posted
I was told I should post my story here. Hope it can help someone and I would apprecaite any feedback.
I am a 38 year old female and was diagnosed with Relapsing Remitting Multiple Sclerosis in 2007, but in my heart, body, and soul I know that I have Lyme Disease. I know it can mimic MS but I was bitten by a tick in West Virginia when I was a child.
When I almost fainted in the store, my mom took me to the hospital, the ER doctor found it at the base of my skull. She said the doctor removed it with tweezers and threw it in the trash. I did not have the bulls eye rash that my mom can remember and because it was so long ago she doesn't remember me having any after affects either. A few years later I tested positive for mono. My mom said I contracted it from a playmate.
I have always had a lot of problems in school, it was a struggle for me everyday especially with Math, I hated it because no matter what I did I would flip my numbers around constantly, so I would always have the answer wrong because I copied it out of the book or off the board wrong.
When I started driving I was scared because I would always get lost even in my own city. I have always been afraid to travel because of my problems with directions. I made it through those years and as I grew I seemed pretty healthy except that I had irregular and horrible menses starting at 10 years of age, my doctor said that he thought I had endometriosis and put me on different forms of birth control at age 11.
Other than those times of the month, I was a normal teenager. I enjoyed dancing, skating, swimming, riding bikes, and I walked everywhere. At eighteen I had my gallbladder removed which contained 3 gallstones they say were all cholesterol, I don't know why I had so much cholesterol. After that operation, I felt 100% better I could eat with nausea or pain and could sleep finally.
I got pregnant with my oldest child at 21 and had a hard pregnancy with him; I had to stop working because of spotting and extreme pain in my back. I also suffered with what they thought were migraines, they were the worst headaches I have ever had.
I also had a very serious kidney infection that almost put me into pre term labor. I have had many UTI's and kidney infections some put me in the hospitals for days. I got pregnant with my daughter at age 23 and that pregnancy was a breeze until I had to be induced 4 weeks early due to an increase in amniotic fluid.
At age 25 I had a hysterectomy for the endometriosis and multiple cysts on my left ovary. it was a last resort but wow it made such a difference in the way I felt. No more horrendous PMS and no more stomach pain. After that was over everything was great except at times I felt so exhausted and there really was no reason why. I continued to work and be a mom and take it one day at a time.
In 1999, we moved from Grand Rapids, Michigan to Columbus, Indiana and were trying to make a new start. I missed home a lot and thought it was a big mistake to move. I became depressed and homesick, worked odd jobs while I tried to get into Cummins. I moved into a townhouse and became very sick with asthma later to find out it was probably mold induced.
I was working and going to school, I had an episode at my job that really scared me. I worked in the laundry room at a hotel and I started feeling dizzy and few minutes later I dropped to my knees and couldn't get up. The room was spinning and I COULD NOT stand up. I waited until someone walked by and told them to get my mom, she worked there too. My mom got down to me and she tried to stand me up and I fell over to my right side. She told me to try and stand up straight but I couldn't, it was impossible. She took me to the Volunteers in Medicine and had to physically hold me up because I couldn't walk straight.
They tested me and they said that my epiglottis was hanging to the right and then made me stick out my tongue and that also went to the right. At that time they told my mom and I that the news isn't good either way, ``I either had a brain tumor or Multiple Sclerosis'' so I had an MRI within the hour and it was negative.
I had the spell for almost 3 months; I couldn't work or go to school. I couldn't even sit up straight on the couch. I knew something was wrong but what, I had no idea. After that episode ended, I was fine I got back in school and got the job I wanted at Cummins.
Everything was going great my life was great. I had quit school because of being so tired and we worked 70 plus hours at first so I gave up school for the moment. I worked there for 3 years and everything was going great I was making good money, had a new place to live, and was raising two beautiful kids.
Then in 2005 I started becoming totally exhausted again for no reason. I knew working a lot of hours and being a mom would make me tired but this exhaustion was overwhelming. I worked 3rd shift and I would sleep from 7:30am to 3:30pm and then get up with my kids, make dinner and get them ready to go to my moms.
