LymeNet Flash: Can anyone help???

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Can anyone help???

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Topic: Can anyone help???

lgirl29
Member
Member # 25158

posted

I just got tested again for lyme. My doctor did a test called a PCR which test for lyme DNA. The test came back negative. Does this mean I really dont have lyme anymore or just a false negative?? Any feedback would be great!!

Posts: 42 | From Southern NJ | Registered: Mar 2010 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

NO it does not mean you don't have Lyme. That is one BIG problem with that test! If it came back positive, there would be NO disputing it...but when it comes back negative... you could still have Lyme.

You need a Western Blot, preferably thru Igenex Lab.

www.igenex.com (test 188 and 189)

Do you have an LLMD?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

posted

Lyme Disease is a "clinical" diagnosis! The test are inaccurate and are only used to back up the clinical diagnosis. PCR is especially unreliable.

Posts: 4035 | From Mississippi | Registered: Jul 2008 | IP: Logged |

LightAtTheEnd
LymeNet Contributor
Member # 24065

posted

If the test shows evidence of Lyme exposure, and you have symptoms, then you have Lyme.

If the test is negative, it means nothing. There is no test that can rule it out.

--------------------
Don't forget to laugh! And when you're going through hell, keep going!

Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009.

Posts: 756 | From Inside the tunnel | Registered: Jan 2010 | IP: Logged |

lgirl29
Member
Member # 25158

posted

Thats what I thought! This disease is weird and the hardest to diagnose! I dont understand though I got tested the first time it came back neg. Then the second time its positive. Now its neg again! What gives???

Posts: 42 | From Southern NJ | Registered: Mar 2010 | IP: Logged |

WildCondor
Unregistered

posted

quote:
Originally posted by sutherngrl:
Lyme Disease is a "clinical" diagnosis! The test are inaccurate and are only used to back up the clinical diagnosis. PCR is especially unreliable.

Exactly right, testing is terrible.

IP: Logged |

'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189

posted

A "PCR" test, huh?
Remember that little bit of bodily fluid that the nurse took that day?... to send off to the lab?
IT apparently contained no ["detectable" # of] B.B. spirochetes, or pieces thereof.

As far as YOU? A WHOLE other matter.
(If your Lyme disease was originally diagnosed as late-stage, you'll likely AL-ways have a few in ya. The key is to "keep 'em at bay". [Wink]

)

Posts: 1233 | From Dover, NH | Registered: Sep 2008 | IP: Logged |

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