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» LymeNet Flash » Questions and Discussion » Medical Questions » Liver is fully recovered, but symptoms are coming back

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Author Topic: Liver is fully recovered, but symptoms are coming back
tiffagoo
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Hi everyone,
It has been awhile since I've been on Lyme.net. Mostly because of our move. But I also went into drug induced liver failure. I was on a treatment protocol for 6 months when my liver enzyme levels began to rise and rise. It came to a point when my LLMD referred me to a liver specialist and I have been off of all antibiotics since mid-March.
I really haven't had any problems or symptoms for awhile. But I am sad to say that they are beginning to come back.
I called to schedule an appointment with my LLMD today.
I am EXTREMELY nervous about going back on a antibiotic regiment. My liver did not recover as fast as other Lyme patients. In fact, my numbers just came back ro normal about a week ago. That means it took 3 1/2 months for my liver to fully recover.
Is there any way I can treat Lyme without antibiotics?

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kimmie
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I would use meds that are less toxic to the liver...amoxicillin, bicillin, zithromax, cephalosporins. I would avoid ketek, rifampin, .
I have to stay away from all tetracyclines because I get a drug induced hepatitis with those, I recovered rather well...but that was before Lyme and was given steroids for it. Now I am very careful with my meds. I also avoid bactrim and rifampin and erythromycin because my liver doctor told me to avoid those for their potential in liver damage. Good luck. He did say flagyl or tindamax was ok,

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Keebler
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Member # 12673

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-
When you were on abx before, were you able to take Milk Thistle, NAC, Bupleurum, Dandelion or other liver support?

No need to answer, it's just a check-list for yourself. Now, even the best liver support can't fully protect - but you might want to rethink whatever you used and get professional guidance on how to improve on that.

It also helps to avoid acetaminophen or other Rx / OTC things that are hard on the liver. [For pain relief, Curcumin &/or Corydalis can help without stressing the liver.]

Your LLMD may have some suggestions and perhaps a LL ND (naturopathic doctor) can help you with a support plan.

After hearing what your LLMD has to say about your symptoms, etc., you might discuss RIFE - or something like Buhner or Zhang's protocols.

Might this be something besides lyme? Are heavy metals or other toxic exposures involved that could mimic lyme? Other infections?

In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA #6911 posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.
-

[ 07-31-2010, 02:03 PM: Message edited by: Keebler ]

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Keebler
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The doctor with whom you would be working should have full knowledge of every approach below. He may also have suggestions that are not on this list - hopefully from his communication with others LL doctors or from his experience with other lyme patients.

To compare and contrast the work of authors regarding some of the most common complementary or integrative paths. Note that many still incorporate antibiotics.

This is not at all a complete list . . . just a start. It's far easier to have a LL doctor with lots of experience so that you don't have to do all the homework. Suggestions here are, in no way, intended to take the place of a good LL doctor. This is for patient education and also to serve as a basis for discussion with your LL doctor.

=========================

www.lymeinfo.net/alt.html

LYME DISEASE ALTERNATIVE THERAPIES

===========================

http://www.lymepa.org/html/dr__j__burrascano_september_20_0.html

Burrascano's Powerpoint SLIDE presentation 9-20-08

------------
http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

------------
As important as any supplements, sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

----------------------
This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

** Nutritional Supplements in Disseminated Lyme Disease **

J.J. Burrascano, Jr., MD (2008) - Four pages

======================

http://www.lymeinducedautism.com/images/Lymewhat_is_it_part_3,_LIA.pdf

LYME DISEASE Considerations in Diagnosis and Management

June 26, 2008 Lyme-Autism Connection Conference

125 pages - Powerpoint presentation

--------------

By the same author as above, Chapter 1 from the book "Insights Into Lyme Disease Treatment"

http://www.lymebook.com/steven-harris

---------------

http://www.amazon.com/Insights-Into-Lyme-Disease-Treatment/dp/0982513801/ref=sr_1_1?ie=UTF8&s=books&qid=1272566632&sr=1-1

Insights Into Lyme Disease Treatment: 13 Lyme-Literate Health Care Practitioners Share Their Healing Strategies

Connie Strasheim (Author), Maureen Mcshane M.D. (Foreword), Thirteen Lyme-Literate Doctors (Contributor)

==================

http://www.klinghardtneurobiology.com/LymeProtocolOct09.pdf

A Treatment Guide: Lyme and other Chronic Infections - by Dietrich Klinghardt, MD, PhD

