posted
I was just wondering if anyone else experiences pain in the soles of their feet? My feet hurt even when I first wake up in the morning, by the end of the day I can barely walk on them...any suggestions would be greatly appreciated.
Posts: 16 | From Fredericton | Registered: Jul 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
This is a classic bartonella symptom. Bartonella is a common coinfection found in lyme patients.
See the following from Burrascano lyme treatment guidelines:
BARTONELLA & ''BARTONELLA-LIKE ORGANISMS''- � Gradual onset of initial illness. � CNS symptoms are out of proportion to the musculoskeletal ones- if a patient has no or minimal joint complaints but is severely encephalopathic (see below), then think of Bartonella/BLO. � Obvious signs of CNS irritability can include muscle twitches, tremors, insomnia, seizures, agitation, anxiety, severe mood swings, outbursts and antisocial behavior. � GI involvement may present as gastritis or abdominal pain (mesenteric adenitis). � Sore soles, especially in the morning. � Tender sub-cutaneous nodules along the extremities, especially outer thigh, shins, and occasionally along the triceps. � Occasional lymphadenopathy. � Morning fevers, usually around 99. Occasionally light sweats are noted. � Elevated vascular endothelial growth factor (VEGF) occurs in a minority, but the degree of elevation correlates with activity of the infection and may be used to monitor treatment. � Rapid response to treatment changes- often symptoms improve within days after antibiotics are begun, but relapses occur also within days if medication is withdrawn early. � May have papular or linear red rashes (like stretch marks that do not always follow skin planes), especially in those with GI involvement.
Your symptom is the 5th bullet in the list of symptoms.
You will need to be treated for bartonella for this symptom to go away. Lyme treatment will not work. Bartonella requires other medications.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Hi: I would say same as what they have said above,
but I will tell you that I think Tyndemax and Flagyl
may well have given me neuropathy which caused
terrible foot pain. However, herxing can
cause it too... so my doc doesn't know but does
not want me on the Flagyl or Tindemax.
I did not have a lot of pain in the morning- it was
more towards the end of the day and a burning,
stabbing pain. Detox helped me a lot too. Best--
Posts: 243 | From Charleston, SC | Registered: Oct 2008
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
ang
If its bone pain, heel and ball of foot, maybe Lyme. Not saying its not Bart, but it could just be Lyme. Bart has the headaches & rash to help identify it.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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posted
Sounds like the same pain I have. I have asked every doctor under the sun and get no answer. My feet, mostly soles/heels hurt so bad that it is a stuggle to walk. It is so bad when I first get up in the morning, I have to hold on the bed, dresser then the wall to get out of the bedroom. If I walk more than a few feet the pain is unbelieveable. My heels throb all the time, even while I am sitting.
This was one of the first symptoms that started for me so for me it's not related to herxing.
I was tested for co-infections and from what my llmd said, it was negative. If you find an answer please post it. I am dying to know what is causing it.
Posts: 75 | From NE Ohio | Registered: Mar 2010
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posted
I will post anything that I find out about this symptom. thanks all...
Posts: 16 | From Fredericton | Registered: Jul 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
cityroam, the bartonella and babesiosis tests are as inaccurate as the lyme test. So, you are supposed to be diagnosed based on symptoms, not test results.
Non-lyme doctors won't have a clue about bartonella, so don't look for any of them to figure it out.
In my opinion, your doc needs to give you a trial of bart meds to see how your body reacts and if the pain resolves. If it does, that tells the tale.
Posts: 9931 | From Maryland | Registered: Dec 2007
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Cityroam, I totally agree with TF. Diagnosis must be clinical with test results only an added plus.
Too many people on here have tested positive only for lyme and come to find out they are not improving because they have a hidden co-infection.
I know I have Bart. Foot pain has been a major symptom for me. It started with heel pain, went into plantar fasciitis (completely relieved by a short time on IV abx) and now is heel/sole pain.
It feels like someone smashed my bones with a baseball bat. It used to hurt all the time.
Now it's worse in the morning when I first get up (and yes, I have to hold on to the bed) but the more I walk, the better it gets. And it hurts in the evening, all evening, pretty badly. I often walk bent over because I can't put my foot down flat and walk normally in the evening.
