posted
After having this symptom 24/7 for almost three years does anyone have any advise or treatment that worked.
Have a severe positive SPECT scan from Columbia and have read back over many threads from the past on this subject.
Much conflicting info whether this is bart,babs, cytokines, etc. Any thoughts??? These are not migraines but just constant pressure around the eyes and forehead area.
Different ABX protocols have not touched it over two plus years----- does it ever go away ?????
Thanks in advance for any thoughts---- Don
Posts: 9 | From north jersey | Registered: Aug 2010
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posted
My forehead/eye h/a almost always coorolates with simple carb consumption. Ate a homemade blackberry pie slice bam! 30 min later killer h/a.
I call this my fungal headache and I hate it.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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posted
Head pressure has been my worst symptom since
diag. 2 yrs ago. It never goes away, it is
with me 24/7. Pain meds don't touch it. Tried
all the ABX that cross the BBB and still no
relief. I have severe joint pain and neuropathy
but those I will live with if I can just get
rid of the head thing. It has nothing to do w/
my diet as I am very careful. This is something
that I'm beginning to wonder if it can ever be
fixed. Sorry for being such a downer
Posts: 146 | From Vancouver, BC | Registered: Dec 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Jola. Have you taken Mepron and anti-malarials? Did that have any effect on your headache?
Posts: 2232 | From USA | Registered: Aug 2009
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posted
No need to be sorry JOLA. There seem to be a number of people on here with this as their major syptom and also a symptom that repsonds to almost nothing.
Dr.H who is world renown for his work with co-infections said that this symptom makes for his toughest cases---- but keep your head up and keep seeking answers as I do.
Posts: 9 | From north jersey | Registered: Aug 2010
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posted
Haley, Yes, I did Mepron w/all the usual combos for the
first 8 months. Many symptoms cleared eg:air
hunger,vision, heart palps etc. Even cognitive
function improved. However we are still trying
to get rid of the head pressure. Currently I
am on amoxy 6gr. per day. It has made my head
all the worse and so I have taken a few days off.
I am not sure if it was penetrating the brain or
I couldn't take it. What do you think????
Posts: 146 | From Vancouver, BC | Registered: Dec 2009
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gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
I had some these exact symptoms you describe. Found out I had ammonia in my brain, heart and my liver. After taking Jernigan Neuro-Antitox Cardio the symptoms went away. I also had heart palpitations too.
There's four different formulas for this. You can read this link and see which one best matches up to your symptoms.
Are you detoxing? Sounds like you need to detox. There's a great detox thread started by springshowers under "Medical". Look at the detox bath recipe I posted there. It's really helped me (and many others) a lot with some of the symptoms you are describing.
Detoxing is one of the most overlooked treatments by many LLMD's and lyme patients. Our bodies NEED to detox these poisons out of our systems or we will always feel miserable. Not all symptoms of misery we experience can be contributed to a herx.
posted
Honestly, diflucan has helped more than anything I've taken so far for head pressure.
it resulted in a series of massive head herxes over the course of several days...since my head pressure has been significantly reduced although cognitive symptoms linger
-------------------- long road since 2010 abx got me over the hump diet, detox, and herbs have got me to heal Posts: 174 | From CT | Registered: Jan 2010
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posted
Stork I've been on diflucan since day one of trtmnt. 100 gr. 4 days per week. I thought this was being used as a cyst buster and for yeast.
What dose do you take. One thing - I have yet to experience a yeast infection.
Also have been usng molybdenum,chlorella,beta-sisterol as per jernigan neut. Just made up my own potion.
I would give anything to get rid of this head pressure.
Posts: 146 | From Vancouver, BC | Registered: Dec 2009
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gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
JOLA,
I encourage you to look into the Jernigan Neuro-Antitox formulas. They are designed to help with detox and work good on detoxing ammonia which it what it sounds like you might have.
posted
Jola, and others.. This head pressure HORRBLESS has been my personal HELL for over 3 years.. it is 24/7. i have not had ONE second without it for over 3 years.. even in my sleep. What i would do to feel what a real head feels like again... it is worse than just head pressure, it also makes the world feel weird.
i have constant head pressure, cement head, woozy, dizzy, off balnce, feels like the ground is uneven when trying to walk.. and MORE.... it is the most horrific thing to live with... nothing looks normal, nothing feels normal... i dont even know what normals S anymore
NO one, and NOTHNG has touched this set of neuro symptoms. i detox regularly, eat healthy, etc... NOTHNG has made this better... i pray everyday for this to get better...
i am a prisoner of my home and bed/couch unable to do anything because of these symptoms... i have not been able to stand in the shower since 2006, i cannot drive, walk far, and going into a store is THE WORST, makes ALL symptoms worse.
i WiSH i knew what caused this... i did mepron, artemesia, and other abx... i have done every herbs, energy medicine treatment, ondamed, ASYRA, ART, Homeopathy, prayer, EVERYTHiNG.... and nothing has helped it...
i am sorry to be such a downer... but this is hell, and i want OUT.
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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posted
Unexpectedills and Jola (hello, my friend), I don't have any answers but want to let you know I'm right there with you.
Unexpected, I couldn't have said it any better, it is our story EXACTLY, except for mine started in 2004. I'm praying for us all, this is no way to live.
If you ever want to vent I'm here.
Penny
Posts: 219 | From pacific nw | Registered: Jun 2009
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posted
Joahsark... i am sorry you have to deal with this also... it is pure toture
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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posted
i understand what you all are going through.... my hubby has had head and eye pain for 8yrs now
only 4 yrs ago finally found out he has Lyme.. been in treatment since 9/06...just the past few mts things have been changing for the good..
his eye pain a little better...but head pain is still about a 12 most days...but some days he wants to do things...sometime he will watch a few min of a ball game and he takes the trash out...but the fact the he wants to do these are for me great....
today is the first time he put a suit and tie on in years...his Aunt passed on and we went to the church...we had to leave before it was over he was in so much pain...
noise and people really get to him...
it may be a start for him but it is very slow...but i am happy for little steps...
just know you are not alone...take care.. and remember that old saying "one day at a time"
-------------------- madgen Posts: 342 | From newjersey | Registered: Oct 2007
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