Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
been off abx for 2 days to rest my stomach and I'm feeling symptoms creeping back already :/
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
Thinking my lil one is starting to have a few symptoms occasionally. Just keeping an eye on him right now, am there with Geneal...quality is most important, so far that is winning. : )
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Thanks everyone for your input it seems everyone still has some symptoms so it's hard to know when to stop. I was told that I had to go 4 weeks symptom free before being considered cured (or in remission). That almost seems impossible.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I think it is impossible too. I think there are some symptoms that are going to linger due to various reasons such as damage or due to other things besides the infections such as thryoid or adrenal issues or whatever it may be.
I have been off for a few months. Those lingering things are getting better through time not worse. I think it is as my body adjust to the new environment .. This is though after being sick for over 10 years and that is another variable.
For me I think it is to be expected and I do not believe or have chosen to stay on abx til I am "symptom" free totally.
Like you said. again I think that is near impossible and rare but depends on situations and people and cases...
Go with your gut and feeling on this and no one set rule.
We are all too different to do that
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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Remember to Smile
Unregistered
posted
quote:Originally posted by lululymemom: it seems everyone still has some symptoms so it's hard to know when to stop. I was told that I had to go 4 weeks symptom free before being considered cured (or in remission).
If you're looking to get into long-term remission, you must be treated for at least 3 to 4 months beyond the date of your last symptom of LD & co's.
That is based on a scientific understanding of the long life cycle of the stealth spirochetes.
As long as you still have symptoms, you're still infected with something, reacting to toxins, etc. Treatment shouldn't end when you're still ill.
If you suffer from thyroid or adrenal gland function problems, that's likely due to the spirochete invasion. As long as you have weakened body systems, you will be vulnerable to relapse.
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
My concern is that I always feel worse after I take the abx. Everyday I get up feeling okay but after I take them everything gets worse. I have tried different abx with the same result.
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