I go to bed feeling relatively fresh [certainly not over tired] I sleep peacefully and soundly when its time to get up and out of bed Im totally shattered with a draining fatigue its like I've been hit by a train and aching all over.. horrible stuff!!
Posts: 18 | From Waterford, Ireland | Registered: Jun 2009
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posted
Yes, I feel unbelievably horrible in the morning. My whole body hurts from fatigue. It takes me hours before I'm able to get out of bed. I don't know why it's so bad in the morning...
Posts: 87 | From NorCal | Registered: Feb 2008
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Me too... Especially in the early morning hours around 4 or 5 it feels like death warmed over.. By 2 pm I'm feeling relatively normal
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Check out sleep problems as a possible cause. Sometimes you think you are getting deep sleep, but you really aren't. No way of knowing without a sleep study.
You would need to see a sleep doctor to get this figured out. I found out I have apnea after the study, and never had a reason to suspect it, at all, except for the daytime fatigue.
Hoping the treatment will help. Haven't started yet.
Good luck!
Posts: 4590 | From Midwest | Registered: Jun 2008
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
This sounds like adrenal fatigue to me. Have you had your cortisol levels tested?
I recently experienced this again and had saliva testing done. My morning cortisol level was over twice the normal range, my noon was below normal, and my evening was high. Even though it seemed like I was sleeping well, it was not refreshing sleep.
I have been taking adrenal supplements recommended by my doctor, and it has already made a difference.
Posts: 4681 | Registered: Oct 2000
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Thanks!
Posts: 648 | From northeast | Registered: Feb 2009
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
The supplements you need depend on your test results. Some people have cortisol levlels that are too high, some have levels that are too low, some have both.
My morning level is over double what it should be and my night level is also above normal. Because of this, my doctor has me taking SedaLin and Seriphos before bed. My noon level is below normal, so my doctor has me take Adreset around mid-morning.
I think it is a good idea for everyone who has Lyme to have their adrenal function tested. From what I undersand, saliva testing is more reliable than blood testing.
Posts: 4681 | Registered: Oct 2000
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posted
Thanks, Sammi. I'll talk to my daughter's LL NP. I think she would be willing to test for adrenal function.
Posts: 648 | From northeast | Registered: Feb 2009
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
thanks to everybody who have posted a reply to my original question at least now I know there could be a valid reason why I'm feeling this way I must now start on getting tests/analysis done
Posts: 18 | From Waterford, Ireland | Registered: Jun 2009
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Need Lots of Help, I think the cortisol testing is around $150.00. You give a saliva sample first thing in the morning, around noon, at 4:00 pm, and at bed time.
Call to make sure though, the number listed on the website is 800-631-7900 option 6.
For those that have not done so, it is also important to have all other hormone levels tested--Estrogen, Progesterone, Testosterone, Estradiol, DHEA.
Posts: 4681 | Registered: Oct 2000
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Thanks, will call LLMD and request all tests.
Posts: 893 | From Florida | Registered: Dec 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Tests may be of some help but they are not as helpful as we might wish for many reasons. First, fluctuations not just hour to hour but day to day - testing shows only one point in time and it just cannot capture all details and show an incomplete picture.
Lyme, itself, causes fatigue - that usually comes in waves - and that is likely not to be resolved until near completion of treatment. Sorry. But it's true. Fatigue is just the number one symptom. But, as the infection is treated - and with adequate support and self care measures - you can find some levels of relief, or at least a better understanding so as not to fight it and use even more energy.
Diet, too, matters. You may not be getting enough nutrients or fiber.
Liver damage from infection, and the stress of treatment, also adds to fatigue. In fact the liver is a huge player with deep fatigue and "unsuccessful" sleep/rest. But that's another topic. Adrenal/endocrine matters were mentioned above. More about all that: ------------
ADRENAL LINKS:
This book is specific to lyme and other chronic stealth infections. The author discusses the endocrine connection and effects of STRESS on a person with such infections. You can read customer reviews and look inside the book at this link to its page at Amazon.
The Potbelly Syndrome: How Common Germs Cause Obesity, Diabetes, And Heart Disease (Paperback) - 2005
by Russell Farris and Per Marin, MD, PhD
==================
Remember that lyme really messes up the HPA axis (Hypothalamus/pituitary/adrenal network). The pituitary has much to do with weight/growth. Mess up any part of the endocrine system and other parts suffer, too.
Curcumin Prevents Some Stress-Related Changes (By CP Staff)
Excerpts:
A recently published study investigated the effects of curcumin, a constituent of the botanical turmeric, on changes in cognition and memory caused by stress. . . .
. . . In this new study, researchers investigated the effect of curcumin supplementation on stress-induced learning defects in mice. . . .
. . . In addition, curcumin reversed the stress-induced increase in the levels of serum corticosterone, the primary hormone secreted during the stress response. . . .
. . . The researchers concluded, ``Thus, curcumin may be an effective therapeutic for learning and memory disturbances as was seen within these stress models, and
its neuroprotective effect was mediated in part by normalizing the corticosterone response, resulting in down-regulating of the phosphorylated calcium/calmodulin kinase II and glutamate receptor levels.''
===========================
This is not a lyme book.
This book has only one reference to lyme (in the historical use of sarsarparilla for another spirochetal infection). However, it is a vital first book to read - or a reference - for anyone interested in understanding nutritional methods.
