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» LymeNet Flash » Questions and Discussion » Medical Questions » Anyone w/POTS or NMH use sauna?

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Author Topic: Anyone w/POTS or NMH use sauna?
tickled1
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I have POTS and would like to try to use a sauna but am scared. I'd love to hear of others who have POTS that have experience with saunas. Thanks!
Posts: 2541 | From Northeast | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
minerva
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i got my infared sauna before i got POTS. i used it a good deal for pain. i quit using it once this POTS thing started. i found myself not taking hot baths either.

i have just started back taking hot baths and last week took my first sauna. i did ok. i was feeling pretty good the day i did the sauna. i think i can do them but i have to be more mindful and not take them for as long.

i am doing a bit of sea salt and i had a emergency C in my water that i drank in the sauna.

i have been taking a hawthorn compex that has helped with my bloodpressure. so, i am doing better and i might not have tried it before.

i would maybe try differnt types of saunas and do them for a very short time. have someone with you in case you feel faint. since i have my own i am able to adjust the heat which is good too. how do you do with hot showers or baths that maybe a good indicator on how you will do with a sauna?

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Al
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Not a good idea to take hot/warm baths because the heat dilates your blood vessels and this can cause extra dizziness and fainting.

I've been dealing with POTS and MNH since 2003,
I have seen every specialist with so many tests .I've uncovered some abnormal results in Ears, Brain stem, and Adrenals.
No cures !

OH ! I have documented Lyme since 1992
all tests positive, pictures of lyme rash.
I started one and helped start 2 other lyme groups here in CT.

wildcondor has a very extensive lyme information
site.
I think it's wildcondor.com/

Posts: 789 | From CT, | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
minerva
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my doc said, i have develped this after taking savella....maybe i don't have it like other people or very bad since lately ive done ok as long as they are short amounts of time in not so high heat.

so, don't listen to my above advice, i would hate to say something is possible that would make you sick. maybe i answered when i shouldn't have. being careful is more important.

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Keebler
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-
Ask your LLMD. Think of how well you do with a hot day.

If the room temperature around me is more than 90 degrees, I get very ill (and worse). I need to pack several ice bags around me, refreshing them often -or take a cool bath - if my AC is not yet installed for the summer (soon !). My body suffered immense damage regarding my brain's ability to regulate my body functions when hot. Even at 80 degrees, I start to feel ill but 90 will trigger seizures (in my case).

Generally, if one can tolerate a hot day just fine - even with a sauna - it is best to just go warm enough to break a sweat for a short time and see how you do. Increase time as you feel able (with no exhaustion or other "payback").

Hydrate and replace minerals/electrolytes and then rest.

We don't have to cook to sweat or to increase circulation. Warmth is better than high heat and still works just fine.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
massman
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Al said "I've uncovered some abnormal results in Ears, Brain stem, and Adrenals.
No cures !"

There are some specificall mixed herbals (specific parts of specific plants in specific ratios ) for adrenals, brain and other parts of the body.

Docs can order them through:
www.inno-vita.com or
www.systemicformulas.com

Check out the sites.
----------------------------------------------
DISCLAIMER: I get no money or other compensation for recommending the above supplements. [Cool]

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Keebler
Honored Contributor (25K+ posts)
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-
Al, there are many good sources of herbal supplements that nourish the adrenals. Also some other vitamins such as B-5.

There is a wealth of information from many excellent sources:

=========================

http://webhome.idirect.com/~wolfnowl/thyroid7.htm

Get To Know Your Endocrine System -by Lauri M. Aesoph, N.D.

Excerpt:

(section on) Adrenal Glands

. . . Your body reacts to these hormones with a "flight or fight" response: pounding heart, dilated pupils and high blood pressure. . . .

=========================

http://www.prohealth.com/ME-CFS/library/showArticle.cfm?libid=14383&B1=EM031109C

http://tinyurl.com/detwtt

Underactive Adrenal Gland - Stresses and Problems with the Body's 'Gear Box' - by Dr. Sarah Myhill, MD

=======================

Many libraries carry this book and you can read 95 customer reviews here (average 4.5 star out of 5) AND see inside the book:

www.amazon.com/Adrenal-Fatigue-Century-Stress-Syndrome/dp/1890572152/ref=sr_1_1?ie=UTF8&s=books&qid=1263516913&sr=8-1

Adrenal Fatigue: The 21st Century Stress Syndrome

~ James L. Wilson, ND, DC, PhD, Johnathan V. Wright, MD

About $10. And qualifies for free shipping with a total $25. Purchase at Amazon

======================

http://tinyurl.com/y8bd9k2

Curcumin Prevents Some Stress-Related Changes (By CP Staff)

Excerpts:

A recently published study investigated the effects of curcumin, a constituent of the botanical turmeric, on changes in cognition and memory caused by stress. . . .

