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» LymeNet Flash » Questions and Discussion » Medical Questions » Please Help - Dying 13 yr. old! (update) (Page 2)

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Author Topic: Please Help - Dying 13 yr. old! (update)
17hens
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Alana, Pinelady and all, words cannot express how kind and caring you all are. Honestly, I'm just amazed by your beautiful hearts.

We know how desperate it is for this girl to get help. And so we try. However, at this point, all we can do is pray.

I've given all of your suggestions and LLMD recommendations over the months, all to no avail.

[ 09-12-2010, 12:15 PM: Message edited by: 17hens ]

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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springshowers
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I am so sad when I read this whole thread. So glad there are people watching out for this child through the mom and I wish there was something I could (we all could) do more.

I will add her to my prayers at the very least and I hope things will change for the better and that your list of three things above comes true very soon.

Blessings

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AlanaSuzanne
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Gosh, I am so upset by this whole situation.

No doubt this mom loves her daughter. I can't imagine having such a sick child and a hostile husband and docs who disagree. She is dealing with all this plus school nonsense, has lost her job and is on the verge of losing her house. How much can someone take?

Good that the mom made an appt with an LLMD. But 6 more months of waiting is intolerable. Again, she is welcome to take our Doc J. appt. This isn't me being generous. It's just the right thing to do.

I do pray, and I will pray for what you asked.

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You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'

---Eleanor Roosevelt

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Pinelady
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I just got some info tonite that there has been an explosion of new cases here this year...

I have heard of @ 8, but I did not know about the ones in hosp.

I asked how they found it and they said they are just treating it!!!

Maybe we are making a dent---hopefully they are getting treated long enuf...

As for the dad---have him call the hosp there and see how many cases they have treated this yr....Grrrr...

If they let her go like they did Jessica who is getting trtmt. in Mexico---we should file charges...

Thats a thought--hire a lawyer to make them pay for it.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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randibear
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i agree about the doctor issue. look what happened in texas with our doctor.

as a last resort i'd go to a doc and say she has a sore throat, bronchitis, anything to get abx.

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do not look back when the only course is forward

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17hens
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pinelady said
--------------------------
I just got some info tonite that there has been an explosion of new cases here this year...

I have heard of @ 8, but I did not know about the ones in hosp.

I asked how they found it and they said they are just treating it!!!

Maybe we are making a dent---hopefully they are getting treated long enuf...

As for the dad---have him call the hosp there and see how many cases they have treated this yr....Grrrr...
---------------------------------

pinelady, could you expound on this a bit more? cases of what? lyme? being treated in hospitals? you asked how they found it and they said they're just treating it? may i ask who you were talking to? a nurse or someone? and they meant lyme? (i'm shocked, can you tell?)

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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Pinelady
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A nurse...She said, " You would not believe the cases that have been in the hosp." --She said some get rashes on their hands and other rashes other places. But they are all real sick from tick bites.

I said, "I knew we have several running around but did not know about the ones in the hosp."

I said how are they finding it, and she said whatever they have they are just treating it with antibiotics..I told her to watch it. IV antibiotics can kill so be prepared with a temp. pacemaker....

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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17hens
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wow, thanks. that's scary.

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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lou
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thanks hens. you have a good heart.

Hens has reported that an appt has been made. thanks to her the child may get some help. We will hope that all goes well with this very difficult case.

[ 09-12-2010, 12:59 PM: Message edited by: lou ]

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