posted
Hi, I am new to the post and wondered if anyone had similar symptoms..I had a bullseye rash 3 years ago, was treated 3 weeks with doxy, never had any problems at all until 6 months ago. Every night my limbs go numb, sometimes during the day. I have become very anxious. Have done mri, lumbar puncture to test for ms, tons of bloodwork...nothing turning up. My igenex has a couple bands positive, several indeterminate, they are saying negative. This week my tongue and right side of my face and upper body went numb. 6 months with no answers.....feeling very frustrated. Does this sound like lymes to anyone?
Posts: 38 | From idaho | Registered: Aug 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Yes...sounds like lyme. Some LLMD's feel if you have any bands or IND present then you have it.
Suggest you find an LLMD. Check out the "seeking a doctor" section of this site or contact www.ilads.org
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
A bullseye rash is diagnostic of lyme, so you know for sure you have been exposed. Symptoms would indicate Lyme without testing because of the bullseye rash.
Sounds like Bell's Palsy maybe? That is a typical lyme symptom.
I would schedule to see an LLMD if you haven't already. Three weeks is very little for Lyme treatment.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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If you'll post your test results (bands) we can help you interpret.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sadly, it sound exactly like lyme. Find a Lyme Literate Medical doctor.
A lumbar puncture is NOT a good test for lyme. Not at all. And MS is often undiagnosed lyme or a similar stealth infection.
You had the bulleye rash. You don't need anymore lyme tests. You should be assessed for other tick-borne infections, however. First see a LLMD and go from there.
Avoid all doctors who are not ILADS-educated, so to speak.
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:
HEALING LYME DISEASE: An Integrated Approach to Curing Chronic Infection by DKr, M.D. (2004)
============================
It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.
Find area Lyme Support Groups -- to help find a LLMD or LL ND, and lyme friendly local support. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thank you so much for the responses,so very helpful!! I am experiencing some numbness and tingling in my tongue now? My results from igenex...31, 34,39 IND 41+++ 45++ and 58+ I am trying to get in to see someone as soon as possible, still looking for lyme doc. Does anti anxiety med help at all with symptom relief until I can be seen? THANK YOU!!
Posts: 38 | From idaho | Registered: Aug 2010
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I too had the same thing happen to me. I have had Bells Palsy 5 times and it has effected my tongue and right side of my face as well as my throat and gag reflex. I have not been tested yet I have been diagnosed as having MS. I have an apt on Sept 9th with a LLMD to be tested. I was bitten as a child but don't remember having a rash. I was sick a lot growing up and now I am 38 and I have a lot of neurological probelems. Like everyone on here PLEASE see a LLMD they are different than a regular doctor or even a neurologist. I just found out that what they say is true doctors DO NOT BELIEVE IN LYME I asked my primary and OBGYN just to see and they hesitated to say anything. Do it get to an LLMD no matter what it takes, you do not want it to start causing vision or neurological symptoms. If you want to read my story, it is on here under "Wrong Diagnosis". I hope it may help and with you definitly having the rash you need to get to the doctor before it starts causing havoc on your body.
I don't know if this will help you but I take Klonopin for anxiety, depression, and the anger outbursts I have and it does help me. Without it I would be bouncing off the walls and full of rage I hope this helps. Take care and good luck.
-------------------- "Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi IGeneX results - POSITIVE Bartonella and Babesia (Babesia worst of all) 18+ 23-25 IND 30+ 39 IND 41+ 58+ 83-93++ Posts: 54 | From columbus indiana | Registered: Aug 2010
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