. . . In this new study, researchers investigated the effect of curcumin supplementation on stress-induced learning defects in mice. . . .

. . . In addition, curcumin reversed the stress-induced increase in the levels of serum corticosterone, the primary hormone secreted during the stress response. . . .

. . . The researchers concluded, ``Thus, curcumin may be an effective therapeutic for learning and memory disturbances as was seen within these stress models, and

its neuroprotective effect was mediated in part by normalizing the corticosterone response, resulting in down-regulating of the phosphorylated calcium/calmodulin kinase II and glutamate receptor levels.''

===================

http://tinyurl.com/6xse7l - through Amazon:

The Potbelly Syndrome: How Common Germs Cause Obesity, Diabetes, And Heart Disease (Paperback) - 2005

by Russell Farris (Author), Per Marin (Author)

Much about stress reactions here. - you can read customer reviews at the link. Attention is given to lyme and other chronic stealth infections however, it does not go into details about solutions.

===========================

This is not a lyme book.

This book has only one reference to lyme (in the historical use of sarsarparilla for another spirochetal infection). However, it is a vital first book to read - or a reference - for anyone interested in understanding nutritional methods.

Search for Ashwagandha; Cordyceps; Siberian Ginseng in this book:

http://oneearthherbs.squarespace.com

The One Earth Herbal Sourcebook (Tillotson)

Graciously, much of this book is on line. It can also be purchased from this site or through Amazon where you can look inside the book and see many customer reviews.

Amazon link to this book: http://tinyurl.com/6zapeh

=====================

The Rhodiola Revolution byt Richard P. Brown, MD and Patricia L. Gerbarg, MD, et.al.

See this at Amazon.

==================

Adrenal articles - explaining much (but not specifically in regard to lyme patients):

http://www.vrp.com/ArticlesSearch.aspx?k=Adrenal
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
massman
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"Al, there are many good sources of herbal supplements that nourish the adrenals. Also some other vitamins such as B-5."

Keebs have you read "New Dimensions in Herbal Healing" yet to perhaps gain a better understanding ?

Most supps stimulate or sedate, they don't really help organs heal, IME.

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Al
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Thanks massman and Keebler, I'm great full for your help.

Of interest,

Abnormal Brain stem in both ears,
Positive Tilt table test,
low blood volume,
Reverse testing on Adrenal, on rise and fall of cortisol. Not sure what he meant by that diag.
Low Aldosterone
Low Rennin
High Sed rate
High CRP
High ammonia

Wont be around for awhile but I will check in.

Al

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
Adaptogens help adrenals heal by support, taking off stress. That's what they're all about.

Al, Abnormal Brain stem in both ears is pretty common with lyme, so is High ammonia, and many of the other symptoms you list.

A good LLMD should know what to do. Treating infection is key, support along with that. Good luck.

This explains a lot:
------------------

http://www.angelfire.com/biz/romarkaraoke/whento.htm

When to Suspect Lyme - by 
John D. Bleiweiss, M.D.

=================

High ammonia is discussed here:

www.townsendletter.com/FebMar2006/lyme0206.htm

BIOCHEMISTRY OF LYME DISEASE: BORRELIA BURGDORFERI SPIROCHETE / CYST

===================

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77325

Topic: To everyone with cardiac symptoms please read !

====================

Specifically for LYME patients - lots of details about ears and what can help:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

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I've had pots and NMH for 23 years. My heat intolerance got a lot better with babesia treatment. I can finally sweat now which probably helped the heat intolerance a lot.

My sister is not as sick as I am but she does have the same condition ie NMH/POTS and she has been using a FIR sauna for a few years now. She does not stay in for very long at a time and only does it a few times a week. I think she said she stays in max 20 minutes. Someone in my State group has the same issues as we do and they are able to tolerate FIR Sauna.

I just found a used poplar fir sauna and am to pick it up on Tuesday. I plan to go very slow and take water in with me. I think ridding myself of toxins, especially heavy metals might help a lot.

Wow Al - we have almost identical test results. I have low renin and low aldosterone, low blood volume due to low red blood cell mass, NMH etc. etc. With those results, I got a diagnosis of hyporenenimic hypoaldosteronism. It is a kidney disease that appears to be progressive.

http://emedicine.medscape.com/article/242494-overview

Could be related to exposure to lead which I have been exposed to but then we all have since 50% of the mothers lead is transferred to the fetus. I also suspect this could be related to babesia or at least the low blood volume seems likely due to babesia (it bursts red blood cells).


I'm thinking the FIR sauna will help get some of the lead out.

Terry
I'm not a doctor

[ 06-28-2010, 09:46 AM: Message edited by: TerryK ]

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