Search for Ashwagandha; Cordyceps; Siberian Ginseng in this book:
Graciously, much of this book is on line. It can also be purchased from this site or through Amazon where you can look inside the book and see many customer reviews.
THE REQUIREMENTS OF PROTEIN & AMINO ACID DURING ACUTE & CHRONIC INFECTION . . . - 20 pages
Anura V. Kurpad - Institute of Population Health & Clinical Research, Bangalore, India 129. Indian J Med Res 124, August 2006, pp 129-148.
Excerpt:
" . . . In general, the amount of EXTRA protein that would appear to be needed is of the order of 20-25 per cent of the recommended intake, for most infections. . . ."
- Full article at link (or google the title if it does not go through). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses
Dr. Burrascano's Treatment Guidelines (2008) - 37 pages
------------ As important as any supplements, sections regarding self-care:
Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES
and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
BIOCHEMISTRY OF LYME DISEASE: BORRELIA BURGDORFERI SPIROCHETE / CYST
by Prof. Robert W. Bradford and Henry W. Allen
EXCERPT:
. . . A discovery of great importance relating to a toxin produced by the causative agent of Lyme disease, Borrelia burgdorferi, has been linked to a similar toxin produced by the organism Clostridium botulinum (botulism). . . .
===========================
Keeping in mind the toxic nature - and understanding that when we sleep our body does its work to help clean up and rejuvenate - be sure to read all about how the liver deals with that. It works very hard for us when we are sleeping.
3/4 of the way down page one, there are lots of LIVER LINKS - not just about supplements but also great detail about how the liver works:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Need Lots of Help, good luck!
Posts: 4681 | Registered: Oct 2000
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posted
I DO NOT do mornings!!! This has been true for many years.
BUT I am getting a bit better with it. The pain is very much lower with the Bicillin shots and the increased Armour thyroid is definitely helping.
Keebler: you are a walking encyclopedia of knowledge!!!! I am in awe of your ability to understand this stuff. I am sure that the adrenals are involved, but there is no way I can absorb all of it. I can hardly absorb a movie. So I will pass it along to my husband. He is a science geek and great with this stuff.
All my life I have been very thin, even frail. I was very active, energetic with a very busy life raising three kids and running my business.
After my illness began, my thyroid went crazy and was removed. I promptly gained 100 pounds! Nothing could get it off. And I could hardly walk, breathe or do anything.
Now my LLMD is closely monitoring my hormone levels, my metabolic rates, etc. The new thyroid med is helping a lot and I am losing the weight and starting to resemble my old self.
Another trick for morning recovery: take your pain meds early as you can and then go back to sleep. When you awaken, get a heavy duty protein shake down. Mine is 41 gr protein, unsweetened yogurt, a few strawberries, some orange juice and ice cubes. I get the protein powder at Trader Joe's.
This sustains me until mid afternoon when I eat a small amount of yogurt and fruit or a tuna sandwich. Then we eat a very light dinner but a healthy one.
I am sure that the adrenals play a big role in all of this....I just don't understand it yet. Eventually I will....after I am better and don't need the enlightenment!
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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posted
Same thing happens to me, and I have no Idea why. I don't know. I always thought it is a lyme thing. I have energy before I go to bed, and I don't feel tired at all. I don't even feel sleepy. I sleep for like 9 hours, and I get up. I feel so tired to even talk. It is like someone beat the hell out of me the night before. It's horrible. Extreme fatigue. Through night time, I get more energy. I hate it. I want to be able to get up, full of energy. Ready for the day, but no.
-------------------- Ema Posts: 394 | From Southern California | Registered: Jun 2010
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
I think Co-infections, like "BLOs" (bartonella-like organisms) & viruses, can cause the body to be in a "fighting mode" early in the morning... as you near waking.
As you get up & going for the day, the immune system turns down, inflammatory responses lighten, & the body busys itself with other more important functions, like moving/walking, thinking, eating & pooping.
MY best time of day is usually an hour or 2 after I get up, IF I've had a reasonable night's sleep. And I only Get a decent amount of sleep if I don't stay Up late... & post on Boards like This 1!
Ahhh, the contradictions.... Posts: 1233 | From Dover, NH | Registered: Sep 2008
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i feel like i have to fight my way through a coma to wake up...
it takes me several hours to be able to move properly...
i can barely walk until late afternoon...
i feel my best at night, but hate going to sleep, because i dread how hard it is to wake back up!
Posts: 220 | From Kansas | Registered: Mar 2010
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Sammi
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Member # 110
posted
kellephant, have you had your adrenals tested?
Posts: 4681 | Registered: Oct 2000
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posted
not sure... doctors wont even run tests on me... i asked to have all my horomones checked, and the last doctor told me "it wasnt neccessary"... i paid him $160 for nothing!
another doctor told me my cortisol levels resembled someone with a high stress job, but i dont even work! that has to do with your adrenals right?
i know i need more tests done... i just dont have the money for it, and when i do pay money to go to the doctor, they send me home empty handed...
Posts: 220 | From Kansas | Registered: Mar 2010
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
kellephant,
Yes it's your adrenals. And Lyme is a high stress job : )
Lyme bacteria is placing a great amount of stress on your body and your adrenals are whacking out.
You'll see cortisol really high at times... until eventually it comes crashing down and it's extremely low. Aka the fatigue, etc etc
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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