posted
My daughter ... Bart (IgG - 1:25G iGenex), Lyme negative @ moment but suffering for 5 yrs now..1 yr on mepron for babesia but discontinued now. she is having muscle, joint pains, brain fog, irregular sweep, loss of concentration, mood swings ....it peaks and then gets better ...cycle is repeating every week for last 3 months ...doctors had switched her to doxy and rifampin 2 months ago from Zithro & Mepron which she took for last 2 years ....so is this bouts of symptoms cud be herx reaction and are they common for bart ...any suggestions wud be helpful
Posts: 25 | From CT, USA | Registered: Jun 2010
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Common symptoms of bartonellosis include:
___Fatigue (often with agitation, unlike Lyme disease, which is more exhaustion)
___Low grade fevers, especially morning and/or late afternoon, often associated with feelings of "coming down with the flu or a virus"
___Sweats, often morning or late afternoon (sometimes at night) - often described as "thick" or "sticky" in nature
___Headaches, especially frontal (often confused with sinus) or on top of head
___Eye symptoms including episodes of blurred vision, red eyes, dry eyes
___Ringing in the ears (tinnitus) and sometimes hearing problems (decreased or even increased sensitivity - so-called hyperacusis)
___Sore throats (recurring)
___Swollen glands, especially neck and under arms
___Anxiety and worry attacks; others perceive as "very anxious"
___Episodes of confusion and disorientation that are usually transient (and very scary); often can be seizure-like in nature
___Joint pain and stiffness (often both Left and Right sides as opposed to Lyme which is often on one side only with pain and stiffness that changes locations)
___Muscle pains especially the calves; may be twitching and cramping also
___Foot pain, more in the morning involving the heels or soles of the feet (sometimes misdiagnosed as plantar fasciitis)
___Nerve irritation symptoms which can be described as burning, vibrating, numb, shooting, etc.
___Tremors and/or muscle twitching
___Heart palpitations and strange chest pains
___Episodes of breathlessness
___Strange rashes recurring on the body often, red stretch marks, and peculiar tender lumps and nodules along the sides of the legs or arms, spider veins
___Gastrointestinal symptoms, abdominal pain and acid reflux
___Shin bone pain and tenderness
It "could" be Bart. I have heard many stories who had a symptom peak after starting treatment.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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17hens
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Member # 23747
posted
Great thread! I'd love to hear more input from people!
My 14 yr. old daughter is being treated for Bart and is having these exact symptoms as nevagiveup's daughter. It's hard for me to tell if the meds are working and she's herxing or if the meds are not working and she's symptomatic because she wasn't very symptomatic before she started treatment.
When I herx from Bart treatment I have sore throat, headache, heel pain, and fatigue (the truck hit me kind), chills, red dry eyes, brain fog, sore arm pits, and emotional stuff like depression and major agitation (mean as a hornet).
My Bart symptoms in general have been EVERYTHING bcb listed above EXCEPT thick sweats, anything w/ ears, Episodes of confusion and disorientation, and rashes
Hope this helps someone a little...
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
Many thanks bcb & 17hens for sharing symptoms and experience which is almost similar to my daughter.
Is variation in symtpoms very common in bart ? my daughter has peaks and lows since last 3 months ...she starts recovering and then her symptoms become worse ...is this a sign of herxing and if so, what can we do to help her to reduce variation in symptoms and get her back to recovery mode without disruption.
Any guidance / inputs will be extremely helpful and be appreciated.
Best Wishes !
Posts: 25 | From CT, USA | Registered: Jun 2010
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nefferdun
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posted
This is a very interesting question which I would also like to hear responses to. I sure have my ups and downs with it and it is hard to tell what is herxing and what is relapsing.
If it were lyme it cycles every four weeks but I do not recognize what the cycle for bart is.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Folks - Any expereince or thoughts on herx vs relapse ... do appreciate your suggestions ...please respond.
Best Wishes !
Posts: 25 | From CT, USA | Registered: Jun 2010
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Tricky Tickey
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Member # 26546
posted
Glad you posted those Bart symptoms. I have about 3 of the symptoms only, actually more before I started Doxy.... I'm just not convinced I have Bart, but who knows? It's so complicated!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
Hmm...I have a bunch of those symptoms too...Can you have bart but NOT have fatigue? And is it too late for me to find out if I have it or not being that I'm already on antibiotics??
Posts: 82 | From NJ | Registered: Mar 2011
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I'm becoming more convinced my LLMD is correct that Bartonella is a huge issue for me when looking at this list. I started Bar-1 yesterday and have had massive head pressure/thick afternoon sweats today.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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t9im
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Member # 25489
posted
Our daughter has been on mepron and zith for 1 year so I think 2 years should put a stop to the babesia.
We have not seen any Bart symptoms (except for foot pain which we hope is Lyme vs. Bart, time will tell).
Our daughters Lyme symptoms started to improve once she started taking Tindamax. Unfortunatley we may have to take her off this cyst buster due to "itching" reaction. The brain fog, neuro symptoms improved considerably once on Tindamax (took a couple of months).
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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t9im
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posted
bcb:
You know a few of your Bart symptoms are Babesia symptoms.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
YEs..Thanks.
I have both. Day 6 of Factive and my muscle twitches have stopped.
2nd week of Artemisinin for Babesia and no more night sweats.
Progress...
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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