Then I would go back home call in to work and get my pajamas on and go back to bed and sleep all night. Get up in the morning put my uniform on, do my hair etc and go pick up my kids like I was getting off work. I started doing this at least 2 times a week for a while. I used up all my vacation, sick time, emergency time, everything doing this, but I was so tired that I couldn't function anymore.
After I started getting write- ups at work, my boss asked me ``What was going on? I never miss and this wasn't like me''. I just told him that I haven't been feeling well so I went to see if I had mono or something, it was negative. Then out of the blue I felt great was full of energy and went back to my normal routine. Soon I was back into the same thing but this time I had no time off to fall back on and had occurrences.
I was so tired and felt so bad I thought I would just sleep when I could even small naps. This worked for a little while then it became where I couldn't sleep at all. The kids would go to school I would eat go to lie down and I could not fall to sleep before I knew it, it was 3:30 and the kids were coming home.
I knew I was in trouble with no sleep so I told them ``Mom is going to take you over to Nanas and I am going to sleep because I couldn't sleep today''. So I did just that and tried to sleep but couldn't this went on for 3 days.
I was not eating, which I was telling my mom I was. I was not sleeping which I was telling her I was and the 3rd day I was a zombie. I went home and went to my cupboard and took a palmful of pills and was about to swallow them when my mom busted in.
She said she knew something was wrong so she followed me. From that point I went to the ER and they admitted me into a stress unit. I was there for 4 days and off work through FMLA for 3 months for severe depression. From that point things started going downhill.
I was in trouble at work for my attendance, I was extremely tired when I was at work yet I still tried to work overtime so that I had extra money to do things with my kids. I was very stressed because I was behind on everything and now I was on antidepressants and sleep meds. I hated even taking an aspirin but they did help for a little while.
While I was at work I was tired, a little dizzy and just didn't feel well. I slept as much as I could and brought my kids over to my mom for dinner, would eat there, and then go home change and go to work.
Pick them up after work, have cereal, get them on the bus, and go straight to bed, I had no energy to do anything else. I felt like a lazy, good for nothing bum that couldn't even cook dinner for my one kids. I thought maybe it was I just couldn't handle 3rd shift so as soon as I could I bid to 2nd.
On 2nd nothing changed except that I actually slept at night and that was easier on me. I wasn't as tired but I still didn't feel right. A couple of months into a no missed work schedule, I started having intense burning in my feet, I changed shoes, insoles, even put extra padding in my heels.
But I couldn't walk it hurt so bad it felt like needles in my heels. I went to a podiatrist and he said I had plantar fasciitis. I had surgery on my right foot because that was the one that hurt the most. He took me off for 5 months to heal and I figured if it fixed it I would have the other done too.
After I went back I still had problems with my feet I couldn't stand the pain but I just dealt with it. I could not afford any more time off.
Then if things were bad enough I started feeling really dizzy and nauseated and had horrible headaches and the depression took hold of me big time. After 5 changes in antidepressants, I was put on Cymbalta, what a relief it worked. The pain and dizziness was still there though so my doctor took me out of work on short term disability for a couple of months while I saw doctor after doctor.
I decided that I needed to find a different line of work if my feet were going bad so I started school and attended classes for medical coding. I loved it I finally found something I loved and I found out I was really good at too.
I then developed another throat infection this time it sent me to the hospital. I was tired of having them so often so I decided to see about getting my tonsils out because, I have heard that is what causes most infections. My doctor said ``Oh yes they are huge and infected they need to come out''.
He had me on antibiotics to treat the infection and when it was time I had them out. - No more throat infections but I developed Bells Palsy on my right side this is the 2nd time I had this. The first was when I had migraines it was also on the right side.
It was really bad so my doctor sent me for a MRI because he thought I had something happen in my brain. He had never seen a tonsillectomy cause Bells so he was very concerned. He put me on high doses of Prednisone and it took a while but it resolved. A few weeks later it was back but this time my throat didn't feel right it felt numb. He did some tests and he said that my gag reflex was gone and that I had polyneuropathy. Within the hour I was at a neurologist's office and then sent to the hospital, admitted and tests run, he thought it could be MS or Lupus. After doing an LP, MRI, and blood work he said it is possible MS but he was not sure.
