posted
My husband and I are at this very moment having a heated discussion about my treatment.
We are both frustrated that I am only getting worse...steadily since I began treatment over 8 months ago.
In the beginning I tested neg for Babesia. So my LLMD decided to not treat since it was expensive to treat, etc. I appreciated that at the time.
Now I am wondering if the past 8 mos has been waste.
I started Mepron 7 weeks ago today. In the past 3-4 days I have gone downhill with head pressure, fatigue, neck and nerve pain among others.
I am trying to tell my husband that the reason I have not gotten better is prob bc I have had undiagnosed Babs the whole time.
What do you all think?
He asked me if anyone gets better with babs treatment. I said I read it takes the longest to treat.
I said I would ask my lyme friends here for opinions.
I feel like I need to take medical leave, but we can't afford it, and that just adds to the frustration.
I hate this.
If it weren't for my little girls, I don't know if I would be getting out of bed. Thanks for listening.
Posts: 104 | From No. VA | Registered: Aug 2009
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posted
My babs eventually went away. I needed constant Mepron. I went to Germany for an alternative treatment, and it wasn't till after that that the babs was gone.
20 months on Mepron or Malarone with artemisia.
You may be herxing.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
My babesia was undercover for two years. It is just now becoming more obvious so I understand your frustration. I have no idea how long it will take to get rid of it but just thought I would let you know you are not alone. Hopefully you are herxing and feel better soon.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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quote:Originally posted by mmcmann: I started Mepron 7 weeks ago today. In the past 3-4 days I have gone downhill with head pressure, fatigue, neck and nerve pain among others.
I am trying to tell my husband that the reason I have not gotten better is prob bc I have had undiagnosed Babs the whole time.
It's often happens that you cannot really attack Lyme until you've gotten Babs under control. Some people also realize they have bart as well as Babs, but the bart only shows itself once the Babs has been suppressed. So who knows what you have going on right now, because when you have Babs, it's like your body lets everything else run wild while it tries to contain it! You're on the right track, but things are going to get worse before they get better. I'm sorry you haven't been given treatment for it before now.
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