When I was on Rifampin and Zith, I noticed the most improvement with my Bart symptoms including the foot/heel pain. After 4 months of that the pain was almost gone!
Then I had 8 days of no meds, changed abx. and things are getting worse again. Thankfully I see my LLMD this week.
I just got my first Bart rash, like prickly heat, on the nape of my neck. I'd never had any Bart rash before. I have had headaches (not an overwhelming amount) across the top of my head and forehead.
My kids both have Bartonella streaks on their hips and my daughter has Bartonella stretch marks on the back of her knees and on her thighs.
My husband, who's had very intermittent symptoms, has had Bart rashes and heel pain come out with treatment.
Please don't waste your valuable time and money treating only lyme even though you have coinfection symptoms just because you have a negative test.
I know too many people who've treated lyme for a year or more and don't improve because they have hidden coinfections. The diagnosis must be clinical.
Just MHO.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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'Kete-tracker
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Member # 17189
posted
Pain in the Soles of the feet? If you've been dealing with any kind of tick bite in the past, I'd say it sounds like classic bartonella.
You should be properly evaluated by a doctor famliar with tick-borne infections. If you don't know who to go see, hop on over to the "Seeking a Doctor " flash discussion board & Post. Posts: 1233 | From Dover, NH | Registered: Sep 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I have noticed a lot of people who test pos. for RMSF have foot pain. So who knows for sure.
Mine hurt like that and I only tested for Lyme.
Hot Epsom salt soaks, and ginger and lemon rubs along with my thyroid helped mine...
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
The sad thing is, I have been told by 2 LLMD that I don't have co-infections. I am doing interviews for a 3rd LLMD this week.
Maybe the 3rd times a charm..
ps.. what is RMSF?
Posts: 75 | From NE Ohio | Registered: Mar 2010
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BackinStOlaf
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Member # 23725
posted
Rocky Mountain Spotted Fever
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
You mean it's not even up for discussion? Can you show them an excellent symptom list and discuss it? Could you start treatment for Bart and see what happens? Do you have brain fog, fatigue, aggitation, depression, anger issues which are totally out of character?
I had these things for years not knowing that something was causing it. With treatment, they flaired big time (for 3 weeks) and then dissipated.
My light bulb moment came when a good friend said, "wow, you're like your old self again."
I just can't believe they aren't at least open for discussion. It only makes sense...
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
thank you all... i will try the foot soak...I cant beleive all of the symptoms and pain this disease causes..i actually had a dr recently tell me he didn't really beleive in lyme or something to that affect..he was so dismissive, c'est la vie I guess...I'm just so blessed that I do have a dr who is educated on all of this...so i'll keep on keepin on..oh ya and i've also been getting a rash lately...like hives or something..pretty itchy and they are quite long like stretch marks...annoying..is that bart too?
Posts: 16 | From Fredericton | Registered: Jul 2010
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
Quote: "...quite long like stretch marks" YES! That's ANOTHER Classic Bartonella sign... DUH!!! ("Image-google" 'bartonella rash')
(Did that other doctor really say,"I don't really believe in Lyme."... as in it doesn't EXIST? Or that it isn't found in your Area?
BTW... what IS your area? New Brunswick? 'Gee, I forgot. The deer ticks haven't gotten thier Passports yet. CAN'T be Lyme.')
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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posted
Lmao...that's funny ticks with passports, very clever, he said that he would treat someone if they came in with the actual tick or bullseye bite but other than that i guess a person is s.o.l. with him. anyway my doctor is on vacation for the next week and other than the bart rash and pain in my feet, the rest of my symptoms are not too bad right now, I think i'm going to try going back to work and start living my life..i feel frustrated from being home and not feeling well enough to be out in the world, hopefully the energy will come back and i will be able to manage...ty for the info on bart rash Posts: 16 | From Fredericton | Registered: Jul 2010
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posted
A local pharmacist told me diabetics and borderline diabetics can have extremely sore feet while on Flagyl.
Posts: 921 | From CT | Registered: Apr 2009
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