posted
I just started taking Flagyl. So far so good. I have read so many horror stories about it and I just want to hear something good about it for once. Anyone have good results with Flagyl??
-------------------- [IM] Posts: 64 | From Calgary | Registered: Jun 2010
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
It got rid of lyme for me. Took it combined with amoxicillin and probinecid.
Flagyl caused the only herx I ever had. It kills the cyst form of lyme.
Squeeze fresh lemon juice into water and drink that every day to lessen your herx. Lemons are a natural cleanser per my now famous lyme doctor.
Flagyl did not cause me any side effects. Wish you the best!
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
posted
My husband made great improvement on Flagyl. No side effects.
Posts: 984 | From San Diego | Registered: Nov 2006
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
how long did you herx? how long were you on flagyl? dosage?
i sure could use some specifications.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
OMG....where'd you buy that winning lotto ticket TF? lol. ONLY herx with all those hardcore drugs you took? You're 1 in a million.
quote:Originally posted by TF: It got rid of lyme for me. Took it combined with amoxicillin and probinecid.
Flagyl caused the "only herx" I ever had. It kills the cyst form of lyme.
Squeeze fresh lemon juice into water and drink that every day to lessen your herx. Lemons are a natural cleanser per my now famous lyme doctor.
Flagyl did not cause me any side effects. Wish you the best!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I was lucky in love and lucky in herxing, but I was very unlucky in a lot of other things.
I had lyme and co for 10 years before being diagnosed. The last 5 years were bad. I say lyme stole 5 years of my life.
And, I had a lot of bad days during lyme treatment, but they weren't herxes. Maybe the strict diet I followed and drinking nothing but lemon water all day long during my entire 1 year of Burrascano type lyme treatment did this for me.
I was very obedient to do every single thing the lyme doc told me to do.
My herx lasted a week. The first three days were bad and the next 4 days were half bad.
My doc said my previous lyme treatment (no cyst buster for 2 years) had converted all my lyme into the cyst form.
To attack it, he had me stop meds for 1 week so the cysts would come out. Then, I took the amoxi, flagyl and probinecid to hit it in both spirochete and cyst form. A real ambush.
I took 250 mg of flagyl 3 times per day.
The doc warned me to spend the week off meds drinking the lemon water and on the special lyme diet and also taking diflucan to be sure I didn't have any yeast.
All this helped me have a mild herx, I am sure.
He was a great doctor.
It has now been over 5 years since I completed my treatment and I am still symptom free, enjoying my life.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
randi, I took flagyl for 60 days continuously.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Flagyl helped me get well and truly made a significant difference, although the first few days were a bit tough on my stomach.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
| IP: Logged |
posted
My experience with Flagyl and Tindamax has not been good at all...constant migraines and other neuro symptoms, huge fatigue and pain. To the point at times I would have to stop because I just could not tolerate it anymore.
I always wonder, why is it that some people seem to do so well on it, while others have such terrible reactions?
I'm also on IV Rocephin and have been for 3 yrs (had to start at 50mg a day and work up very slowly, am now at 1650mg/day).
-------------------- Susan Posts: 80 | From Queen Creek, AZ | Registered: Nov 2007
| IP: Logged |
posted
I have read that age works against us with flagyl as people over 50 have a much harder time with neuropathy side effect than people under 40, or 30 etc. Anyone in their 30's here have a hard time with it?
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
| IP: Logged |
posted
Maybe something to that. I'm over 50 and had death fatigue from hell last time I took flagyl.
Posts: 847 | From upstateNY | Registered: Dec 2007
| IP: Logged |
posted
I'm 33 and I felt like I was going to die on the 3 days of flagyl that I took. I never want to take that drug again.
Posts: 618 | From NC | Registered: Oct 2009
| IP: Logged |
lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
I thought this question was aimed at the good results, like alot of us had.. not dwelling on the bad ones.. not every drug works for everyone!
posted
I dont notice much difference when i take it, except my anxiety gets out of hand, but honestly its hard to tell if thats the drug or not.
Posts: 106 | From Wales, RI usa | Registered: Jun 2010
| IP: Logged |
posted
And the other question i had was; In theory if you can tolerate this med, can it treat you on its own, even a little, in theory?
Posts: 106 | From Wales, RI usa | Registered: Jun 2010
| IP: Logged |
posted
Brorson and Brorson's research showed it mainly works on spherocystic spirochetes, and is one of a smaller list (of meds) that very readily crosses the BBB - blood brain barrier. It may even have some benefit against Babesia (not proven) and Bartonella - by my inference from anecdotes on the LymeMD Blog. By itself though It should not completely clear Lyme/Borrelia (or any other tick borne disease).
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
| IP: Logged |
lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic