posted
Hi, I'm planning to visit Dr.Y. I hope somebody can give me some information about what kind of examinations does he do, how can I get an appointment, and how much does it cost?
-------------------- having LD since 2005 Posts: 45 | From Los Angeles | Registered: Sep 2009
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posted
Unless you think you need IV IgG then run the other way.
One of the most expensive docs out there and lots of negative patient experiences.
Doc does not even test patients for coinfections.
Don't be fooled by the website stating that the doc believes in chronic lyme -- it sounds good in print but the reality may be far different.
Even though hubby was hospitalized by this doc, he never even got a thorough neuro workup in my opinion. Doc tried really hard to get the pulmonologist to say hubby had sarcoid, but tests did not support that.
In the end we were told to go see a psychiatrist, but the doc did not even follow thru with arranging a transfer or referral. One of the worst doc experiences hubby has had and he has had many in his 9 year illness.
Go to one of the NYU support group meetings and ask questions about this doc. About half the people there are his patients and maybe 50% have had some improvement with IV IgG. They can confirm the thousands of dollars needed for testing which is often not covered by insurance.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
only takes cash and the consult was not expensive, however, it was the "diagnostic" testing that was $$$$$$$$$$$$!!!!!!!
Wanted to repeat my EMG (just had #3), cash nerve biopsy tilt table testing
Unbelievably expensive, to only find out, I have Lyme. I already knew that.
Ordered spect scan (insurance paid) wanted to repeat spinal tap which was already negative for Bb. What for? Western blot was already positive'
I do believe Dr Y has a "special" interest in neuroborreliosis... charging patients for excessive testing without filing insurance. He does offer IVIG which could be beneficial. I was not impressed & felt it as again $$$$$ to find out what I already knew.
$6-8K would be a good average for the out of pocket charges for his "testing".
Not worth it to me.
Posts: 747 | From Utah | Registered: Apr 2010
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