lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
My doc thinks I'm doing great. My symptoms are minimal, says I have chronic ehrlichia, chronic lyme and chronic bartonella. My mind is a mess. She wants to put me on birth control pills Yaz, to regulate my hormones and my psych raised my lamictal. I feel like I lost myself and am hoping this combination will help heal my nervous system. My wbc count is 5.1,its never been that high, so she thinks she got all on the run. I can't stop shaking and thinking ocd thoughts, even though on meds. Can this happen though the lyme seems dormant? I think I damaged my nervous system, I'm afraid its not going to mend the way I was before this happened. Thanks for all your replies for everything.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
That's great!! One concern I have... have you Googled "Yaz"?
I hope the lamictal gets you back on track!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I know there's the possibility of blood clots, which I was always scared of, but she thinks my hormones are a mess and it would help get me back.Hopefully
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
Sounds like your doctors are behind you... way to go!
I agree with lymetoo though, if your hormones are really out of control birth control is probably a good idea, but I may ask for something other than yaz.
Posts: 286 | From St. Louis | Registered: Dec 2009
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posted
doesn't sound like you and your LLMD are on the same page. Sounds like you are still having a lot of symptoms that need to be addressed. Psych meds and birth control may not be enough.
How are you feeling after the appt.
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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posted
bio-identical hormones are made by a compounding pharmacy with natural ingredients. The FDA is trying to stop those too.
Have been on them for years, first trying the pharmaceuticals, which just did not work for me.
Posts: 847 | From upstateNY | Registered: Dec 2007
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Regarding your CNS stuff- are you loading on Magnesium and doing mehtyl B-12 shots?
For me, the methyl B-12 has greatly helped my emotional well-being. If I don't take it for a while, I know it (as does every else around me! ;-)
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I have depersonalization and just started b-12 shots
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
I was on yaz for years without any ill effects and a gf of mine has really been helped by it for agitation prior to periods. There's stuff all over the Internet about it being harmful in some ways, but I'm always very suspicious of the "have you been harmed by ____" ads, so I've not looked into it too much.
I did bio-identical for a while, too, with little benefit.
And, psyche meds.
I did all of these prior to Lyme treatment and saw no real benefit by themselves.
Now, in lyme treatment and psyche med, happy with the combo of psyche meds as I think it really helps me deal with the highs and lows and address some of my neuro issues.
Does LLMD what to keep you on lyme treatment also or is she suggesting the other meds in lieu of lyme treatment? May be worth trying to use them all together. If I had those symptoms, still, I'd be leery of going off lyme treatment, BUT, would be totally willing to add psych meds.
BTW, my LLMD treats until symptoms are gone (or tries to, depending on how patient tolerates treatment), whether it's "chronic" or not.
Posts: 252 | From New York | Registered: Apr 2010
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