posted
yes i get this. not all the time, some days worse than others. I think the jumping is the nerves surrounding the eyes twitching. Find it worse if looking through a venetian blind. Do you have ringing ears as well? mine is always at its worse when my ears are bad.
Posts: 65 | From Sussex UK | Registered: Apr 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- wealdsteve - the ringing is called tinnitus. See the last thread below. -----------
About "Jumpy Vision"
I have that and so do many lyme patients. It's called NYSTAGMUS and is usually a result of the toxins affecting the ear system. It's likely due to a disruption in your inner ear &/or middle ear.
Here's what helps (the short list):
* TREAT INFECTION(S)
* MAGNESIUM supplementation
* FISH OIL (OmegaBrite is a good one)
* GINGER CAPSULES
* and good LIVER SUPPORT & Good ANTIOXIDANTS
* "YOGA FOR YOUR EYES" (on DVD, book) or Vestibular Rehab
- Nystagmus can get better in most cases. Any stress on the liver can make it worse. Alcohol can make nystagmus worse (however, lyme patients are to avoid all alcohol).
Depending upon the severity, you might also consider examination regarding SCD (superior canal dehiscence) -- that creates a different kind of nystagmus. Hyperacusis, feeling ill from vibration, vertigo, etc. are common with lyme but these are intensified for those with SCD. Even the combing of one's hair can be excruciatingly loud.
With SCD, sound will make the eyes move. But special goggles are used for examination. Often, such movement can't be seen in a mirror or by others, but it can be seen from the inside-out, so to speak. Sometimes, the movement can be seen without the special goggles.
Not always, but in extreme cases of SCD, the movements of one's eyes creates a loud sound inside their ears.
For all things about how the ears are affected by lyme -- see the Tinnitus thread below - as well as what can help or what kind of doctors to see beyond your LLMD - if your LLMD suggests that.
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- James,
Since you are fairly new here you may not have yet seen the self-care guidelines. These will help in all regards. You can discuss details with your LLMD. -------------------------------
** Nutritional Supplements in Disseminated Lyme Disease **
J.J. Burrascano, Jr., MD (2008) - Four pages
======================
It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here.
Ive looked into that NYSTAGMUS and my eyes dont move at all. Just my field of vision. I do have contstanly dialating pupils though.
Posts: 32 | From Minnesota | Registered: Feb 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Superior Canal Dehiscence-
SCD should be ruled out for anyone with "jumpy vision". Of course there are other causes of nystagmus but if SCD is present, it's really important to know that otherwise one will be chasing all sorts of other explanations.
The rule out (or to confirm) SCD, nystagmus needs to be checked by a neurotologist through special goggles. Especially, if for SCD, a very special set of goggles has to be used, not even like those regularly used for nystagmus. Only rarely, in extreme circumstances can it be detected by the naked eye.
FRENZEL goggles must be used in a certain way.
The Goggle test has to be done with pressure like blowing the nose - or with the patient making sound at the same time the eyes are seen under magnification.
See goggles at 5:35 in this video. Not everyone with SCD has the exact same set of symptoms to the exact degree as this guy:
Only a few doctors (even ear specialists) around the country are aware of this condition and only a few do the tests correctly.
In most cities, there is not even the exact equipment needed for the tests, even most CT scanners can't do the test with the exact specifications.
After seven + years of research, the first clinical diagnosis of SCD was in 1995. There are many doctors not current with the symptoms, research or clinical tests for SCD. ----------
Superior Canal Dehiscence Syndrome J. Walter Kutz, M.D. November 6, 2003
Excerpts:
In 1998 Dr. Minor described superior canal dehiscence syndrome . . . Kerry and others in 2000 looked at 1000 temporal bones . . . .
On physical examination, spontaneous nystagmus is generally not appreciated. It is important to use Frenzel goggles because a subtle nystagmus is common. In addition, pneumatic otoscopy and Valsalva maneuvers may produce the nystagmus.
Weber is usually to the affected side and usually with a 256 Hz tuning fork. Often bone conduction is greater than air conduction on Rinne tuning fork test. As I mentioned earlier, patients are often able to hear a tuning fork placed on the extremity. . . .
posted
Fyi, I was able to stop all Lyme eye symptoms by drinking mangosteen juice, an anti-inflammatory antioxidant juice. There are lots of brands. I drink the Ultra one with 70 minerals added.
If you want to try some mangosteen juice, go slowly and drink some water too, as it can be powerful. We are all different in terms of what results we get.
Posts: 13171 | From San Francisco | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Robin's experience is not unique. Mangosteen has helped many with eye problems. Their are also other antioxidants that help the eyes, ears and liver all at the same time so it can cover a lot of the underlying irritations from toxin overload. -------
Vision: Natural Ways to Maintain Eye Health - By Jim English
Excerpt:
. . . A number of nutrients have been extensively studied for their ability to treat a wide variety of vision-related conditions by preventing the damage caused by free radical activity and by enhancing the delivery of blood and oxygen to the retina to help repair tissues . . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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