Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
I have a dear friend in the San Diego area that suffered terribly from Lyme. Her joints were destroyed by this disease. She recently had double hip replacemnt surgery at the age of 73 and was feeling so much better, and was so positive about her future.
Then sometime this last Saturday she had an anurism explode in her head, and by Sunday morning she was taken off life support. Her body is still here, but she is no longer there. Hospice says it won't be to long and the family is starting to make arrangements.
One of her wishes was that her body be donated to research for Lyme Diesease. Does anyone know how to go about this?
Again she is in San Diego County.
Thanks
Posts: 1251 | From california | Registered: Apr 2005
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Google
Lifequest Anatomical
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I'm so sorry to hear about your friend. I hope she knew and that her family knows that absolutely no tissue transplant/donation is safe.
My guess is that's why she chooses research donation - but just wanted to be sure.
Blessings to her, her family and dear friends. I hope love can shine through. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Thank you Onbam. They are on the east coast, my friend is on the west. Also, they want the part of her that is extremely damaged and may be of no use to them. They are studying nuero lyme particularly and she seemed pretty ok there. Other parts had be ruined by Lyme.
Glm111q, I spoke with Lifquest, they have no need for Lyme studies:{ Thank you
Keebler, she she was very aware of not donating living organs.
So does any one else have any ideas?? This was very important to her.
Posts: 1251 | From california | Registered: Apr 2005
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posted
Only thing I can think of is try calling ILADS.
Posts: 252 | From New York | Registered: Apr 2010
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
How sad, I did speak to ILADS, thank you Greengirl. There really is no where other then them columbia University:{
Posts: 1251 | From california | Registered: Apr 2005
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posted
DId you call Columbia for ideas?
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Yeah I did. Maybe one other option they were going to look into, but I have not heard back from them.
Posts: 1251 | From california | Registered: Apr 2005
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
So sorry for your loss
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Hi Jellybelly, I think you need to sign a consent form stating your desire to donate your body to Science when you're still in a good start of mind.
I'm so sorry to hear this bad news... |
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
I just found this site, it could be by just telling your family your wishes they may donate your body.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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