posted
I seem to be having quite a bit of twitching / spastic muscles. Just out of nowhere something will twitch. Tonight while sitting at my desk with my ankles crossed both of my feet jumped abruptly to the left and back. I've had these before in bed at night but they are occurring more and more since being ill. I even had the left side of my face twitch repetitively for a while this morning. Should I be more concerned than not? Silly I know!?
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Oh my gosh. You are really being hit hard with symptoms! I think what has been advised above is good....also take an Epsom Salt soak. I've been doing these almost every night. It makes me feel better all over. Hang in there!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
Muscle twitches are very common with Lyme disease. But other things, like stress, can be responsible (!) Lyme-induced twitching in the knees & elbows is quite common, but it can occur anywhere. A good-Q, time-release magnesium supplement helps most folks.
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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posted
magnesium will help with this ! read dr b's guidelines he has tons of great info in there !
Posts: 294 | From sw chicago suburbs | Registered: Apr 2007
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posted
Hi, I will try again forgot about the magnesium.
Mine is so out control, RLS is beyond I look like spazz. Literally. Straight up in air,including my arms now. Then it stops like I am paralyzed in mid air. So glad live alone when I do all. Some nights starts exactly at 4:30 AM, Usually just finally fell asleep. I have waterbed, like I am in High tide. Now watch lot of Married with Children Reruns, never watched got into it now, in between my spazz,& twitching. Anyone ever had that??? Love to hear about. BTW/ If I did Epsom salts bath be more water on floor & probably in drown in whats left??ha Huggggssss, To All In Need, Kerry
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
Whole body muscle twitching was one of my first symptoms. I still have it although it is tons better after over 2 years of abx therapy.
I agree, take magnesium every day. It does seem to lessen them considerably.
I also have spasticity and involuntary limb movement (and other neuro issues like sound sensitivity, very hyper reflexes, Lhermittes sign, nystagmus etc).. also better from therapy but still around now and then.
Mine always gets worse when I am herxing. Aren't you just starting Doxy?
I recently went off abx (almost six weeks ago due to an upcoming surgery and stuff) and after the surgery everything came back, even worse for awhile. Even my scalp was twitching. I think the only place I've never had a twitch is my ears and nose But yes.. common Lyme symptom.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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posted
Thank you for all the information and support, everyone! I have a surgery scheduled for this Thursday to have a fatty lipoma removed from my chest ... I am wondering now if I should cancel that?
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
My LLMD feels that any unnecessary surgery should be avoided. Unfortunately mine was necessary. But thats something you should really discuss with an LLMD. But know that your symptoms can get worse after surgery or any kind of trauma. After my hysterectomy my symptoms got worse. But then a traumatic tooth extraction really did me in. That was just before I got dx with Lyme.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I had frightening involuntary muscle spasms and movements for a long time.
It was initially limited to my legs at night, but over time my upper body, particularly my right arm and shoulder would jerk and twitch. Sometimes they seemed violent.
Occasionally I have problems, but not too much. I think once I began abx things settled down.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
I totally understand. I too have widespread twitching. I twitch in muscles that I didnt know I had... my nose and nether regions even twitch.
It SUCKS and those with minor to moderate muscle twitching have no idea how bad it can be. It used to be accompanied by limb jerks, but fortunately those went away for the most part with months of abx, unless I am herxing and then they can come back for a little while.
I disagree that magnesium always helps all people though, but maybe it will help you. In my personal experience, I think I will have to kill all of the lyme, etc, before it goes away. I have taken handfuls of all types of magnesium (malate, glycinate) for months and months and it has not helped one bit.
I now am doing Natural Calm and mag. oil. Still not helping. The only thing I have not tried because my LLMD won't prescribe it is IM Mag injections. If your LLMD will prescribe it, I would start with that. Ppl like you and me... I don't know that oral mag will touch our twitches.
The only thing that makes it better is after I herx they seem to lessen. Every herx they get really bad, then I seem to come out on the other side better than before.
Posts: 453 | From TX | Registered: Aug 2008
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posted
Thank you all for your input. I'm not sure what to do about this surgery. *sigh* Tuesday my pcp will be back in the office and I will be able to fill her in on all of my Lyme experiences. She knows nothing about any of this yet. At that time, I will ask her about the upcoming surgery.
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Don't forget about methyl B-12 shots to protect your myelin sheath. (Takes about 3 months to kick in via my LLMD and my own experience in the past)
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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posted
Hi Dawn in VA, and others. My twitching should just be called spazz, so far past my normal twitching more like Michael Jackson or worse. Remember when worked pain clinic was able to give myself B12. In about 3 months what a diff. all way around even to my basic able to do things for awhile. What a shock. B12 is all I changed so have to say. My Dr. only gives once every 4 mo. Hmmmmmm, not the answer. I need to get him to order. Light now working on friend (lymnet gal). Lots problem finally feel a change. Used to be on ABX not for long time also no Doc. there to give.
I told her to ask for B12 she feels after bad fall only thing working even with call her costro problems. I am going to really push him this time or go back to clinic if I have anything left to help out least with pts. They always asked for me anywho. Keep up if your gut feels may be part of answer, without all the drugs.
Good Luck, I know my body is waaaay out control for past 6 mo. Nothing like was before. Might help some others also...HOPE is all we have at times. Hope to hear,thanks Hugggsssssssssss, to ALL Need, Kerry
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Muscle twitching can be lyme or bartonella. I got completely over the twitching when I treated bartonella. So if you are still having it after treating for lyme, try treating for bartonella as well, even if you test negative. There are over 200 stains and the labs test for two.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Hi, I wish could but unable to get anyone to help me on my insurance. I have went to most Drs. unable to use true LLMD.
My ID Dr. knew little, after 20 yrs. got on pic line for 5 weeks. Just when starting to work was over did not follow up with orals. Think afraid like all my Dr`s. The spazz is out control unless I get enough Gaba YIKES~~~~~~~~~~~~~~
Huggggsss, to all in need
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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