posted
i really thought it would show something.....now i am so confused.......why would that be when i have a ton of neuro stuff........now i wonder is it "all in my head"........not literally......mentally........
I never thought i would be upset to have a normal test...........but now i am just lost.......what is going on..........i dont speak to my LLMD until the 19th.........
just wondered if anyone could help me understand
-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
| IP: Logged |
posted
If you have cognitive issues it will show up on a properly done QEEG. Dr. Preston use to work down the hall from Dr. Cheney the famous cfs doc and over 90% of his patients including me had abnormal QEEG results. Here is her link if you if you want to explore more about documentation of abnormal brain activity. My results showed like most others that at times parts of my brain were going in and out of deep sleep/delta waves while I was upright trying to take a test. http://www.siberimaging.com/about.htmlPosts: 805 | From Utopia | Registered: Feb 2006
| IP: Logged |
posted
thanks........i'm in the right state anyway......
-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
| IP: Logged |
posted
jarjar what's a QEEG? One of my kids has to have an EEG, but I've never heard of a QEEG.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
| IP: Logged |
posted
Not everyone with chronic lyme will have an abnormal spect scan, mine was normal and I only have neuro symptoms.
Posts: 747 | From Utah | Registered: Apr 2010
| IP: Logged |
onbam
Unregistered
posted
Brain scans are often normal in Lyme.
IP: Logged |
posted
thanks.......always looking for some validation....
-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
| IP: Logged |
posted
Florence1, I also had/have severe neuro problems.
I had a normal spect scan nine months after a brain mri showing three large and twenty small lesions, glad they did the mri test first otherwise after a normal spect scan they would probably have done no more.
Go figure!!
I see a neurologist September so maybe I will find out
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic