posted
I just talked to someone whose whole family of 7 have ALS. I am smelling something terribly wrong but I can't find any specific articles to raise their awareness on this subject. A quick search here revealed nothing.
Any link to the topic will be greatly appreciated.
Posts: 822 | From midwest | Registered: Apr 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Wow -- what great stories and just what I needed.
I grew up in the suburbs of Philly. I can't tell you HOW MANY of my friends parents (ages 55-65) have a dx of Parkinson/ALS/MS -- it is crazy! And how many friends/family have lyme symptoms and are suffering...
And being a lymie -- I don't believe in these diagnosis'. I know my family and friends think I 'over dx' lyme, but we live in an epidemic area and these people have no family hx of these dx's (parkinson/als/ms).
MAYBE they NOW have parkinson's/als/ms b/c the lyme has gotten so out of control, but I do believe that it was lyme first.
Posts: 379 | From Sydney, Australia | Registered: Nov 2008
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posted
Great page. TF. I was just about to ask for Alzheimer's.
asummers - I know. I was attending an event at my daughter's day care and saw this family of "ALS". It was a heartbreaking site to see, with several of them together. You just kind of know something is wrong the way they all turned out to have ALS. I promised them to forward these articles to them and I will also drop off my UOS DVD for them this evening.
Posts: 822 | From midwest | Registered: Apr 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Please update us on what happens to them. I hope they see an LLMD. That is so tragic. I don't know how anyone could diagnose them all with such a rare disease that is not considered to be contagious. Seems crazy.
I have an acquaintance whose husband died of ALS. I remember when she first said he had it I was so concerned I researched the internet and it kept coming up lyme disease so I told her to have him checked out for it. She said the doctors told her there is no lyme in Montana and he had not been out of the state, so it was impossible for him to have it. Not true of course but I did not have it then.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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massman
Unregistered
posted
I was taught in 2005 that ALS is a stage of Lyme.
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