-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I think this is important to consider in whether to go on long term abx treatment or not.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
| IP: Logged |
posted
Wasn't it MN that some years back the home state of a woman who died of a line infection while being treated out of state for lyme disease? That was also said to be inappropriate treatment, and the authorities apparently did nothing to save this woman, preferring to castigate her and lyme doctors. She went out of state because she could not get treatment in state.
So, who exactly is to blame for these deaths? The people who refused to treat them to begin with, the people who then failed to treat the line infection adequately? That is my vote.
If this most recent patient had an in-state doctor, how soon will the dept of health go after the doctor, in spite of the recent legislature action?
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
posted
yikes, this scares me...
Posts: 618 | From NC | Registered: Oct 2009
| IP: Logged |
sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
There's always a risk when a person takes drugs for any illness. It's just important to consider the risks vs. the benefits.
I don't know if this is going to be a call to chastise all people who treat Lyme with abx. They should compare it to the safety of other things they use to treat illness. Just take a look at Avandia....
I think it should be a personal decision.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
| IP: Logged |
posted
Me too!!! I keep testing positive. No symptoms, but my LD told me it was the toxins that were dangerous.
Posts: 847 | From upstateNY | Registered: Dec 2007
| IP: Logged |
posted
Where are the articles documenting the deaths from lack of treatment of lyme disease?
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
posted
I find it interesting that there is no discussion in the article of how the patient was treated for the C-Diff beyond the Flagyl. Was she advised to take probiotics (or prescribed them) while on antibiotics?
I am sick of the doctors acting like it is the antibiotics that are the "bad" thing, when it is their inept care that is usually the reason. They don't recommend probiotics to many people who take antibiotics - for any reason, not just Lyme.
My friend got C-Diff after a hip replacement from antibiotics associated with the surgery. It was not until she re-lapsed on the C-diff and was yet again back in the hospital that they recommended Florastor. Come on! You and I both know better. The florstor should have been given in the first place with the C-Diff and the probiotics should have been multi-strain when she was on antibiotics. Also diet. She should have been counseled in diet.
So, now they want to point at Lyme and long term antibiotic treatment that was unwarranted. BS. I have positive IGM only also - as this lady that died. I have gotten my life back on long term antibiotics. Is it a risk? Yes, but so is not treating and so is long term antibiotics for anything - acne, T.B., syphillus (sp?).
This makes me so mad. I am sorry this lady died, but I doubt it is solely because she took long term antibiotics. What was she counseled to do while on these antibiotics? What did she research for herself on the subject?
Okay - sorry, that really hit a button with me.
Posts: 276 | From Maryland | Registered: Dec 2006
| IP: Logged |
posted
Here is the previous case that was published, also in MN. In ten years, that state still has not learned a single thing. And you will notice that it is the same journal, published by IDSA.
--------------------------------------------
Clin Infect Dis. 2000 Oct;31(4):1107-9. Death from inappropriate therapy for Lyme disease.
Division of Infectious Diseases, Mayo Clinic and Foundation, Rochester, MN 55905, USA. Abstract
A 30-year-old woman died as a result of a large Candida parapsilosis septic thrombus located on the tip of a Groshong catheter. The catheter had been in place for 28 months for administration of a 27 month course of intravenous cefotaxime for an unsubstantiated diagnosis of chronic Lyme disease.
PMID: 11049799 [PubMed - indexed for MEDLINE]
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
So were those people just abandoned to their fates, or treated like their lives were worth something?
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Don't mean to make anyone upset. I want you to know the attack is ongoing and they are not giving an inch.
The CDC was nice enough to make the statement of representation.
I believe a really good probiotic and yeast prevention everyday is a must while on treatment.
But we must also put the shoes on the other foot....
If she were treated by a IDS in hosp. with IV for Lyme, there is a very real possibility that the herxing it can cause could Kill and many do not give something to prevent yeasts and probiotics, and many not near enough. A lot think it is a one treat and your good.
I do believe with all my heart---IV would have killed me. I don't think it would now, as I have the load down.. But at first--Yes.
Now if that patient they are treating gets worse and dies from you know what, they will give a different diagnosis such as stroke, heart failure, sepsis, vasculitis, anything but-----
Maybe that is where the truth lies---Not in us having to defend ourselves. They should also have to defend themselves.
We need laws to protect those patients, by saving samples for determination with the cause of death is unclear.
Coming from a man who died 2 years ago with diagnosis unknown...I have no doubts. Flu like, seizures, developed abberant rhythms they were unable to convert with meds/treatment and he died.
I would also estimate that very few coroners have a clue to how Lyme can hide not only itself but other infectious organisms from the immune system---sometimes very well...
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
Thanks Rick@Lymeinfo@yahoogroups for sending out. Exactly my point.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
Borreliosis was investigated by immunohistochemistry and focus floating microscopy for Borrelia burgdorferi in skin biopsy samples from 22 patients with both clinical and histopathology evidences compatible with Erythema Migrans.
Spirochetes were detected by specific immunohistochemistry and focus floating microscopy for B. burgdorferi in samples from five patients.
Clinical cure of the cutaneous lesions was observed in all the patients after treatment with doxycycline regimen as proposed by the Center Disease Control guidelines.
A limitation of our study was the fact that we were not able to isolate and culture these organisms.
These are the first known Brazilian cases of borreliosis to have Focus Floating Microscopy confirmation. --------------------------------- I can't stand the thought of them letting 4 weeks be their only treatment as per CDC, but at least they admit it is there!
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic