posted
I have been battling lyme, bart, possibly mycoplasma, barbesia, and possibly some viral infections for 18 months.
Have had extensive antibotics treatment. I have replased twice already after getting off it.
Now it seems that the antibotics don't work that well. I feel worse by the week, feeling miserable in bed. Don't know what to do, where to turn... I pray everyday that I'd do anything to get my health back.
I am not even sure what I have exactly. Symptoms are so broad and everchaging...
I have spent a lot of time researching about treatment and yet I am at my wits' end. I am seeing the top LLMD...
Rainbow
--------------- treatment so far (old to new) - 3 months of doxy (got to 90%) - 1 month of doxy (got worse on it) - 1 month of rifampin and Bactrim DS and diflucan (got to 70%) - 1 month of omnicef and minocycline (had a lot of adverse reactions to mincycline, had to stop mino)
now I am on 1 month of omnicef, two weeks of rifampin and bactrim DS...
Posts: 99 | From NJ | Registered: Mar 2010
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
Stay the course! I know it is frustrating. 2.5 years in and I'm fighting a ghost. Have a handful of symptoms but not sure what the cause is and tests are so bad I don't want to waste my money. Then I got C diff which further limits my choices for treatment.
You have a lot of treatment options left. How about treating parasites. I got a lot of improvement from that. Ivermectin and biltricide. I also recently did malaria treatment and made HUGE improvements.
Keep the faith. You are not alone in this fight, we are all here for support. You will get better.
If you have the top LLMD, you are in good hands. Just try to be patient and experiment with different treatments.
Many of us are guinea pigs in this and are paving the way for future lymies. It's a crappy situation but at least we have more options than we did 10 years ago.
Posts: 1104 | From N.California | Registered: Jan 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I'm sorry to hear you're still ill. I have a question though. I'm looking at your medication history in your signature line. What kind of 'top LLMD' has a patient on only one drug mostly?
I see no cyst busters. No Burrascano treatment protocol combinations. Maybe there's more I'm not aware of? What LLMD is it? A NY one?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
The doxy treatment was not good. I should have been treated with multiple abx. The last treatments were from the top llmd from NYC. But I have been steadily getting worse...
My llmd wants to use cyst buster at the end cause he thinks there are severe side effects... He wants to see me stablized first...
blinke, I am told I have intestinal fluke (parasite). where do you buy Ivermectin and biltricide? I feel I am fighting a ghost too. The symptoms keep on changing, rendering medincine ineffective...
Thank you for the encouragement.
Posts: 99 | From NJ | Registered: Mar 2010
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I got mine prescription from my LLMD. You might ask for those at your next apt.
yes, symptoms will keep changing and going away too. Write down your symptoms, it's fun to cross them off the list when they start going away.
It does take a long time. Stay strong.
Posts: 1104 | From N.California | Registered: Jan 2008
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