posted
I received a second series of test results from Dr. C's office today.
My first Western Blot which my MD took was only reactive on 41K IGG (Quest)
At that time my MD diagnosed me with Lyme disease(April 30) based on the 41K IGG+ and put me on 200mg Doxy p/day for @ 5 weeks while waiting for an appointment to find and see LLMD.
On my first appointment with the LLMD (Dr. C in early June) he did a Western Blot and ELISA (for the fun of it?)
At the time of the that testing (2nd tests) I had only been off Doxy for 1.5 days.
ELISA (Stony Brook)
Result Ranges: .118 Borderline cut off .151 Reactive cut off Result
My Results: .148 BORDERLINE
Western Blot (Stony Brook) Result Indeterminate Only showed 41K Band positive but this time both 41 K+ IGM and 41K+ IGG Plus nonspecific bands were also detected
Feel disappointed because I think I wanted some verification as to whether or not I have Lyme disease or at least some understanding related to all of my symptoms besides multiple tests for rule outs (although from what I have read there is none)
ps. still continuing Amoxicillin until next visit with LLMD in beginning of July
Any opinions about these results would be most appreciated, best, p.
Posts: 119 | From New York New York | Registered: May 2010
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posted
I was wondering about Stony Brook as well. I know Dr. C uses Igenex. I wonder what he was thinking, lol!
Not sure about your results, sorry!
Melanie79
Posts: 52 | From USA | Registered: Apr 2010
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
I believe that IgeneX shows more Lyme-specific bands than other labs. Do you have a breakdown of the bands they tested?
Posts: 4682 | Registered: Oct 2000
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Are you talking about the Dr. C in Missouri?
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
Dr C NY. No break down of bands shown. Just both 41K IMG & IGG were (+). Plus nonspecific bands were also detected.
Whereas my first Western Blot was only 41 Band-IGG was "reactive" NOT IMG
My insurance would not cover IgeneX and therefore decided to send Western Blot and ELISA to Stony since my 1st Western Blot-MD-used was Quest (MD did not do ELISA).
[ 06-17-2010, 07:39 PM: Message edited by: piper ]
Posts: 119 | From New York New York | Registered: May 2010
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
The WB from Igenex #188 and #189 is only $200 and some insurances will reimburse (spell?) for the tests but not all.
I'm so confused as to why a LLMD would send the tests to a place like this. I would think they just wouldn't test at all then.
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I would say if you have a pos. for B/B/E you probably have Lyme too.
I would not worry so much about the testing and more about the results from treating.
Igenex did request you be off treatment for at least 10 days prior to draw so maybe that effected the results???
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Lymetoo Sorry cannot figure out how to send you a PM. What does [QB] mean in your post above. As well as that explains everything. I removed city. My apologies for that and thank you for telling me.
Posts: 119 | From New York New York | Registered: May 2010
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