posted
I have tested positive for Lyme and XMRV and have been monitoring XMRV very closely. The NIH & FDA have confirmed the Whittemore Peterson Institute (WPI) findings published in Science in October 2009. The NIH & FDA are scheduled to publish a paper in PNAS next month that shows findings of XMRV in 80%+ of patients with CFS and 3-5% of healthy controls (could be slightly different, leaked numbers). Dr. Burrascano has chimed in this week with this message found on the Phoenix Rising Forum.
quote: Hello all from Dr. B. I just returned from the first official scientific symposium of the Whittemore-Peterson Institute on the topic of XMRV. We formed a working group to be in constant touch and we plan to meet regularly because advances are coming so rapidly. Big news that everyone should know and adopt is that we have proposed a name change for the virus. This virus is a human, not mouse virus, and it is the first and so far only gamma-retrovirus known to infect people. Also, it is clearly not an "endogenous" retrovirus (one that is present in all genomes due to ancient infection). Because of all of this, and because of the desire to begin on the right track, the new name of the virus is HGRV- Human Gamma Retro Virus. The illness caused by this infection is named HGRAD- Human Gamma Retrovirus Associated Disease. We plan to announce this at the upcoming NIH retroviral conference this September. Definitely stay tuned- the volume of new and important information about this virus and its disease associations is increasing rapidly and in my opinion should be a concern to every patient with chronic neuro-immune diseases, including those with chronic Lyme.
Joseph J. Burrascano Jr. M.D. Water Mill, NY, USA
Posts: 92 | From Virginia | Registered: Jan 2009
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posted
LOL!! I just posted the same message from Dr. B!
Great minds think alike I suppose :-)
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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posted
:-) Hey...I see you are also in Virginia! Me too.
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Glad to see so many tuned into this important news.
Pam08's thread: a news announcement about XMRV is also here:
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