posted
I am Polish, but leaving in Belgium. I have been diagnosed with Lyme disease in April 2010 with ELISA test done in Poland, the results: IGM:22, IGG:0,25. The heavy symptoms (tiredness, pain in the muscles and joints) I have had since October 2009.
Since the diagnosis, I have been taking: Amoxicillin for 30 days and straight after that, Tetracycline and Metronizadol for 7 days once a month with 3 week break in between.
In the meantime I consulted 2 other infectious diseases doctors. As a result, I have done two additional ELISA tests, which gave negative results for Lyme. The doctors say I am healthy, despite my symptoms. However, the tests were taken in between the antibiotics (during the 3 week break).
My current doctor in Belgium does not think I should do any other exams. I should just continue with antibiotics.
Since the antibiotics treatment is long, I would like to be sure what I'm curing, therefore would like to make additional, confirmatory exams, to be sure I have Lyme.
Do you maybe know what additional exams I could make (LTT, CD-57, PCR, W-B) while taking antibiotics (so the results would not be destorted by the antibiotics)? I've heard that PCR can be made, but the test is not considered very effective.
I will be VERY grateful for your help!
Posts: 4 | From Belgium | Registered: Aug 2010
| IP: Logged |
posted
You need to take the meds until you HAVE NO SYMPTOMS. NO testing is needed while going through treatment.
The ELISA is fraught with false negatives anyway, so that one is OUT.
When you say you are taking a 3 wk break, do you mean you are taking NO antibiotics during that time???? If so, that will allow the spirochetes to multiply bigtime.
Very few of us here take ANY Lyme tests while going thru treatment. It just is not necessary.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Ditto to Lymetoo:
"You need to take the meds until you HAVE NO SYMPTOMS. NO testing is needed while going through treatment." -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
I would like to take a confirmatory test, as I do not want to be misdiagnosed.
I have strong symptoms corresponding to Lyme (extreme fatigue, pain in the muscles and joints, brain fog) and ELISA positive, however with very low IGG (0,25).
But as ELISA gives also false positives (e.g. when IGG level is zero), I'm not 100% sure that I have Lyme.
Therefore, I want to take a confirmatory test without stopping the antibiotics' treatment, as do not want to delay the cure, in case I have Lyme.
Yes, during this 3 week break I do not take any antibiotics. But I'm looking also for another Lyme disease doctor, to get a 2nd, actually it would be already the 5th doctor's opinion:)
Thanks a lot! Gosia
Posts: 4 | From Belgium | Registered: Aug 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic