It has always pulled me out of a slump. Many protien powders were hard for my digestive system to break down and get into my system but Ves Pro nitroplex has branch chain amino acids as well as other things that worked for me. A little more expensive but worth it. I took nitro plex and NAC on an empty stomach. The cheapest I found it was on onlineworld. I always keep it handy when I feel I have overdone it and feel a slump coming on.
Posts: 805 | From Utopia | Registered: Feb 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- 3/4 of the way down page one, there are lots of LIVER LINKS explaining the importance of glutathione. There are many ways to help the liver. I hear that an IV glutathione drip can be one of the best. A drip is slower than a push and easier on the body. That's not so much discussed here though as much as basic on-going liver support and other things to help with vertigo issues:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If you get Whey --- this explains why not to put whey in a blender - and also why not to combine it with most foods. ---------------
ImmunePro RX� contains Lactoferrin, Immunoglobulins (IgGs), Bovine Serum Albumin, Active Peptides and Growth Factors to promote optimal immune function and detoxification. . . .
* What is the best way to store ImmunePro RX�?
60 degrees Fahrenheit (or cooler) in a dry location; refrigeration is acceptable.
* What is the best solution to mix it in?
Purified water is the best liquid to thoroughly mix ImmuneProRx�. Use a sealable container to shake it, or a MANUAL eggbeater.
* Do not use an electric blender. The whey proteins are easily denatured through heat and pH change.
Mixing the whey protein with any other types of food can induce a pH change and slow the transit time in the stomach through its digestive response to the solid food.
Liquids that are not neutral in their pH can also denature the proteins, for example: most fruit juices, coffee, and tea. By following the above guide, the uptake of the undenatured protein fractions in the upper small intestine is optimized.
A small amount of Stevia is an acceptable sweetener, if desired, for palatability.
. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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I would do the whey protein, but I'm having major GI issues and wonder if it's going to exacerbate them. It's looking like we're going to spend the extra money, at least for now.
I didn't know that Inserv america did glutothione. It's the company that I'm using for my abx. $108 a month is a drop in the bucket compared the the meds.
After two years of IV therapy I am feeling discouraged and wondering if I'm ever going to get better, so I want to do all I can: supplements, weight-training, no carb-diet, cleanses, including regular detox baths and essential lemon oil in water.
The coffee enemas I've heard great things about. I asked my LLMD and he seemed on the fence about them, so I haven't done one yet, but I want to keep my body as clean as possible when back on the meds, so I may be trying them soon, making sure to give my body time to rest and recover, of course.
Thanks Keebler for all the good advice and the link. My symptoms are so troublesome right now. I had vertigo a long time ago before I began abx and then again, but only slight quick moments.
Tinnitus is not constant, but I've had it and it usually goes away with pressure from my hands.
This level of dizziness, disorientation, and hyperacusis I've never had until now, accompanied at times with headaches and inner-eye pain.
It defies reason that I'm getting worse after two years of treatment, but despite my lightened Bartonella lines, I feel like a pile of dung these days. I know I had a lot of CNS issues to start and maybe this is all part of the process.
I know the glutothione is definitely a yes. I'll let you know if I feel a difference. Ideally, I'm going to try to get in from Inserve.
Thanks again.
-------------------- Allanah Posts: 36 | From New York, NY | Registered: Apr 2008
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
I have benefited from NAC, whether it's to help make glutathione or for other reasons, who knows.
One thing I have heard about glutathione is that it will be destroyed in the digestive process if taken orally. So, in evaluating for IV use, I would suggest discarding any negative feedback from those who took it orally, they were very likely not getting it in their system.
Michael
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
Been taking Gold Standard Natural whey x2 a day with NAC 600mg once a day along with working out when I feel like it. Glutathione, protein, NAC or whatever, something is working and whey has moved to the very front of the line on the list of "must have" supplements as opposed to the hundreds of dollars on the lame ones that never did anything.
Not a holy grail but incredibly important for busted up lyme bodies.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
IV glut pushes was one of the first things my doctor did. Initially weekly, then bi-weekly then monthly for over one year. Today, I do coffee enemas, NAC, glutathione suppositories and I eat foods that help produce glut naturally like asparagus.
Detoxing is so important for us, but sometimes it will make you feel better and sometimes it will make you feel worse. Still, needs to be done.
A gene test revealed I do a very poor job of detoxing on my own, so I will be taking extra measures the rest of my life.
As far as illness goes, I was back up and running within 1 yr of this approach to treatment.
I am in my fifth year of treatment but I lead a normal life. My lyme advanced into a severe form of rheumatoid arthritis so leading a normal life in my 5th year is pretty much miraculous.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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I don't think I realized how important detoxing was until recently, but I am making sure that I do so regularly beginning with the enemas and the glutothione.
I'm glad to hear that you are so improved, even though you're not done with treatment. It gives me hope.
-------------------- Allanah Posts: 36 | From New York, NY | Registered: Apr 2008
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