posted
I have tried to titrate up on my Rifampin, but cannot seem to tolerate more than 75 mg. Even at 100mg my heart pounds and I have air hunger.
Question: I am in screaming pain, so I think it is doing something. I am currently taking it with Biaxin. Do I continue on the low dose or give it up and try something else for Bartonella?
Posts: 113 | From CA | Registered: Jun 2010
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Rifampin is a tough one to decipher. It may be side effects of the medicine as some people can't seem to process it in their system.
I had severe problems but I started with 600 mg. I almost went to ER because I felt like I was having a heart attack.
I am considering trying it again just to see if it may have been hitting an infection hard. I do remember that after only two weeks on Rifampin some of my severe symptoms left. A year later they seem to be back.
Sorrry. I'm not much help and can't answer your question but I thought I would share my experience with you.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
Thank you Haley. I have a call in to my dr. and will see what he says. God bless you.
Posts: 113 | From CA | Registered: Jun 2010
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Sophie,
Bea Seibert posted an article a while back about Rifampin having a mild effect on Babesia.
I think her husband also couldn't tolerate Very low doses of Rifampin. After treating with Chloroquine and Primaquine he was able to do high dose Rifampin.
Hope this might help you.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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I just wanted to chine in with this link I posted a few days ago which I dont think got much notice.
Rigampin is effective against babesia/malaria parasitic infections. I have been fighting bart for quite a while and it has been causing some nasty eye inflammation the worst being uveitis which of course is sight threatening.
I could not for the life of me work out why when I used high doses of rifampin (i.e 900mg/1200mg) I would get immediate relief from many symptoms and get a huge boost of energy back followed by a worsening 3 days later but overall my eye would settle. I used these doses as this is what is used by opthamologists for chronic bartonella of the eye.
After many rounds I have realised that babs/malaria type co is being immediately suppressed by these rifampin doses and the knock on effect 3 days or so later is the rifampin hitting the inter cell lyme and bart.
In this particular study they used up to 1500mg in single dose which I have used for a few days also. You must have your lyme and bart load down to tolerate these kinds of doses of course.
Having said that I see your post about Beas husband and that does not surprise me as it really depends on the parasite you are fighting. I never herx on babs meds I just get better.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I agree, you may not have your loads down enough to tolerate yet.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
NMN - I did notice your prior post and thought it was very interesting as I am considering doing Rifampin again.
It was really like going through hell when I tried it before. One of the worse parts was that on top of the side effects my sleep meds didn't work so I couldn't sleep. I was a wreck.
How in the heck did you do 900/1200 mg? How did this dose effect you (any side effects)? Were you able to sleep? How long have you been on this protocol?
Posts: 2232 | From USA | Registered: Aug 2009
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I have been doing aggressive treatment for bart for 2 years now. In the beginning 300 mg would send me up the walls also.
I have been taking 1200mg for 6 days now and side effects are nothing noticable to be honest. I take 5mg melatonin time release as always for sleep and it works fine. I sleep 8-11 hours a night although dreams are a bit crazy.
I have to admit I do not think I could tolerate such strong bart treatments were it not for the cymbalta I am taking now. Having said that I dont think that would even suppress the bart rages were they to surface strongly.
I have been taking it with 2 or 3 mino a day but I am struggling to keep babesia at bay right now so I have changed Mino for Bactrim DS which is will help keep babs in check and also hit the bart from a different angle. Thankfully no bad herxing anymore. I think my lyme load is well down now.
I am going to go after babs/malaria with a prim & cloro combo soon as it is undermining all bart and lyme treatments while it is present.
I will only do 2 weeks of rifampin at this dose and then I will switch to levaquin for 2 weeks and then back again. I will also start bicillin shots again twice a week to cover lyme.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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posted
The other reason for switching rifampin in and out is due to studies I have read in which subjects had 50% reduction in blood levels after 2 weeks.
I think our bodies break down all of these meds over time.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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posted
NMN- Are you taking that 1200mg rifampin in one daily dose or two divided doses?
Posts: 195 | From Manchester, CT | Registered: Jun 2008
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