littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
So how bad is the long term effects of this Lyme on my heart? I've been having "heart pains" as I call them, they are chest pains right where my heart is.
And my heart rate has been steady since I've gotten sick over 110. But the last couple of days I've been tracking it and most of the time it's 150 or above and sometimes I can get it all the way down to....136.
I'm worried because of the pains.
I'm not treating right now. I couldn't control my pain from herxes so I had to stop. I go see a new LLMD on Thursday (please pray it goes well) and am hoping I can get back to treating, since I've been not treating for almost 2 months and just getting worse.
Anybody know if Lyme leaves long term effects on the heart?
posted
It's a good idea to get checked out if you are having heart symptoms. The change in heartrate, to me, merits a visit to the doctor all on its own. Last Spring at a CALDA conference Dr. Martz spoke about his experience with late-stage Lyme. He said he was left with permanent heart damage and that he is vigilant about getting medical help at the first signs of cardiac symptoms. He's an MD and LLMD, definitely credible. Good luck with this and with your visit with the new LLMD.
Posts: 212 | From San Francisco Bay Area, California | Registered: Aug 2010
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posted
I agree with everyone here about getting checked out. The tachycardia is common with lyme disease, however it can also be caused by other problems as well.
I did have serious problems with my heart related to lyme. Initially, I had 3 valves in my heart that were regurging. It was only after treating the lyme aggressively that the incompetent valves resolved.
The tachycardia took alot longer to get under control... I did have a stress echo and a cardiac cath done because of the chest pain and pressure.
Everything turned out just fine. It was lyme disease, nothing else.
My doctor then put me on a beta blocker. This helped alot. But the most significant improvement was when I started treating babesia and lyme together.
My heart problems have mostly resolved and I have no permanent damage.
I remember thinking that this high heart rate and chest pressure was horrible. I went to the ER twice.
I do believe if you don't treat the lyme and babesia you could end up with permanent damage.
littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
Thanks for the input all. I am going to the LLMD on Thursday and I pray this man knows what he is doing.
I don't have a PCP right now because I don't have insurance so I am just trying to deal with it.
I've had an EKG but nothing showed up, it was completely normal. That was with my previous PCP (who dropped me when his staff made me out to be a drug seeker). My most current PCP won't even try to test my heart rate because he said it could be related to the flexeril...good doctor (NOT).
I've almost gone to the ER but then the pain resolves itself. I know the fast rate is common I am just worried about long term effects.
I'm going to talk to the new LLMD about co-s. I tested negative and my old LLMD said he would re-test me in a couple of months and then go from there. But I've heard so many people talking about hitting the co-s first. And I have so many symptoms of Babs and Bart and of course Lyme.
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I also have this. My EKG and ECHO were completely normal too. This week I started Bart treatment and the pain has gotten worse. I even felt 3 palpitation yesterday. This is my scariest symptom and I don't know what to do.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
Yeah it's not a fun symptom. The heart fluttering feeling is not cool!!!
I have to talk to my new LLMD, first appt. Thursday but I still haven't gotten any reviews about him yet and so I'm really nervous. I'm hoping he knows his stuff. I'm praying he knows his stuff!
posted
In my opinion (and I have heart issues myself) you NEED to be on something to lower that heart rate. It is TOO HIGH. Anything over 100 is too high.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
I agree with Lymetoo - that number is way to high.
I've had the heart and chest pain for years off and on, mostly on latly. I do have very bad pain a lot of the time but my rate never comes close to your numbers.
I would tell your doctor right away, and also tell the LLMD when you see him on Thursday.
Good luck!!!
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I've had these symptoms, mostly during Babesia treatment, and I also have a leaky heart valve. I periodically get the fibrillations and tachycardia.
I want to add another condition that causes heart symptoms - allergies. I have a hyperactive immune system (CD-57 over 500) and develop allergies at times. The most common offender is my supplements.
This type of allergy presents as heart pain and elevated heart rate. Often, those are the only symptoms.
When this allergy develops, I have to quit my supplements for a period of time, usually several weeks. I can still handle liquids and powders, but no capsules. It used to be the gelatin capsules that caused problems, but now ALL capsules can set me off.
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