posted
Thanks glm111, I will look into that. As I said I'm not going to any more doctors, I can find out whatever kind of treatment I need and do it myself. If antibiotics don't work I will try something else.
Linky123 and onbam, there is also a lot of 'evidence' to support bigfoot, ufo's and that the moon landing was a hoax too. The fact is, this is a terrible disease. Regardless of how you think it was caused doesn't change the reality that we are sick. So you can either focus on the wild goose chase of conspiracy theories involving the government, which will end like every other conspiracy theory does... nowhere. OR, you can focus on beating the disease. I prefer to focus on the latter, but that's just me.
Posts: 54 | From Dallas, TX | Registered: Jun 2010
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
I don't 'focus' on it, as you say, nor am I on a 'wild goose chase.'
The evidence is there if you take the time to look.
As I said before, good luck. Gael is right about the parasites. I and my family are in remission, and are now working with an md on detox.
The first thing he did was get rid of the parasites, using both homeopathics and pharmaceuticals.
They don't go quietly, but they do need to go if your immune system is to have a fighting chance against this disease.
Salt/C works for some. My kidneys just couldn't handle it.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
Also, if Lyme was created by scientists during the 1950's, how do you discredit the fact that Lyme was identified as far back as the 1800's in America?
Posts: 54 | From Dallas, TX | Registered: Jun 2010
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posted
I understand, but what you're talking about involved a sophistication that simply does not exist, and certainly one that didn't exist on Plum Island during the 1950's. There's no question our government did experiments on chemical and biological warfare. But the fact that they could successfully take a strand of lyme and mutate it into something far more complex and deadly than it was and somehow transmit it back to ticks and other animals is far beyond the technology that we had in the 1950's. And even if they were able to do it and still have the cure but not release it sounds ridiculous. All the lyme conspiracy theorists I know say that big pharm is partly behind this... if they were don't you think they would be selling the cure at a premium? With the amount of people who have this, they could make billions overnight!! It's simply illogical to say there is a cure out there.
I take the stance that the simpler reason is the more logical reason. Lyme is very difficult to detect, and even harder to cure. Doctors are all about saving time and money. If they have to devote a lot of time to finding out what is causing someone's symptoms, they lose interest. This is simply one of those diseases that people have not yet drawn an interest to for a variety of reasons.
#1. It's not deadly. Breast cancer & heart disease are far more visible because people die. While some may eventually die from chronic lyme, it's not nearly at the rate of other diseases.
#2. It's difficult to detect. Diseases like MS which have similar symptoms can be detected simply from MRI results. Lyme should be diagnosed clinically, which doctors hate to do these days for reasons I've already stated. It takes time and doctors are like us, they want a quick fix. They also don't want to be mistaken for making the wrong diagnosis and get sued.
#3. Arrogance. The medical community has already made up their mind about lyme disease, they think it's not serious, and they don't want to be proven wrong. If they are proven wrong it will open up a whole can of worms... what if they are wrong about something else?
All of these reasons are far more logical than some government conspiracy theory about experimentation. Of course, I could be wrong.
Posts: 54 | From Dallas, TX | Registered: Jun 2010
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posted
please dont think that i believe the government created lyme but...i do know that there is much unknown about the disease and for anyone to say that it was or wasnt created by the government would be opinion. maybe the government intended on it becoming lethal and never "perfected it" to that point. i dont know i wouldnt rule out much.
please dont kill me for my point of view, i know it will anger a lot of people but im also not convinced its active in chronic people. i think there is a chance it does quick massive damage that takes the body a long period of time to get over, if it ever does, even though the infection is controlled early on in treatment. i dont think this is the case, just a chance this is the case. i know far less on the subject than others here though so dont ream me for this thought.
-------------------- sick since 9-09 igg, 18,23,41 reactive igm, 41 reactive Posts: 436 | From Kansas City | Registered: Jan 2010
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My LLMD starts treatment with a natural product called Prima Una de Gato (aka Cat's Claw) and has had success with it. For those who don't do well with it she moves onto abx.
I did well with it until I got a dozen bug bites and either got reinfected with Lyme or some other disease. Even with abx she has her patients continue with the PUdG.
She, also, has us taking supplements to support our bodies.
posted
Thanks Liz, there are a lot of treatments I need to read up on... there seem to be a lot of lyme treatment options out there that work well for people and that's good. I just have to find what works for me.