October 2009 - 87 pages

-----------
http://www.klinghardtneurobiology.com/popups/PC1.html

Online Radio Interview

===============

www.lyme-disease-research-database.com/lymenutritionfile1_files/Integrated-Approach-DAN.pdf

HEALING LYME DISEASE: An Integrated Approach to Curing Chronic Infection by Daniel A. Kinderlehrer, M.D. (2004)

================

It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)- by Kenneth B. Singleton, MD

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com

========================

http://tinyurl.com/5vnsjg

Book: Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections - by Stephen Harrod Buhner

Website: http://planetthrive.com/2009/08/buhner-healing-lyme-program/

Forum: http://planetthrive.com/category/experts/buhner/

-----------------------

Familiar with Buhner's work:

http://watercourse-way.com/lyme.html

Natural Healing for Lyme Disease

================

http://tinyurl.com/5drx94

Lyme Disease and Modern Chinese Medicine - by Dr. QingCai Zhang, MD & Yale Zhang

web site: try www.sinomedresearch.org and use "clinic" and then "clinic" for the passwords or call Hepapro through www.hepapro.com

========================

http://www.steveclarknd.com/LymeDisease.htm

Your Path to Wellness - Lyme disease (by Steve Clark, ND)

========================

RAIN-TREE (Amazon Rain Forest focus)

(800) 780-5902; email: [email protected]

Main site: http://www.rain-tree.com

Best to also read the book: Healing Power of Rainforest Herbs -- by Leslie Taylor, ND - available at their site.

Customer reviews of this book can be read through this link over at Amazon (BOOKS): http://tinyurl.com/ye5bxqw

======================

http://www.rain-tree.com/spiro-extract.htm

SPIRO Extract (from RAIN-TREE)

A synergistic formula of 6 rainforest botanicals which are traditionally used in South America for syphilis (a type of spirochete bacteria) and other bacterial conditions.* This product was featured in an article by the Health Sciences Institute (see page 4).

========================

http://www.kroegerherb.com/index.php/products/combinations_product/2446

SPK Formula� (Formerly Spiro Kete�)

Ingredients: Nettle leaf, Yerba santa, Goldenrod, Monolaurin, Tobacco leaf. Other Ingredients: Vegetarian source capsule.

========================

www.townsendletter.com/FebMar2006/lyme0206.htm

February/March 2006

BIOCHEMISTRY OF LYME DISEASE: BORRELIA BURGDORFERI SPIROCHETE / CYST

============

Methods mentioned in the article above:

http://www.beatinglymedisease.blogspot.com

http://www.hansacenter.com

Book & Author's Blog: Beating Lyme Disease by David Jernigan

And, the personal link posted above by Gary:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89968

======================

COWDEN PROTOCOL combination tinctures are not included here. That's easily found through Google.

=======================

RIFE MACHINE

http://www.lymebook.com/lyme-disease-rife-machines-bryan-rosner

Book: Lyme Disease and Rife Machines by Bryan Rosner

-----------

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/88778

RIFE Support Discussion Thread

-===================

See the "Secondary Porphyria" post first.

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/91842?

PORPHYRIA Thread

======================

LIVER SUPPORT LINKS are 3/4 of the way down the page here:

Specific for LYME patients - lots of details about ears and what can help:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS

-=======================

www.townsendletter.com/FebMar2006/lyme0206.htm

February/March 2006

BIOCHEMISTRY OF LYME DISEASE: BORRELIA BURGDORFERI SPIROCHETE / CYST

============

Methods mentioned in the article above:

http://www.beatinglymedisease.blogspot.com

http://www.hansacenter.com

Book & Author's Blog: Beating Lyme Disease by David Jernigan

And, the personal link posted above by Gary:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89968

========================

COWDEN Protocol is also one some lyme patients use. Google for details or see past threads.

=========================

Incorporating TEASEL root:

An Overview of Lyme and Coinfections from a Treating Herbalist (by Wendy Snow)

http://tinyurl.com/yh6w892

Note -- The document is 81 pages long so it may take a couple of minutes to load.

=========================

http://www.ncbi.nlm.nih.gov/sites/pubmed

PubMed Search for Medical Abstracts (for pharmaceuticals, herbals and other nutritional supplements)

=================

ADJUNCT SITES for herbal study:

Not at all about lyme, but a good site for articles about supplements:

www.vrp.com

In their search bar, just pull down from products to articles for access to a fabulous library backed with solid research citations for every article.