I went home put my symptoms in the computer and the first thing that came up was Lyme's Disease and the next was Multiple Sclerosis. I was really worried because I knew I had been bitten by a tick but I had never heard of anyone having MS in my family.
School was going great at first. I was an honor student- first time in my life, passing every class with A's and then on a final I couldn't see what I was doing. My eyes were blurry and blinking did not clear them so I did the best I could and got my first B.
I was so upset but I thought I just needed glasses so I went to see and ophthalmologist and my half hour apt turned into 4 hours of tests. He really scared me because he put the papers down took his glasses off and said ``Damn'' (you have to know him). He told me I have optic nerve damage and then continued to tell me that it is irreversible and also said my depth perception is so off that I shouldn't drive anymore.
My life just spun out of control I couldn't believe it. Within 5 months I was legally blind in my left eye and I am now to 20/40 in my right. I left and cried my eyes out ``what is going on''! I continued seeing my neurologist and doing my own research while I ate everything pureed because I couldn't swallow without choking. I started counseling because I was having a hard time dealing with all that was happening to me. My counselor told me about the Cleveland Clinic and how they have an MS clinic there.
Dr. G, at the ms clinic did the neuro tests and said yes, I do have MS. He showed me that I only have 3 small lesions in my brain but with other tests he did said I have optic neuritis, I have no reflexes in my feet and dimensioned reflexes in my legs. I also have some spasticity in my wrists and legs and with the other symptoms I described that he was definite that I had it.
When he saw me I had a little Bells Palsy left from my last bout 3 weeks prior (I woke up that way, my face was tingling). With the optic neuritis Dr. Grant had me do a test with a dot on a TV screen (I think it is an EMG but I can't remember and I passed so I was really confused.
So there I finally had a definitive answer I had Relapsing Remitting Multiple Sclerosis. I was to get on a therapy shot so I chose Copaxone; the only problem was I got even sicker from it. I felt nauseous, hot, fevered; my legs ached, headaches, etc.
I had to stop it because it could be the only reason that I was having severe chest pains, like being stabbed repeatedly in the chest and back. So I quit taking them and I soon was feeling better but still not well.
January of 2009 I woke up and my whole left side was numb from my nose to my foot, my speech was slurred, and I had vertigo really bad. I went to the ER and they put me in the hospital for 5 days ran a complete MRI from head to tailbone and NOTHING not one spot or highlighted spot.
How can this be explained? With physical therapy and Sol Medrol IV I got better but now have a very weak left leg.
So now I have abnormal exhaustion, a weak left leg, loss of vision in left eye, partial in right, choking sometimes, decrease of smell, weird taste of some things, a little drooping of right side of mouth, loss of balance, some dizziness, extreme heat intolerance, nausea, constipation, back pain, shoulder pain, joint pain (mainly fingers and knees), major depression, anger outbursts, anxiety just to name a few.
But in the last week I have been in the ER 3 times because of severe pain that started with me standing at the sink and feeling as if someone just jabbed a knife in my back. It hurt so bad that my mom called an ambulance I couldn't breathe it hurt tremendously to breathe.
It is worrying me that I have been having a lot of stabbing pain under my ribs and from my back to under my right breast. I have been to the hospital and the pain has been so bad that they give me morphine and checked for a collapsed lung and a blood clot in my lung.
While I was there my blood pressure was very high 156/110 and my heart beats extremely fast lately for a few minutes and then calms down. It has been high every time I go to the doctors but when they retest it is in the normal range again.
Same thing happens to me at home with mine. My hearing in my right ear is also strange it feel s like I am in water. I also had a lipid panel done and my cholesterol was normal but my triglycerides are 460. I know I do not exercise like I used to but I don't eat badly I eat pretty healthy. My biggest no no is ice cream I love it, otherwise I don't eat fried foods unless they are fried in olive oil.
I do not sleep, if I do it is an hour or two and then I am awake again. I never sleep sound anymore, I cry a lot and am angry a lot and have been told it is normal because of what I am going through. I am telling you it is not normal to be sitting one minute and flying off the handle busting down doors the next.
