posted
I'm sorry if this seems redundant to you guys, but here it goes...
I'm a newly diagnosed 23 year-old Lyme patient. Very new to anything concerning the disease and very unsure of what I'm being told. My doctor has told me to expect "bad days", but I'm not so sure what that means. The disease was found by my orthopedic doctor because my knee was swollen so badly that they believed I had torn my meniscus...WRONG. I was put on antibiotics for six weeks, and all seemed fine. My family doctor told me to expect arthritis in my right knee by the time I'm 50 and to be familiar with the pain I now have, because I'll have it forever. That is until last night.
I'm worried: I got a fever of 102 out of nowhere (no one around me has been sick), and all the symptoms of a typical fever/flu hit me. Is this what is meant by bad days?
Posts: 5 | From Southern New Jersey | Registered: Jun 2010
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posted
If your taking Antibiotics the fever/flu like symptoms is a HERX reaction...a die off of parisites! This is a good thing, a sign that everyone here is excited to experience, it tells us that the drugs are working!! If your primary dr is treating you, I would HIGHLY recomend you find a LLMD (Lyme literate DR) as fast as you can. You won't get long term treatment from any DR. who is not specialized in Lyme. And a few weeks of antibiotics will NOT be effective...also, you need to be tested for Co-infections.. You can get a list of LLMD's here= go to the home page and request Dr's for your state and they will send you a list. Hope you feel better ...just take it one day at a time, and I HIGHLY recomend you writting down your symptoms on a calendar each day so you have an overview of your symptoms.
Posts: 501 | From Hudson Ticky Valley, NY | Registered: Aug 2009
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
jensine:
welcome I think you will find the people here have a wealth of experience that can help. some advice you may have to discard. I would recommend you do the following:
Draw up a time line / history with your symptoms, medications and reactions (fever, sweats, sleep agitation, bone pain, joint issues, CNS symptoms, rashes, etc.
How were you diagnosed (clinical) and by what type of MD (unfortunately the type of MD treating you is important.
Was this confirmed by a Western Blot blood test? In either case ask for the band results up front.
If its an infectious disease, rheumotologist, neurologist the odds favor they follow the IDS Guidelines which puts the odds of your recovery as low (treatment is not long enough to eradicate the Lyme or co infections.
You will need to hook up with a Lyme Literate Medical Doctor.
Please read Dr. B's Advanced Topics in Lyme Disease (a bible for treatment of Lyme and its co infections).
Babs is known to be in 65% of Lyme patients. Bart is also a high %.
A start and good luck. I'm sure the more experienced posters will help and go to the state specific page to find a LLMD in NJ.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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posted
Yeah, see...that's the thing. This is my fault for not mentioning it, but I was diagnosed in February and I haven't been on the antibiotics since mid-April. I went to my family doctor for a follow-up because my orthopedic doctor told me I was cured because the swelling of my knee went down...
This is all so new and intimidating!!
Posts: 5 | From Southern New Jersey | Registered: Jun 2010
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