=================

More specific to herbs and how they work in the body. GREAT BASIC BOOK just not about lyme (other than the page on Sarsaparilla):

The One Earth Herbal Sourcebook (Tillotson, et.al.)

http://oneearthherbs.squarespace.com/one-earth-herbal-sourcebook/

===================

www.itmonline.org

ITM - Chinese Medicine research site - They have good articles regarding "SAFETY" & "INTERACTION"
-

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Keebler
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As many sleep and pain meds have toxicity issues and are hard on the liver and kidneys, here are some suggestions for sleep support that can safely nourish & calm the body:
---------------

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89790

NATURAL SLEEP - Links to articles & supplements

----------------

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/24039

PAIN MANAGEMENT
-

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Keebler
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HOW TO FIND A NATUROPATHIC DOCTOR (N.D.)

Of course, beyond the training and licensing credentials, any ND who works with a person with tick-borne infections should also be ILADS-educated (so to speak) and actively still keeping up with ILADS research.

You also need to know that many N.D.s also often incorporate antibiotics just as many LLMDs incorporate support measures.

Check the lyme support groups in the area to compare notes from those who have worked with some LL NDs.

=========================

http://www.naturopathic.org/

The American Association of Naturopathic Physicians

----------------

http://www.naturopathic.org/AF_MemberDirectory.asp?version=2

Find a Naturopathic Physician - by zip code or location

----------------------

http://www.aanmc.org/

Association of Accredited Naturopathic Medical Colleges

These colleges and universities often have patient clinics that usually offering sliding scale payment options. While the residents and interns may not be LL, they also may be.

--------------------

Individual states have their own licensing boards, different from MD boards.

http://www.naturopathic.org/content.asp?contentid=57

Licensed States and Licensing Authorities

Currently, 15 states, the District of Columbia, and the United States territories of Puerto Rico and the United States Virgin Islands have licensing laws for naturopathic doctors. In these states, naturopathic doctors are required to graduate from an accredited four-year residential naturopathic medical school and pass an extensive postdoctoral board examination (NPLEX) in order to receive a license.

Licensed naturopathic physicians must fulfill state-mandated continuing education requirements annually, and will have a specific scope of practice defined by their state's law. The states that currently have licensing laws for naturopathic physicians are:

* Alaska
* Arizona

* California
* Connecticut

* District of Columbia
* Hawaii

* Idaho
* Kansas

* Maine
* Minnesota
* Montana

* New Hampshire
* Oregon

* Utah
* Vermont

* Washington
* US Territories: Puerto Rico and Virgin Islands

=====================

Many N.D.s are also licensed acupuncturists (L.Ac.) and there may be a few L.Ac.s who are also LL. Both N.D.s and L.Ac.s have several years of post-graduate education in herbal medicine. You can search the sites to explore the differences in their training - and ask the practitioner in person about their training and experience. They are usually glad to share that all that.

WHAT IF YOUR STATE DOES NOT LICENSE N.D.s?

Some states allow N.D.s to practice in other ways - such as with a M.D.

Normally, you'd want a licensed N.D., however, in states where there is no licensing, if you find a state professional organization, USUALLY those who belong meet certain professional standards and have the appropriate medical degree from an accredited college of naturopathy.

Search at Google (Yahoo, or Bing):

State name, licensing ``naturopathic physician''

If no results, search: [state name], naturopathic (or acupuncture or Ayervedic, etc.)

you want to find some sort of professional organization.

=====================

AYURVEDIC MEDICINE (D.Ay.)

www.ayurveda-nama.org

National Ayurvedic Medical Association

=====================

You should also consider Doctor of Oriental Medicine (O.M.D.)

www.nomaa.org

NOMAA - National Oriental Medicine Accreditation Agency

=====================

HOW TO FIND AN ACUPUNCTURIST (L.Ac.)

www.nccaom.org

National Certification Commission for Acupuncture and Oriental Medicine

http://www.nccaom.org/find/index.html

Find a Practitioner

=====================

http://www.acaom.org/

The Accreditation Commission for Acupuncture and Oriental Medicine (ACAOM)

- the national accrediting agency recognized by the U.S. Department of Education to accredit Master's-level programs in the acupuncture and Oriental medicine profession.

----------------------

http://www.acaom.org/accProgAddress.asp

ACCREDITED PROGRAMS AND ADDRESS DETAILS
-

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