I also have problems with any light, it kills my eyes even inside I keep blind down most of the time and I never go outside without sunglasses. I used to love the sun and being outside now because of the heat and the sun I rarely go out unless it's evening.
I also have constant problems with yeast infections. They are my nightmare I have them constantly and have had them since I was a teenager. It seems I can never get rid of them and when I take an antibiotic it is three times worse.
The reason I am telling you my story is because I saw a Medical show with Dr. Burascano on it and they talked about Lyme disease and how he specializes in tick borne illnesses. But he lives in New York and so I wanted to find a specialist here that does all the tests for Lyme to see if I have it.
I also have gone to Lymenet.org. and read all about it and it sounds like my life story. I have read that a lot of symptoms went away with treatment I need to find out if this is what has be plaguing me all my life. My life has been turned upside down and I now live on disability, have absolutely no energy, I had to quit school again, I had to give up my job that I loved. I want answers and I really want my life back.
-------------------- "Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi IGeneX results - POSITIVE Bartonella and Babesia (Babesia worst of all) 18+ 23-25 IND 30+ 39 IND 41+ 58+ 83-93++ Posts: 54 | From columbus indiana | Registered: Aug 2010
| IP: Logged |
Lyme can cause MS, but I think Lyme treatment may resolve most if not all of your symptoms. It will be a long hard road, however. Lyme treatment is no picnic.
Prednisone and Copaxone are two really bad drugs to be taking when you have Lyme. They suppress the immune system, allowing the lyme to be harder to treat.... though not impossible. Your drs have done a lot of damage to you.
Dr Burrascano is no longer practicing and I can guarantee you that there are doctors not too far away who can help you! (I've PM'd their names.)
There is a DVD of Dr. P's presentation Chronic Lyme Disease: Connection to MS- Facts behind the controversy http://www.newhaven.edu/unh/lyme/
Hope those help explain a few things!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Thanks TuTu...for answering...i couldn't find the energy to supply the links that you have or really make a cogent thought at the moment....
You're the best!
Anyway, welcome Needhelp38....hope that you find the help that you need as well as a road to renewed health....
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
posted
I hated handing out bad news, but there is always HOPE that a person can get well with the RIGHT CARE!!
She has been through so much and deserves to get well! Well, that sounds like all of us here!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Wow- your story sounds so awful. I'm so sorry you've had to live like that.
I share many of your symptoms, especially the yeast infections. I had 6 last year alone, all before starting treatment. Since treatment I have only had 1 mild one...and this is while on antibiotics!
I hope you get better soon!!
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes Lyme Is MS for me.
But getting much better after 18mths. of antibiotics....
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
I am so sorry to hear of all that you've gone through.
I think you need to find an LLMD as soon as you can.
The pain in your heels that you had for a while can be a symptom of bartonella, so it's possible you could have Lyme and coinfections.
It may be that all or most MS is Lyme, or perhaps there's another stealth infection that could cause the same symptoms. Anyway I know many people with Lyme have been misdiagnosed first with MS.
The good thing about having Lyme disease (if there is one) is that after you get better, all your symptoms can go away.
Don't take any more steroids. They will just make you much sicker and harder to treat, as you've already found out.
Hang in there. Nothing is permanent. You ARE going to get better.
Light
-------------------- Don't forget to laugh! And when you're going through hell, keep going!
Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009. Posts: 756 | From Inside the tunnel | Registered: Jan 2010
| IP: Logged |
Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Wow, this is one tough story! Get to a Lyme Literate doc immediately! I cannot believe nobody ever tested you for it. Remember, a regualar MD won't test through Igenex, which is a Lyme speciality lab. Good luck to you & our thoughts are with you. Keep us posted.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
| IP: Logged |
posted
Thank you everyone I have left a message for a LLMD in MO. Thanks to Lymetoo I might have a chance if they will work with me because of insurance. If not I don't know what I will do because I don't want to lose my vision or keep feeling this bad. You all are great and I am so glad that I found you. Thanks so much
-------------------- "Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi IGeneX results - POSITIVE Bartonella and Babesia (Babesia worst of all) 18+ 23-25 IND 30+ 39 IND 41+ 58+ 83-93++ Posts: 54 | From columbus indiana | Registered: Aug 2010
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
needhelp remember too that many of us are negative until we kill some first.
