posted
One of my most bothersome symptoms has been peripheral neuropathy. I am starting to notice other symptoms improve, but still don't have much feeling below the waist. I was wondering if this is something reversable. I have read that it will improve with treatment, but heard from a doctor or two that this damage is irreversable. As always with LD, not sure who or what to believe.
Thanks, LA
Posts: 60 | From NJ | Registered: Jun 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I would like to know as well. My peripheral neuropathy was my first symptom and my ONLY symptom that has not improved with treatment. I'm starting to think it is permanent as well.
I'm sort of used to it by now. BUT, they say to treat 2 months past your symptoms stopping. So if the neuropathy never goes away, how do we know when to stop treating?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
My wife had this symptom as a result of die off more than anything.
She is fully recovered now, but there are probably many variables involved with the degree of recovery possible.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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posted
Great question. Hope others can share their experiences.
Mine has improved somewhat with treatment (abx, ivig, etc) but has never fully resolved after several years of treatment.
-------------------- Same nightmare, different day! Posts: 401 | From East Coast | Registered: Nov 2005
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Mine has gone after a year in treatment, but I still have MS symptoms to get over. Still treating since April 09. And yes I still herx from treatment.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
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