bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
So, the past couple of days I've noticed my left hand tingles a bit. Not bad. On a scale of 1 to 10 its a 2-3. But it is there.
Is this from lyme bart, babs, or meds? Feel pretty good otherwise.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Left hand tingling was my 1st symptom that sent me to the doc.
As far as I know, it is a symptom of Lyme but I guess they all get mixed up and it can be everything.
Neuropathy can also be a side effect of Flagyl, which I know you are on.
It's so frustrating not knowing what is from what
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
i get this in both hands. its a bit like they feel after clapping them together but sometimes stays all day.
Posts: 65 | From Sussex UK | Registered: Apr 2010
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
When our daughter was first treating with Zith, and for months after, when not on any treatment,
She would mention here and there about her hands, feet feeling like pins and needles, like they fell asleep.
She did not improve after 8 weeks of antibiotics, then the pins and needles , etc symptoms started. This was after her first and supposed complete treatment.
Started treatment with Rifampin and Mino last May, 2009, and does not seem to have this anymore.
I think for her it was Bart related.
Hope you feel better soon.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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posted
I also have hand tingling, usually my ring and pinkie fingers mostly. Who knows which one of these evil diseases causes it!!??!
Posts: 246 | From south florida | Registered: Mar 2010
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Don't forget about (carpal tunnel syndrome). I've had carpal tunnel syndrome for more than 30 years and choose not to have the orperations.
I can tell you this, since having lyme (3 YEARS +) MY carpal tunnel IS much WORSE!!!
Just wanted to make sure you keep an open mind for different reasons you have the pins/needles/tinging...etc
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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posted
Steve, your carpal tunnel is worse? Has it gotten any better with treatment?
My wrist hurts and my fingers tingle too, especially when I use the computer. I'm hoping it will get better with treatment.
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Hey TXgirl, No it hasn't gotton any better with treatment. I've had it in both hands for so many years its 2nd.nature to me.
Its not 24/24 but I do get the tinging, falling a sleep, etc everyday...
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Ditto for me to what wealdsteve said- excellent description. I only get in now and then, but when it comes, it stays for a good while. Blech. It's an annoying symptom.
Have you thought about methyl B-12 shots (helps CNS)?
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Bcb - tingling can also be from Flagyl.
Posts: 2232 | From USA | Registered: Aug 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Thanks all. I do know Flagyl can cause peripheral neruopathy. But I only pulse it 3 days every 2 weeks, and supposedly this short pulse isn't supposed to cause this side effect.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
| IP: Logged |
posted
I used to have this too and after going gluten free it totally went away. I have Celiac too though, so I;m not sure the tingling would be enough for me to go gluten free- lol, but I guess who knows it may actually be doing damage, i mean it cant be a good sign. Maybe try out going GF-- also if youre on Flagyl make SURE to tell your DR. It can cause permanent damage if its from the Flagyl
Posts: 844 | From CA | Registered: Apr 2010
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onbam
Unregistered
posted
Google nitroimidazole neurotoxicity. If I got any new neuro symptoms on flagyl or tini, i'd go off right away.
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posted
Carpel Tunnel is very specif fingers. Ring and pinky which I also have is NOT carpel tunnell. It was my first symptom too and if flares with mino and doxy. It is either Bart or lyme but I still cant be sure.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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posted
NMN I am currently taking levoquin,artemisinin,doxy and septra. For herbs: licorice, eleuthero,smilax. I am improving with this combination, are you having improvement too?
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
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posted
That looks like a good combo Beach. I am happy its working for you. Art is great stuff. Licorice, ginseng ad smilax is a nice little mixture. I have licorice tincture in the making and I hope to start it in a few weeks.
I am doing much better on high doses of rifampin for bart. I am alternating between rifampin and levaquin at the moment.
Thanks for the info. These diseases can inflame any nerves really. May be due to direct infection or blebs. I think its direct infection in my case as its always the same places.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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