Some prefer to give the antibiotics a chance to kill--go off for at least 10 days and test with Igenex.
I took a antibiotic of sorts for 3 months before testing---it got me enough bands to say treat but could have been a lot better.
Just so you know in Lyme Neg. may not mean Neg. as it is an immune assay, and if your body is not making any antibodies it will not be seen on the test...
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
The movie is an excellent 'primer' on the nuances of Lyme Disease and gave me a crash course in everything Lyme.
I think that the most important thing for you to know is that a regular doctor testing for Lyme will more than likely find that you do not have Lyme and will tell you your test was negative.
It's not that they would by lying, it's just that the standard Elisa test is not effective at all in diagnosing Lyme!
Please do whatever it takes to get to an LLMD even if you have to pay out of pocket due to the fact they may not take insurance. It may be costly, but getting a diagnosis and treatment may just get you your life back.
My daughter also had a tick removed at age 5. Nobody said anything about Lyme. She had many of your syptoms for 11 years, until finally this past winter, she was diagnosed with Lyme by a reputable and Lyme literate doctor.
I can't say enough how important it is to get adequately tested.
You've had a horrible road, and pray you find some relief soon.
Posts: 333 | From Lyme Here Too | Registered: Mar 2010
| IP: Logged |
The movie is an excellent 'primer' on the nuances of Lyme Disease and gave me a crash course in everything Lyme.
I think that the most important thing for you to know is that a regular doctor testing for Lyme will more than likely find that you do not have Lyme and will tell you your test was negative.
It's not that they would by lying, it's just that the standard Elisa test is not effective at all in diagnosing Lyme!
Please do whatever it takes to get to an LLMD even if you have to pay out of pocket due to the fact they may not take insurance. It may be costly, but getting a diagnosis and treatment may just get you your life back.
My daughter also had a tick removed at age 5. Nobody said anything about Lyme. She had many of your syptoms for 11 years, until finally this past winter, she was diagnosed with Lyme by a reputable and Lyme literate doctor.
I can't say enough how important it is to get adequately tested.
You've had a horrible road, and pray you find some relief soon.
Thank you so much how did you find the movie? I heard about it on youtube and on forums and no one has it. I looked everywhere that is awesome.
Did your daughter have any early signs of an illness? Do you remember her getting the "rash" or having any flu like symptoms? How is she now? She is 16? did you catch it before she had any vision or neurological symptoms. Oh God I hope so I wouldn't want her to go through any of these symptoms. Tell her to take care and hope she beats it. With a mom as strong and dedicated as you are she is got all the power in her corner.
My mom is also my backbone, if I didn't have her going through this I really don't know what I would do. The same thing happened when I had my tick removed. I remember how bad I felt before it was removed in the ER. I was telling mom that morning that I didn't feel well but then went with my mom and her friend to the store. I kept laying my head on the metal on the cashier belt because it was cold. Then I started sitting on the floor and by the time we got to the door I pretty much collapsed. My mom said I was a greyish color and my lips were blue. When I got to the ER they started going over my body and then went over my head and behind it. I had waist length hair at the time and he found the lump. He did pull it out with tweezers and cleaned the site but he just threw it in the trash.My mom said blood flew everywhere so it had to be there for a while and it was as big as the end of her pinky. That is a lot of MY blood YUCK.
Back then of course they really knew nothing about Lyme but as sick as I was, as soon as he pulled it out I started feeling better, my color returned and everything. She doesn't remember much about it other than that.
I think she feels guilty though because she said she doesn't know how she didn't feel it or see it because she brushed my hair twice a day and put it it pigtails or ponytail.
I hope to be hearing back from an LLMD from MO. When I was working I had excellent insurance but now I have Medicare and Medicaid so that is my big problem. I hope if they don't take that I hope they will let me make payment arrangments and work with me. I don't want this to keep me sick and make me go blind.
