posted
how long were you sick before starting treatment?
how long were you on treatment before you started to notice a difference?
... just trying to get a grasp on a time-line. people keep asking me when i should start feeling better... and i'm not sure what to tell them.
i've been sick for at least 7 years... so i feel like it's going to take time to heal... i'm 3 months into treatment and still feeling like i'm going to die in my sleep.
when did this change for you? recovery just feels SO far away!
Posts: 220 | From Kansas | Registered: Mar 2010
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I've been having mild symptoms since 2004, I think my "spider" bite was not so much a spider. I had an avalanche of symptoms in Dec 2009/Jan 2010.
I've been on 2 months of doxy and one month of amoxy. I've stopped treating because I can't control my pain right now.
I've noticed minimal differences, not with my pain but other things-my heart does feel fluttery anymore. I'm not AS dizzy or lightheaded, my brain doesn't feel AS foggy.
I know many people say it's going to take at least a year of treatment to get better when you've been infected that long. Longer you've been sick, the longer you have to treat.
But, if you haven't felt ANY difference have you told your LLMD this? I would think you would at least notice SOMETHING getting a little better. Maybe I'm wrong-and I'm sure others will be along later to add more.
posted
I think I have been sick for 4-5 years. Diagnosed in oct 2009. I have been on oral and Iv since then. I did a 30 day bout with IV the first time. Felt pretty good at the end, but it came back in six weeks. This time I am on 60 days of iv treatment. Today is day 50. I feel better but not back to normal. The DR. said he would put me on orals after the 60 days are up. He recommends 90 -120 days of treatment to cure lyme, but insurance wont pay past 60. I think everybody responds differently to lyme and its treatment. Good Luck and stay positive. I know sometimes its hard, but their is a light at the end of the tunnel.
Krautz
Posts: 38 | From Garnet Valley, Pa | Registered: Apr 2010
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posted
littlebit.. a few things have improved... but not enough to make much of a difference. my most cripling symptoms haven't got much better at all. and some of my symptoms are worse than they were before now.
anyway, thanks guys for your responses!
Posts: 220 | From Kansas | Registered: Mar 2010
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posted
I have posted a similar question in the past.
Although it does seem, from responses on this board, that the less time that you have been sick, the quicker that you will get better, I am not so sure. Personally, I think that it depends on HOW sick you are. I got sick REALLY quickly and really severe (heart, neuro/brain) and have been an antibiotics for 14 weeks. I have seen absolutely NO improvement what-so-ever...actually a bit worse. I think that a lot of factors come into play...length of time and severity of illness, which antibiotics work with which person, etc.
Good luck though! I sure wish that there was a magic bullet that would work for everyone!
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
There is no standard answer. There are too many variables. Some of them are strain of bacteria, co-infections, genetics, lifestyle (diet, level of stress exposures to toxins etc.), other infections besides TBI's, heavy metal burden, other toxin burden, treatment compliance etc. etc....
If you have one, your LLMD would likely be the best source to give you a reasonable estimate but even they can only provide an educated guess based on what they know about you and your infections.
I wish there were some rule about this but there simply is not. What I've seen in general is that the younger you are and the less time infected, the faster you will get better but that does not always apply.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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