posted
Does Clindamycin work on Lyme? I can't find anything on it for Lyme and am nervous about starting this drug as I have read it has many bad side effects.
I was just on Flagyl for a couple of months but felt horrible the whole time. So LLMD switched me to Clindamycin today.
I am also on Bactrim DS. I have Lyme, Babs (treated and may be under control), Bart and Mycoplasma.
Anyone have anything good to say about Clindamycin? Dose will be 1200mg/day but not right away. Thanks for any advice.
Posts: 472 | From New Jersey | Registered: Dec 2007
| IP: Logged |
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Clindamycin can be used for Lyme. I took it for several weeks while my doctor tried to get authorization for IV Rocephin. I felt better on it too.
Posts: 5237 | From here | Registered: Nov 2007
| IP: Logged |
posted
I heard that it helps a lot of people.
Posts: 107 | From new jersey | Registered: Dec 2009
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I took it orally for 10 days back in '08 for elevated ASO titers. I felt a lot better on it. An ID doc Rxed it. Unfortunately, he never did again.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
posted
I take it with flagyl but pulse them. So I only take it 2 days a week and flagyl the other days.
I feel like crap all the time on this combo...so I don't know which one or both that cause me to feel bad?
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
| IP: Logged |
posted
Thanks all for replying - makes me feel braver. I am going to start it but am going to wait until Sat. so I get a tiny break here.
Amy, Do you feel nauseous and like a rag ALL the time? I had that the whole time on Flagyl. I know it works because things were popping out all over - my neck (hadn't hurt in months, my legs and ankles etc). Just don't know how to get through it for a long time though.
My doctor does not believe in pulsing Flagyl. I don't understand why when so many people are doing that. I did ask. He just said doesn't work that way.
Posts: 472 | From New Jersey | Registered: Dec 2007
| IP: Logged |
WildCondor
Unregistered
posted
I would not use Clindamycin for Lyme or babesia. it is outdated and better protocols are available. Most doctors do not use this any longer for the reason that Clindamycin is the # 1 offender for contracting c.difficile (which can kill you) and is common when treating with antibiotics. Make extremely sure if you are actually going to take Clindamycin that you are on Florastor and you educate yourself on c.diff.
IP: Logged |
posted
WildCondor, I think you may be right because my pharmacy stocks everything but didn't have enough Clindamycin to fill the rx completely.
I had c. diff once and it was horrible! I guess I am going to call tomorrow and ask for something different.
I am taking Florastor by the way. Thanks!!
Posts: 472 | From New Jersey | Registered: Dec 2007
| IP: Logged |
Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
I am currently taking Clindamycin for Babs and will be adding Larium soon. I have tried the other protocols for Babs, and although they worked initially it always came back.
So far, this is one of the best meds I have taken.
I recommend trying it, but make sure you are doing everything possible to control yeast.
Posts: 4682 | Registered: Oct 2000
| IP: Logged |
Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Cockapoo1996, I tried to send you a PM but your mailbox is full.
Posts: 4682 | Registered: Oct 2000
| IP: Logged |
posted
My husband had several months of IV Clindamycin and qualaquin and did fine on it.
Posts: 984 | From San Diego | Registered: Nov 2006
| IP: Logged |
posted
We were definitely going after the Babs but I believe it also has activity against Lyme too. The clindamycin/qualaquin cocktail was at the tailend of a very intensive 18 months of IV antibiotic combos for Lyme and Babs after oral treatment had failed.
He has been been off all antibiotics for about six months now and is holding his own.
Posts: 984 | From San Diego | Registered: Nov 2006
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Great news Parisa.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
posted
Clindamycin is the only oral med I can take for Lyme and it works beautifully for me. After a week of taking it initially, I had no more fibromyalgia pain and my joint swelling decreased greatly. Still works that way. If I don't take it, the symptoms return.
I started with 150mg every six hours, then cut back to 150mg when I started herxing after a month.
It's been four years now, no c diff, maybe I'm lucky about that, I don't know.
I have a question - I got Lymed in 1981 in CA, presenting with fibromyalgia 18 months later. I sometimes wonder whether different meds work for different strains. I have Lyme, no co's, except possibly mycoplasma, based on symptom matching.
Anyone else with this location/timing/symptom profile?
Posts: 13171 | From San Francisco | Registered: May 2006
| IP: Logged |
posted
Robin, well our year is close - 1980 for me. But location is clear across the country in Orange County, New York.
I am still delaying starting because I am enjoying these wonderful past few days on just Bactrim. I will likely start mid week and be back to let you know.
Thanks for the encouragement.
Posts: 472 | From New Jersey | Registered: Dec 2007
| IP: Logged |
posted
I have been on Clindamycin IV's for a week, every three weeks for eight months. It's the best medication I've taken. Unfortunately, I am not able to take it orally, but you will know within the first few days if you have any gut reactions.
Posts: 964 | From san diego | Registered: Oct 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/