I will not stop there has to be a LLMD that will help me somewhere. I have been to the lowest of the bottom finding out I had MS. So all I have is the thought of the miracle that I may be able to be cured, MS is not curable I know it sounds horrible but I hope it is Lyme. Thanks for replying and sorry I wrote so much I just appreciate the fact that I now have people I can talk to about this. Good luck to and your daughter. Take care
-------------------- "Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi IGeneX results - POSITIVE Bartonella and Babesia (Babesia worst of all) 18+ 23-25 IND 30+ 39 IND 41+ 58+ 83-93++ Posts: 54 | From columbus indiana | Registered: Aug 2010
| IP: Logged |
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
You need to be tested for chlamydia pneumonia as well, it causes MS as well. cpnhelp.org High IGG cpn is also a positive diagnosis.
Posts: 1834 | From US | Registered: Oct 2008
| IP: Logged |
posted
Hi Needhelp. I bought it from the website, it was $40.
Both our county and city library have copies that can be checked out. If yours doesn't have it, you can ask them to order it. Most will order. You can get the information from their website to give to your library.
My daughter had tick on her head for a long time. She has always had issues with catching every virus around, but after the tick was removed she started having severe pain in her Gi tract and her ankles, back and knees.
She didn't have a rash, but then less than half of people have a bullseye rash. Hers could have been hidden in her waist length hair for all we know.
She has always been very active, but got sick alot. Then, last year, she crashed after a bout with mono. The doctors said it was post viral fatigue syndrome.
She has vision problems, but we're hoping they resolve with treatment.
I hope that you have posted under seeking a doctor and asked for referrals. I am glad that your mom is your rock. She can't feel guilty for what she didn't know
Posts: 333 | From Lyme Here Too | Registered: Mar 2010
| IP: Logged |
quote:Originally posted by LymeMom Kellye: Hi Needhelp. I bought it from the website, it was $40.
Both our county and city library have copies that can be checked out. If yours doesn't have it, you can ask them to order it. Most will order. You can get the information from their website to give to your library.
My daughter had tick on her head for a long time. She has always had issues with catching every virus around, but after the tick was removed she started having severe pain in her Gi tract and her ankles, back and knees.
She didn't have a rash, but then less than half of people have a bullseye rash. Hers could have been hidden in her waist length hair for all we know.
She has always been very active, but got sick alot. Then, last year, she crashed after a bout with mono. The doctors said it was post viral fatigue syndrome.
She has vision problems, but we're hoping they resolve with treatment.
I hope that you have posted under seeking a doctor and asked for referrals. I am glad that your mom is your rock. She can't feel guilty for what she didn't know
-------------------- "Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi IGeneX results - POSITIVE Bartonella and Babesia (Babesia worst of all) 18+ 23-25 IND 30+ 39 IND 41+ 58+ 83-93++ Posts: 54 | From columbus indiana | Registered: Aug 2010
| IP: Logged |
quote:Originally posted by LymeMom Kellye: Hi Needhelp. I bought it from the website, it was $40.
Both our county and city library have copies that can be checked out. If yours doesn't have it, you can ask them to order it. Most will order. You can get the information from their website to give to your library.
My daughter had tick on her head for a long time. She has always had issues with catching every virus around, but after the tick was removed she started having severe pain in her Gi tract and her ankles, back and knees.
She didn't have a rash, but then less than half of people have a bullseye rash. Hers could have been hidden in her waist length hair for all we know.
She has always been very active, but got sick alot. Then, last year, she crashed after a bout with mono. The doctors said it was post viral fatigue syndrome.
She has vision problems, but we're hoping they resolve with treatment.
I hope that you have posted under seeking a doctor and asked for referrals. I am glad that your mom is your rock. She can't feel guilty for what she didn't know
I had mono and was told I caught it from a neighbor girl. I remember being very sick and not wanting to eat but that is all. (I wish my short term memory worked as well as my long term).It could have been Lyme all along. I wish it was known about back then.
I have received a lot of referals, everyone has been really helpful. I left a msg for Lymetoo's doctor on Friday. I will be on pins and needles until they call. I will call them if they don't call me. I want to get started right now. I do not want this to keep eating at me and keep making me sicker. I already feel awful everyday.