JunkYardWily, no one is going to kill you for your point of view. I can't say it's wrong, I just don't know enough about this disease. I do, however, have my own OPINIONS about it. But I think we can all agree on one thing; this is a very serious disease that is difficult to treat. Each and every one of us that is unfortunate to have it know how bad it truly is. The other 'details' about how and if it was created, to me, are rather irrelavent.
Posts: 54 | From Dallas, TX | Registered: Jun 2010
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Yes, it's serious and we wish you the best in finding a tx you can afford and is also effective.
Lymenet has been an wonderful resource for me and my family. So much good info here.
We can agree to disagree as to where it came from, but still support each other through this awful illness.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
Getting back to the topic; "Has anyone been completely cured of chronic lyme disease?" Here's an interesting article written by a LLND who's written a book titled, "Beating Lyme Disease".
He has an interesting perspective on this very question.
So much I want to comment on, but I would have to scroll up a thousand times as my memory is 3 seconds long.
First, I am sorry you are even here because that means you have Lyme. Second, I'm glad you are here because since you do have Lyme, this is one of the greatest sites I have found.
I can SO relate to almost everything you said.
I too cannot afford an LLMD. I live in St. Louis and Lyme is UNHEARD of here. It just doesn't happen. Well here I am.
I have been sick for many, many, many years. I have been diagnosed with Lupus, Bi-Polar, PTSD (Post Traumatic Stress Disorder), Irritable Bowel Syndrome, Diverticulosis, Spastic Colon, Migraines....I could go on and on.
The beginning of May of this year I felt like my Lupus was coming out of remission. Extremely tired, knees began to ache, fluid was coming back on my right knee, etc. I called my Internal Medicine Dr., she said I needed to see a Rheumatologist (sp?). I did.
She ran pages and pages of virus tests, one of which was LYME. They called me the day after Memorial Day and wanted to see me right away. Told me my ANA came back negative (therefore, my Lupus was not out of remission), however, I am positive for Lyme.
I went in that afternoon. She put me on 4 weeks of Doxy. 100 mg 2x day. (Yesterday was my last dose)
Being OCD, I was on the internet every single day to learn everything I could about Lyme. I also found this site. (That was the best thing I found).
I also cannot afford treatment. I cannot afford these LLMD's. I think it is insane what they are charging people to get well, or try to get well from this horrible disease.
I am 1 year divorced, raising our 14 year old son by myself. My other 2 children are grown and one is in Wisconsin. My daughter is near me, at least not out of state and is of help to me when she can be.
I too have been suicidal. I'm tired, I'm discouraged, I feel I am not going to get well because I cannot afford to see the PROPER Dr.
The 4 weeks of Doxy was horrid. I became worse. They tell me that is because abx begins to kill the spirochetes and they release toxins into your body and you actually do get worse. I'm dizzy, losing my balance, angry or crying, stiff neck, headache.....
I have ANOTHER call into an Infectious Disease Dr. which you will, if you haven't already, read that ID's are NOT the answer to getting well from Lyme. Like you, I have to do what I can do right now to try to get better. That is all I have right now, so I'm taking it.
I cannot afford to get to Dr. C. If you haven't heard of him yet, he is one of the best LLMD's there are. HOWEVER, $75/15 min. phone call. I think someone said $490/first visit. Plus, I have to get there!!
I am on disability and only have Medicare for insurance, so that means $1,000's out of pocket.
After a $30,000 divorce. Looking at bankruptcy because my ex has blown my credit and filed bankruptcy himself. I'm...stuck.
I just wanted you to know, I know how you feel. Many, many people here know how you feel. Keep coming here for support. It has helped me a lot.
I have read about the government bioweapon stuff and I don't really care where the hell it came from, all I know is I have it from a supposed tick bite from who knows when and it is killing me.
Your question...can you be cured from Lyme? I don't know. I want to "feel" better. I was told by the Dr. that dx. me that once you have been dx. you will always be positive. Someone mentioned chicken pox. I guess that is a pretty good synopsis of Lyme.
Please don't give up. I want to also. I am 47 and have lived through hell since the age of 4. If I let this win, the fight I have fought has been for nothing.
Please feel free to send me a PM if you like. I really can so relate!
-------------------- Sick and Tired of Being Sick and Tired!! Posts: 153 | From St. Louis, Missouri | Registered: Jun 2010
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