posted
Hi, I got a heavy metals test back today, from Drs. Data. High in mercury and gadolinium. Dr wants the 6 hour more specific test done; ok. Going to take DMSA, and I tried the search function to see info on this (DMSA) but really couldn't find what I needed.
Is this necessary? Does it work? (DMSA) Will I herx? Thanks all.
Posts: 113 | From CA | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes, it is necessary for a challenge test. I did fine with it and I usually do horribly with most meds. I also have liver trouble, with 2 kinds of porphyria so most meds are hard on my liver.
Still, DMSA was absolutely easy for me. The easiest thing I've ever taken. In addition to taking it for the challenge test, I took it as a supplement - every other day for a while. Very easy on me. Amazingly easy, actually.
Just be sure to do the collection and the packing, and shipping exactly per instructions. Fed Ex actually returned my urine sample because I did not pack it correctly (they could tell as the envelope is see-through to be sure packing is correct). Very embarrassing - and it ruined my test. I had to redo it.
posted
I have been taking 250 mg of DMSA every other night as part of a metal detox program. This protocol is making me feel better, and I do not have any adverse reactions to the DMSA.
Posts: 360 | From New York | Registered: Oct 2009
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posted
Thank you both so much, for the reassurance. Keebler, do you mind telling me what your dosage was? My dr. wants me to take 300mg per day for three days on, then 11 days off. (This would be after the challange.) Thanks.
Posts: 113 | From CA | Registered: Jun 2010
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posted
300 mg may be fine for some people but I would ramp up slowly like 25mg a day.
Some people who are high in metals will get a release of metals with the DMSA then only have it recirculate and deposite somewhere else in the body without having been removed.
Binders like Chlorella, Algin, apple pectin, charcoal should be taken with it to bind and be removed.
I had to start out at a very low dose DMSA and still am up to 125 mg every other night.
One time I took double dose because I forgot I had already taken it and crashed the next day with anxiety, mental fog and feeling of impending doom, so I go real slow knowing not to try to force too much out and have it get stuck somewhere.
This is just my experience.
Hope you do well on it.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
re: feeling of impending doom
I think one gets this from listening or watching the news these days...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
What!! Wait, our Dr. said to take 500 mg of DMSA, 3 times every day. That is 1500 mg per day.
Could this be right?
Posts: 228 | From Mass. | Registered: Feb 2009
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
My kids ages 13 and 15 have been taking it for 3 months for high mercury, lead, and various other toxic metals. They are doing fine. No adverse effects.
It is also effective. They were re-tested a couple of weeks ago and their metals are coming down. The md said mercury would come down first and that has proven to be the case. They take 100mg on Tues. and Thurs, and two homeopathics; Toxex by Pekana at bedtime as well as OSR on MWF.
I am supposed to start a similar protocol soon but will take 100mg MWF, as well as the homeopathics. The doc says it will take 6mos to a year to clear the metals. So it's not a quick fix.
I believe it can make some folks sleepy, but that is the only side effect mentioned by the md.
Good luck to you.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
Our daughter is an adult. She felt absolutely terrible during and after her first round (3 days on, 11 days off.) All her many symptoms got worse.
She is taking clay and other supports, and getting some lymph drainage done by a friend.
Maybe the 1500 mg dose is too high? What do people think?
I have found sources on the web that recommend the high dose she is on, and other sources that recommend the lower dose people are talking about here. Don't know what to do. (as usual with this disease)
Posts: 228 | From Mass. | Registered: Feb 2009
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
I'm no expert, but 1500mg seems really high. I'd question the doctor about it.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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I have to take the 1500mg soon to redo the urine metals test soon. I weight 135. This is what my LLMD said to take. I usually do ok on the challenge test, but If I take more that 125mg during my regular detox is when I get into trouble.
Ramp up slowly is good.
DMSA comes in 25mg and 100mg through VRP.com which is nice so you can ramp up.
hth
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Wow I'd love to look into DMSA
Do you have to have a doctor write a script?
I tried Chelex by Xymogen (and probably took too much) but got definite signs of moving metals to other places (gut, heart, kidneys, brain)
Had 3 days of heartburn (bad), brain fog, fatigue, vision stuff, etc
I've heard DMSA is much easier to do (like Cutler's protocol every 3 hours) and pulse it.
Anyone follow Cutler's protocol?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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James1979
Unregistered
posted
No, it's OTC. A popular name is "Captomer". I wonder if there's anything that's not so expensive...
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Interesting James.
Is this a popular brand people use? I guess one would have to cut it into 4ths to get closer to the Cutler recommended starting dose (12.5 mg or 25mg)
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
My DMSA is Captomer too.
Strangely, the challenge with 2000mg caused me no problem, the first 3 days [of a 3 day on, 11 off cycle] of 100mg x 5 daily also caused no problems, the second round of 3 days of EDTA suppository only [no DMSA] caused no problem.....
..but on 3rd and 4th cycles of DMSA AND EDTA have felt toxic even before taking the EDTA: headaches, worse fatigue, eyelid flicker etc. I have tried chlorella and clay, but still feel very poor, even though I finished the chelators on Sunday.
It worries me that the metals may be redistributing rather than leaving.
Posts: 1647 | From UK | Registered: Nov 2008
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
ukcarry,
Cutler talks about how different each rounds of chelation can be.
Something to do with the body's unpredictability in regards to dumping the metals, etc.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
My DMSA is Captomer too.
Strangely, the challenge with 2000mg caused me no problem, the first 3 days [of a 3 day on, 11 off cycle] of 100mg x 5 daily also caused no problems, the second round of 3 days of EDTA suppository only [no DMSA] caused no problem.....
..but on 3rd and 4th cycles of DMSA AND EDTA have felt toxic even before taking the EDTA: headaches, worse fatigue, eyelid flicker etc. I have tried chlorella and clay, but still feel very poor, even though I finished the chelators on Sunday.
It worries me that the metals may be redistributing rather than leaving.
Posts: 1647 | From UK | Registered: Nov 2008
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I just did the 6 hr Doctors Data Urine Metal Test last week. My doc gave me 300mg of DMSA to do the challenge test and I did fine with it.
I'm usually very sensative to things, so the fact that I felt good, was amazing!
One thing, when I first took it I felt a total brain fog, that to me meant that I was detoxing something from the brain! Afterwards, I felt really good though. Almost like my nerves were calmer.
Posts: 247 | From Ca | Registered: Feb 2007
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
DMSA is actually not known to cross the BBB
However you may have stirred things up and they ended up near brain.
ALA crosses BBB from what I've read Not sure about DMPS
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
Yes VRP has a bogo right now. It's a good deal, much cheaper than Captomer. sometimes it's 60% off and you can buy a load of it cheap.
Keep both the 25mg and 100mg on hand so you can ramp up.
I still take 125 mg around the clock for one 24hour period a week every 3 to 4 hours and I always feel better on those days still, so it's continually getting rid of new accumulation I believe. It's reassuring to me and good insurance.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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So the brain fog wasn't detox? Shoot! I wonder what I did then??
Question, did anyone have a brain fog type feeling when they first did the DMSA??
Posts: 247 | From Ca | Registered: Feb 2007
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
That's not what I said. lol I'm sure it was a form of detox (brain fog is very common with metal chelation)...
All i was saying is that DMSA or DMPS are not known to cross the BBB. So one could reason that if you are getting bad brain fog from it... then you are using too high a dosage and are redistributing metals in brain region.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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