I hope her vision gets better too. That is the scariest thing when you can't see. I look like I am looking through vasiline in my left eye and with the floaters in my right I am constantly seeing spots everywhere especially on white walls. It is enough to drive a person crazy. Take care and keep in touch and I will do the same.
-------------------- "Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi IGeneX results - POSITIVE Bartonella and Babesia (Babesia worst of all) 18+ 23-25 IND 30+ 39 IND 41+ 58+ 83-93++ Posts: 54 | From columbus indiana | Registered: Aug 2010
| IP: Logged |
quote:Originally posted by LymeMom Kellye: Hi Needhelp. I bought it from the website, it was $40.
Both our county and city library have copies that can be checked out. If yours doesn't have it, you can ask them to order it. Most will order. You can get the information from their website to give to your library.
My daughter had tick on her head for a long time. She has always had issues with catching every virus around, but after the tick was removed she started having severe pain in her Gi tract and her ankles, back and knees.
She didn't have a rash, but then less than half of people have a bullseye rash. Hers could have been hidden in her waist length hair for all we know.
She has always been very active, but got sick alot. Then, last year, she crashed after a bout with mono. The doctors said it was post viral fatigue syndrome.
She has vision problems, but we're hoping they resolve with treatment.
I hope that you have posted under seeking a doctor and asked for referrals. I am glad that your mom is your rock. She can't feel guilty for what she didn't know
I had mono and was told I caught it from a neighbor girl. I remember being very sick and not wanting to eat but that is all. (I wish my short term memory worked as well as my long term).It could have been Lyme all along. I wish it was known about back then.
I have received a lot of referals, everyone has been really helpful. I left a msg for Lymetoo's doctor on Friday. I will be on pins and needles until they call. I will call them if they don't call me. I want to get started right now. I do not want this to keep eating at me and keep making me sicker. I already feel awful everyday.
I hope her vision gets better too. That is the scariest thing when you can't see. I look like I am looking through vasiline in my left eye and with the floaters in my right I am constantly seeing spots everywhere especially on white walls. It is enough to drive a person crazy. Take care and keep in touch and I will do the same.
Oh (talking about short term memory) I forgot something I will call my library and see if they will order the movie. I watched the trailer and it was interesting to say the least. I saw that I could buy it but I really would just like to rent it if I can. Thanks though for that.
-------------------- "Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi IGeneX results - POSITIVE Bartonella and Babesia (Babesia worst of all) 18+ 23-25 IND 30+ 39 IND 41+ 58+ 83-93++ Posts: 54 | From columbus indiana | Registered: Aug 2010
| IP: Logged |
quote:Originally posted by karenl: You need to be tested for chlamydia pneumonia as well, it causes MS as well. cpnhelp.org High IGG cpn is also a positive diagnosis.
This sounds lovely YUCK! But thanks for the information. I will definitly look that up. Thank you again and take care
-------------------- "Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi IGeneX results - POSITIVE Bartonella and Babesia (Babesia worst of all) 18+ 23-25 IND 30+ 39 IND 41+ 58+ 83-93++ Posts: 54 | From columbus indiana | Registered: Aug 2010
| IP: Logged |
quote:Originally posted by needhelp38: I was told I should post my story here. Hope it can help someone and I would apprecaite any feedback. I also have constant problems with yeast infections. They are my nightmare I have them constantly and have had them since I was a teenager. It seems I can never get rid of them and when I take an antibiotic it is three times worse.
The reason I am telling you my story is because I saw a Medical show with Dr. Burascano on it and they talked about Lyme disease and how he specializes in tick borne illnesses. But he lives in New York and so I wanted to find a specialist here that does all the tests for Lyme to see if I have it.
Because of your yeast infections, I think you should go to Dr. S in MD, because others posting on this forum have reported his curing not only their yeast, but their lyme disease and its co-infections also. PM me if you want his name and contact info. I do not know if he is taking new patients. You definitely should get into see Dr. Dzeidzic, just in case she knows of someone in Indiana.
Posts: 20 | From Washington, DC | Registered: Jun 2003
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic